@gibo79 Profile picture

Claire Gibson

@gibo79

Happily married, with children. Our youngest son has a Metabolic Disease called Phenylkentouria... or PKU. @NSPKU #PKU

Joined June 2009
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Our MPs were shocked when they heard our stories and wanted to help



Claire Gibson Reposted

More aspartame containing drinks - avoid in PKU

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Claire Gibson Reposted

A care home in Leeds is under threat of closure as the council tries to save £64m. Leeds City Council says it's consulting with residents, families & staff at Knowle Manor, but relatives such as Carol Allen say there's nowhere else for their loved ones to go.


Claire Gibson Reposted

7 marathons in 7 days in 7 cities across the UK and Ireland 🏃‍♂️ Kevin Sinfield announces his latest challenge to raise money for #mnd bbc.co.uk/news/uk-englan…

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Claire Gibson Reposted

Kevin Sinfield tells #BBCBreakfast why he's running 7 ultra marathons in 7 days to raise money for #mnd


Claire Gibson Reposted

@LUFC our son has a metabolic condition called Phenylketonuria,Today whilst at ER with his Dad, you no longer sell Coca Cola classic! This is the only drink he can have in your ground as it doesn’t contain #aspartame which is harmful to him! Please re think this decision!


Claire Gibson Reposted

There were 142 hoax calls across the Humberside Fire region in the last financial year, a 40 per cent increase on the year before itv.com/news/calendar/…


Claire Gibson Reposted

Jackie Hallam from Huddersfield survived - but lost her mother and best friend when 50 people died in the Summerland fire on the Isle of Man. Fifty years on Jackie wants this 'forgotten disaster' to be investigated properly. More on @itvcalendar at 6


Claire Gibson Reposted

Harvest Morn Choco Orange Wheat Pillows: 13g =1g protein (1 PKU exchange)

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Claire Gibson Reposted

Golden Anniversary Awards ceremony coming soon.....@NSPKU

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Claire Gibson Reposted

The A1(M) in North Yorkshire was closed after someone waiting in a queue following an earlier accident suffered a medical episode. itv.com/news/calendar/…


Claire Gibson Reposted

This car was seized back in December after being found parked across a pavement in Sheffield. It has now been confiscated at the exact same spot again. itv.com/news/calendar/…


Claire Gibson Reposted

Children across East Yorkshire are being encouraged to send a shoe box filled with toys & messages to young survivors and orphans of the devastating earthquake in Turkey. Packages should be filled with new items. Drop off - Mirage Bar & Bistro, Beverley or Ares Cafe Bar, Hull

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Claire Gibson Reposted

If you are watching #SavingLives tonight please take 2mins to register your #organdonation decision and you too could #BeALifesaver 💗

It takes just 2 minutes to register your organ donation decision online. You could register to become a lifesaver in your lunchbreak, while commuting or during any other free time. Do something amazing today ➡️ bit.ly/3KlGMm7

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Claire Gibson Reposted

It's Rare Disease Day today and we're celebrating with the low protein community!!!🥳🤗😍 #rarediseaseday2023 #MadeWithPromin #lowproteindiet #lowprotein #PKU

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Claire Gibson Reposted

I’ve had a go and it’s tough but it’s 👌🏼 Makes you realise how awesome, super fit and skilled these players are! Give it a go if you can! 🏉🏉🏉💪🏼💪🏼💪🏼

Have you been inspired by the amazing Leeds Rhinos Wheelchair team and @RLWC2021 winners @England_RL? If you would like to give Wheelchair rugby a go, come along to one of our 'Come and Try' sessions later this year. Register➡️leedsrhinosfoundation.org/rhinos-coach-j…

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Get signing please….

It's been a month since we finished our walk in memory of Sophie, Beth & Emily Our petition to get suicide added to the school curriculum is now 4th biggest on the Govt website. Pls sign & share ensure this is debated in parliament petition.parliament.uk/petitions/6233…

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Sent via email shortly after the conference

A quick reminder to all those who volunteered to evaluate the blood collection device @NSPKU conference. Please could you return your questionnaire and retweet 😊 @sohebsoheb @macdonj @h_smith12x



Gutted 💔

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