NSPKU
@NSPKUThe NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see https://t.co/f9QHejwhkW
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@ProminMetabolic
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@louisedietitian
@DNobleNesbitt
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Heartiest Congratulations Caroline Graham and Kate Learoyd @PKUFamily @nspku Very worthy winners of the #SheilaJones Advocacy Award. Thank you for your work #PKU 🫶🫶 #ESPKU2024
Thank you for all your continued support on the PKU S.P.O.R.T project - exciting times ahead! 🔬
Great to see the PKU S.P.O.R.T project covered by @NSPKU - great work @AnnieSkidmore2 @BCU_CLaSS @BCUHELS @myBCUresearch
Attention Healthcare Professionals! You are invited to the 16th Annual Vitaflo UK and Ireland Metabolic Dietitian's Meeting. This in-person event is a premier opportunity for IEM dietitians and other healthcare professionals to come together to share knowledge, gain insights…
Nick did so well running 10k in 50 minutes(!) around Richmond Park today 💚 @NSPKU Well done to all the runners, and to those who organised! X
Dad is doing his London Bridges walk for @NSPKU again on 5th October. 12 people signed up already - all welcome! DM me if you’d like to join!
At the preconception health and care conference in Belgium. It’s important to know that men’s health influences the health of the resulting children. It’s not all about the woman. #preconceptionhealth @IlseDelbaere @MdevosMD
Thank you . It has been so humbling working with the patients and the #NSPKU. I think I have learnt more from my patients than they have learnt from me . So thank you 🤗
We all earned medals and educated some people about PKU on the way round too!
#NSPKU shout out to a very hard working #PKU #IMD health care professional Eg A lot of #PKU pregnancies managed by Diane & team and much much more…..
I can’t believe it’s my last day at @SalfordCO_NHS tomorrow after 29 yrs. So many amazing memories and worked with such incredible dietitians, AHP’s, nurses & medics. I am so blessed for the opportunities I had. I feel most honoured to have been able to support so many patients.
You nearly pipped Jake to the post too! @macdonj 😂
We did it! Would you believe that I was the fastest lady in the over 65 age lady category and Anne was number 1 in her age category! Not bad for 2 golden girls!
My boys' lunchboxes👉 ✔️gluten free wraps (peppers, lettuce, cucumber, cherry tomatoes, vegan shrimps) ✔️raspberries and apples ✔️ waffles ✔️cooler20 and cooler15 #pku
Congratulations to all at @NSPKU A super initiative for such a worthy cause🏃♀️🏃♂️👏👏
We all earned medals and educated some people about PKU on the way round too!
#NSPKU what a day. Never put myself through anything like it before. Great turn out for the NI team. The sense of achievement was epic. The funds raised by everyone in the uk will go towards helping support NSPKU in our quest to improve services and support for people with pku.
It was a typical 'hilly' Manchester 'rainy' run. Drenched 🌧but we did it💪!#raceto10k #nspku RICE required ouch! Well done team #nspku racing around the country 👏 Hopefully weather was kinder to you! 🤩
Race Day in Typical Manchester weather! Hoping the injury doesn't play up! Good luck to all other runners today in team #NSPKU doing #Raceto10k
#PKU community Stamp price increase *AGAIN* You may wish to stockpile 1st class stamps between now & 7 October (4 weeks’ today) A 1st class stamp will be £1.65 (2nd class stamps will remain at 85p). 🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘🆘
#PKU Community - an inperson invite to Liverpool this Friday - to take part in a S.P.O.R.T Focus group You'll get #lowprotein snacks and refreshments, a chance to feed into important research on PKU & sports To get involved: email: Annabelle.Skidmore@mail.bcu.ac.uk 😎😎😎
All the way from Oz to UK and it is fabulous and beautiful 🤩! Would recommend to all as 242 tasty recipes to make. You have clearly devoted so much to creating this and I hope we can make meals look as delicious as you have. Bravo and hope everyone gets a copy 👏🏻 👏🏻 👏🏻 ❤️❤️❤️
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Who to follow
-
Promin Metabolics
@ProminMetabolic -
Anita MacDonald
@macdonj -
NPKUA
@NPKUA_Info -
Low Protein Connect
@LowProConnect -
PKU News
@howmuchphe -
Ajinomoto Cambrooke Metabolic Nutrition
@Aji_Cambrooke -
𝔸𝕝𝕖𝕩𝕚𝕤 𝕄𝕒𝕣𝕥𝕚𝕟
@mrs_martin_2012 -
BIMDG
@BIMDG -
PKU Association IE
@PKU_Ireland -
Louise Robertson
@louisedietitian -
Duncan Noble-Nesbitt
@DNobleNesbitt -
Bernadette Sheehan Gilroy
@sheehangilroy -
CanPKU+
@canpku -
Kate Learoyd
@PKUFamily -
Izabela #PkuDietForLife
@Iza13Kluz
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