Nancy Petersen RN retired
@nancynursez637Started first LAPEX program with David Redwine for total excision of endometriosis 1986. Pt advocate, educator, retired RN, Volunteer for education
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3/3 Most cases like this are spectacularly difficult to win. Many also settle out of court with NDAs signed & court docs sealed. So much respect to the patient, as taking anything to court let alone as a survivor, is an incredibly stressful process.
2/3 For years, issues w access & education levels on the disease of practitioners in the spectrum of the care path have been highlighted by orgs & advocates to health care systems globally. With solutions proposed. There has to be accountability when the same failures persist.
Legal action re: #endometriosis is difficult to pursue (anywhere) for many reasons. Props to the Norwegian pt in tweet below. However there was an another successful case 4yrs ago in Nottingham. Things change but care hardly ever seems to improve. 🤷🏼♀️ bbc.com/news/uk-englan…
1/3 Elisabeth Larby wins case against the state (Norway) for delayed & inadequate diagnosis & treatment of severe #endometriosis . endometriose.no/endometriose-s…
yes take it away from everyone else as long as it does not impact me, kind of guy
This is former GOP Rep. Michael Grimm. He was recently involved in a tragic accident that has left him paralyzed and is seeking $2.5 million on GoFundMe to cover his expenses. Grimm voted against the Affordable Care Act to block health care access for millions of Americans.
1/3 Elisabeth Larby wins case against the state (Norway) for delayed & inadequate diagnosis & treatment of severe #endometriosis . endometriose.no/endometriose-s…
@YaleMed This was going well until the 3rd point. BCP doesn’t treat/halt disease. No drug halts does (Endometriomas = different case, hormonal suppression MAY assist with managing recurrence in some cases). Perpetuating this leads to loss of organs. medicine.yale.edu/news-article/f…
“Clear scans”, with a 7cm endometrioma. I’ve seen this numerous times. Make it make sense. Why is awareness of clinical signs of #endometriosis so low? Why is any sort of pelvic pain so easily dismissed? While this disease isn’t malignant, neither is it benign.
Pt presents to A&E w severe symptoms. Abt to be dismissed w ibuprofen & then emergency appendectomy which reveals severe disease. Appendix ovaries bladder & bowel strangled. 7cm endometrioma. “Clear scans” On hormone suppression for 4yrs. NO👏DRUG👏HALTS👏DISEASE #endometriosis
When will we get it?
Pt presents to A&E w severe symptoms. Abt to be dismissed w ibuprofen & then emergency appendectomy which reveals severe disease. Appendix ovaries bladder & bowel strangled. 7cm endometrioma. “Clear scans” On hormone suppression for 4yrs. NO👏DRUG👏HALTS👏DISEASE #endometriosis
We all know 'He' is a FRAUD‼️ The election results need to be investigated. Please listen to this, then LIKE & RETWEET.
The good that comes out of social media should not be tossed aside because of jerks, there is good work, education and connection on several important health issues between providers, advocates and patients, don’t lose that
Are you paying ATTENTION, yet?! 👇
Taylor Swift wrote a song about my son, Ronan, after he died of cancer. She put me on as a co-writer, and donated the proceeds directly to pediatric cancer -no strings, no hidden motives, just pure compassion and integrity. In stark contrast, the Trump family engaged in…
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Who to follow
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ENDO WHAT?
@EndoWhat -
Andrew Horne
@horne_research -
Mathew Leonardi MD PhD 🏳️🌈
@MathewLeonardi -
WES
@WorldEndoSoc -
Anna 🎗
@BattleWithEndo -
EndometriosisAust
@EndometriosisAu -
Endometriosis Surgeon India
@VimeeBindra -
The Endometriosis Coalition
@theendoco -
The Endometriosis Network Canada
@TheEndoNetwork -
EndoNews
@newsforendo -
Endometriosis Foundation of America (EndoFound)
@Endofound -
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Michaela
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Lynsey
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The Endo Informer
@theendoinformer
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