Nina A Tomei, MD
@doctormom63Life derailed #Sjogrens #MECFS #POTS #LongVax Child with #LongCovid Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
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Dr. Fajgenbaum, a US physician, treated his chronic illness via drug repurposing using AI as guidance. A group of patients are going to contact him to request he does the same for ME/CFS, but need the community's support. Please sign the form below to join the petition.
My 24 yr old daughter who has been suffering with #MECFS for yrs & #LongCovid for over a year just finished writing another post. It takes a great deal of energy & effort to write even a little. If you could take time to visit her blog I'd appreciate it the-elephant-in-the-room.com
Two pieces of advice if you're being mobbed online and you're having difficult conversations: 1. Be careful about what you say; or what you have said in the past. And it may be too late for that. 2. If you haven't done anything wrong, do not apologise.
What it's like to have #MECFS, & also what the research looks like for MECFS. #pwME #millionsmissing
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Who to follow
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Whitney Dafoe
@DafoeWhitney -
Bateman Horne Center
@BatemanHorne -
Janet Dafoe
@JanetDafoe -
Alice Woolf
@me_awareness -
Science for ME online forum
@s4me_info -
Lizzy H
@hopefullizzy -
🕸️Dr.T, PhD
@chydorina -
MoleyME 🦔
@MoleyMECaroline -
Adam
@ABrokenBattery -
Ben H
@benh_mecfs -
Tom Kindlon
@TomKindlon -
Sabrina Poirier (On Hiatus)
@Sabrina_Poirier -
Sten Helmfrid 🇺🇦
@StenHelmfrid -
ME/CFS News
@MECFSNews -
Sibylle Dahrendorf 💥✌️
@sibylle_berlin
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