Hannah Scott
@HannahM_Scott20Research assistant @QMUL | PhD candidate @CSI_KCL
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Excited to share the second paper from my #PhD: ‘What are the anticipated benefits, risks, barriers & facilitators to implementing #PCOMs into routine care for CYP with life-limiting/life-threatening conditions? Published in @PalliativeMedJ doi.org/10.1177/026921… 1/13 🧵
Children’s Palliative Care Outcome Scale (C-POS) Videos Launched: ehospice.com/inter_children… #pedpc @ehospicenews @ICPCN @CSI_KCL @KingsNursing @DaniellaLogun @TheAPPMuk
We are excited to share our final C-POS study newsletter. Please get in touch for more information on the project, or to request a PDF copy of the newsletter #pedpc @DrLucyCoombes @DEBraybrook @HannahM_Scott20 @childhealthqld @StarshipFDN @CSI_KCL @EAPCvzw @PalliativeMedJ
C-POS:UK is the first tool developed to improve health outcomes for children with palliative care needs in the UK. What are the benefits for healthcare professionals? @HannahM_Scott20 conducted research as part of her PhD & this is what she found: buff.ly/4dVNY4f
An important step in #PCOM development is #cognitive testing to establish comprehensibility, comprehensiveness, relevance & acceptability. @DrLucyCoombes led a cognitive interview study to test and refine the initial versions of C-POS #pedpc. Full article: doi.org/10.1177/026921…
Excited to share these two short videos (for families & #pedpc professionals), about the potential benefits of C-POS (@CYP_CSI @CSI_KCL), developed based on findings & recommendations from my #PhD with #PPI Professionals: youtube.com/watch?v=wNeOWq… Families: youtube.com/watch?v=0UMJdS…
C-POS:UK - for families of children and young people with life-limiting and life-threatening conditions: youtu.be/0UMJdSAzz9U?fe… @KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @fabian_trust @DaniellaLogun @Tog4ShortLives @TheAPPMuk #pedpc
C-POS:UK - for health and social care professionals supporting children and young people with life-limiting and life-threatening conditions and their families: youtu.be/wNeOWqFkz-Q?fe… @KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @Tog4ShortLives @TheAPPMuk #pedpc
What are the benefits, risks, barriers & facilitators to implementing PCOMs into paediatric palliative care #pedpc? @HannahM_Scott20 led a qualitative interview study to find out. 📰Full article: doi.org/10.1177/026921… 🔊Podcast: traffic.libsyn.com/secure/sagepal… / podcasts.apple.com/gb/podcast/sag…
My first, first author article has been published in @MASCC_JSCC as part of my #PhD at @CSI_KCL! A systematic review exploring non-pharmacological interventions targeting mobility in people with advanced #cancer. Available here: link.springer.com/article/10.100…
Delighted to participate in the final @CYP_CSI C-POS project meeting. Robust. Scientifically complex in leadership. 76 UK sites, over 500 participants, CYP, Parents, HSCPs & commissioners. 20yrs+ of waiting @fabian_trust @DrLucyCoombes @HannahM_Scott20 @RHardingCSI @DEBraybrook
The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (@DaniellaLogun @fabian_trust). We're in our final week of recruiting families to our study before analysis begins
The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (@DaniellaLogun @fabian_trust). We're in our final week of recruiting families to our study before analysis begins
3/3 The research team has created a leaflet of its findings and an infographic that you can view online or download as a pdf here: togetherforshortlives.org.uk/resource/worki… @NiftyFoxCreativ @lornafraser10 Research was funded The True Colours Trust.
Join us on the 24th of July for our CSI Open Seminar delivered by Dr Jamie Gross, Consultant in Intensive Care & Anaesthesia. The event is hosted virtually via Microsoft Teams. Sign up for FREE here: buytickets.at/facultyofnursi…
How do #children & #YoungPeople use #language to describe their own #LifeLimiting/#LifeThreatening condition #pedpc? @CSI_Linguist undertook a secondary #DiscourseAnalysis to find out. Full article: doi.org/10.1177/026921…
A systematic review exploring psychosocial-spiritual experiences of parents of children with Type 1 diabetes from the MENA region, has been published🎉. Grateful to my supervisors @jackie_sturt , Haya Abu Ghazaleh and Vasiliki Tzouvara & @Xiaoyancontinue 🙏🏽onlinelibrary.wiley.com/doi/10.1155/20…
Thrilled to be attending the @NIHRcommunity Doctoral Training Camp #NIHRTraining event online this afternoon to learn more about applying for further funding post-PhD
We are excited to share that we have recruited our 100th child participant to the C-POS questionnaire study! Thank you to all the children and young people who have taken part so far! #pedpc
What are the #barriers & #facilitators to #implementing #ChildCentred outcome measures (#PCOMs) in #paediatric healthcare practice? @HannahM_Scott20 conducted a systematic review to out. Full article: doi.org/10.1186/s12955…
🏳️🌈We can't achieve #LGBTQ inclusive #palliativecare til access to quality science is unobstructed🤯Only 21% of related articles over 30+ years were open access➡️from the closet to the paywall🔗to FULL @JPSMjournal paper: authors.elsevier.com/a/1jO0C39K9ywt… @DEBraybrook @DonnaWakefield_
We excited to share that we have recruited our 500th participant to the C-POS questionnaire study! Thank you to everyone who has taken part and to all the sites who continue to recruit to the study to reach our target of 600 participants! #pedpc
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Who to follow
-
Cicely Saunders Int
@CicelySaunders1 -
@WolfsonPallCare
@wolfsonpallcare -
Lorna Fraser
@lornafraser10 -
ICPCN
@ICPCN -
Lucy Coombes
@DrLucyCoombes -
Debbie Braybrook (she/her)
@DEBraybrook -
Tara Kerr-Elliott
@KerrElliott -
RichardHarding
@RHardingCSI -
The Association for Paediatric Palliative Medicine
@TheAPPMuk -
Michael Tatterton PhD RNC RHV SFHEA QN
@MJTatterton -
Sunitha Daniel
@sunithamd -
Julie Bayliss
@JulieB60390587 -
Katherine Bristowe
@CSI_Linguist -
Catriona Mayland
@CattyRM -
CYP Research in Palliative Care
@CYP_CSI
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