Jane Chudleigh
@JaneChudleighResearch: communication of positive newborn screening results to families. Senior Lecturer, King’s College London
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@Fiona_Whitwham
SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… @SergNetwork @ImaginingFuture @JaneChudleigh
The UK government has launched a major public engagement initiative to help shape the NHS 10 year plan. We want to ensure children are at the centre of this plan, and encourage RCPCH members to get involved. For further info and our full response 👇 rcpch.ac.uk/news-events/ne…
youtu.be/qrA41SQEaBw Public & Patient Involvement is health research is so important and representation in PPI is vital
Excited to share our paper exploring stakeholder views of incorporating next generation sequencing into the CF screening protocol authors.elsevier.com/sd/article/S26… @LouiseCMoodyCU @Corinna_Clark_ @cftrust @ImaginingFuture
Do you have a child (more than 3 mths but less than 3 years old) with sickle cell (SCD) or are a HCP caring for children with SCD who would consider being interviewed (1 hour). You will be compensated for your time. Please contact: Jane.2.chudleigh@kcl.ac.uk @SickleCellUK
The Sickle Cell Society and KCL are looking for a Research Assistant to work on a joint project. Part-time (2 days/14 hours per week) £30,600 pro rata. Fixed Term until 31 March 2025. Please send CV and covering letter to jane.2.chudleigh@kcl.ac.uk before 28/03/2024.
#NSPKU would like to comment @BBC_HaveYourSay Please DM Ppl with #PKU #Phenylketonuria would be affected by a reduced postal service as they send dried bloodspots to laboratories It's likely Newborn screening of all babies across the UK may be affected as well.....
#pku blood spot sending Just be aware that there are 4 days of strikes planned by staff @RoyalMail Fri 26 Aug Wed 31 Aug Thurs 8 & Fri 9 Sept Perhaps consider sending your bloodspot a day earlier… ? 🩸🩸🩸📮📮📮😶😶😶
The bookend to our previous work has now been published! We developed a cross-professional competency framework for communicating genomic results - a crucial part of the testing process. The framework can be adapted to a variety of contexts pubmed.ncbi.nlm.nih.gov/37965839/ 1/2
Proud to share this work by @mbishop_uk and I at @genomicsedu, developing a competency framework to facilitate genomic testing 1/n
Thank you to our fantastic presenters @2tbueser @JaneChudleigh and hosts at BSMS @Ethixbird @SustainableRich for another great SERG meeting yesterday. To present at a meeting or get updates on meetings register via warwick.ac.uk/SERG
Are you a researcher interested in ethical, legal and social aspects of genetic/ genomic medicine? come and work with us- we are a friendly, productive interdisciplinary research team! #cels my.corehr.com/pls/uoxrecruit…
The Kids Online Safety Act will protect kids online from #socialmedia algorithms that promote harmful content that negatively impacts youths' #mentalhealth. Tell the Senate to advance the legislation. actionnetwork.org/petitions/pass… #OurKidsCantWait #KOSAnow
CF dietitians and physiotherapists, would you like to join a workshop about extended sequencing for #cysticfibrosis screening and earn £20? Please provide your details here for more info: qualtrics.kcl.ac.uk/jfe/form/SV_2r… @CF_dietitians @bda_cf @ecfs_ecfng @CF_physios @acpcf @CF_Exercise
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
twitter.com/CFScreeningNGS… @4JennyAgutter @joansin4acure @TreacleGoblins @morgannham @sunnshineart @itzaznsammie @holly @nathanarodgers @piratefoxy @fatallyfibrosed @RoseAndWolf_ @Robbie_Random27 @sickafsid @aaaarrriiiixx_ @barefootcoven
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
We would love to hear from parents who have a child with a CFSPID designation: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
twitter.com/CFScreeningNGS… @ellie_russo15 @CowlardJacqui @ERSpublications @ScottGBickel @Joanneosmond
We would love to hear from parents who have a child with a CFSPID designation: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
We would love to hear from parents who have a child with a CFSPID designation: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody @imaginingfuture
We would love to hear from adults with #cysticfibrosis or who are CF carriers: Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk
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