Team Telomere
@TeamTelomereIncAn international community for telomere biology disorders. Facebook: https://t.co/tSo9D8DpcM | Instagram: TeamTelomere | Email: [email protected]
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We are excited to announce the launch of our new educational resource collection: one-pagers! Developed based on our Telomere Biology Disorders Guidelines, these concise resources make complex TBD info easily accessible. Access them on our website! *link teamtelomere.org/one-pager-reso…
My colleague @fergutierrezro1 giving an excellent talk at #ESHBMFS2024 on the clinical implications of clonal hematopoiesis in #telomere biology disorders 🧬; dependent on specific mutation with U2AF1, TP53, and chr1+ associated with #MDSsm and #AMLsm. @nih_nhlbi @ESHaematology
Very nice talk from Fabian Beier @RWTH on #HCT in #telomere biology disorders; ongoing high morbidity and mortality related to secondary organ damage. Non-alkylator/TBI regimens and gene therapy promising. @TeamTelomereInc @KMyersBMT @Agarwal_Lab @ESHaematology #ESHBMFS2024
2nd session! #ESHBMFS2024 Inherited predisposition to leukemia! 1)challenge in variant interpretation(Feurstein) 2)use of genome-first approaches(McReynolds) 3)mechanisms of familial predisposition in MPN(Koschmieder) & 4)molecular mechanisms of leukemogenesis in BMFS (Soulier)🔝
@SharonSavageMD from @theNCI giving an excellent talk on non-hematology complications of #telomere biology disorders. Highlights include liver and lung disease, osteoporoses, and solid cancer risk. @TeamTelomereInc #ESHBMFS2024 @ESHaematology
We are excited to announce that the University of Minnesota and @MHealthFairview have been recognized as a @TeamTelomereInc Center of Excellence for Telomere Biology Disorders (TBDs)! Read more: bit.ly/40JECVF. #Telomere | #TBDs
November marks Telomere Biology Disorder (TBD) Awareness Month🧬—a time dedicated to illuminating a complex yet critical area of health that impacts many lives. bit.ly/48JW9iI #TBDMonth, #Telomeres, #Telomere, #IPF
And second - our @nhlbi fellow @FernandoCatto will present data on immunodeficiency in #TBD at the Monday #IBMFS poster session @ASH_hematology #ASH24 ash.confex.com/ash/2024/webpr… @fergutierrezro1 2/2
Our lab will present two #telomere biology disorder abstracts this year at @ASH_hematology #ASH24. First, our @nih_nhlbi fellow @NickLeeMD will be presenting the long-term results of our phase II trial using Danazol @ the Sunday oral #IBMFS session. ash.confex.com/ash/2024/webpr… 1/2 👇
We are thrilled to welcome our first, pulmonologist, Dr. Mary Beth Scholand to the Team Telomere MAB! We are grateful to have her expertise guide us in serving and advocating for those affected by TBDs. 🫁 🧬 #TBDawareness #IPF #PF #ILD
Are you a community member or have a patient or family affected by a TBD?They can take advantage of our Care Package or Legacy (bereaved) Program today. teamtelomere.org Community > Research > Advocacy > Cure #TBDawareness #TeamTelomere15
Today is Election Day in the United States! If you haven’t already voted early, be sure to head out to your polling place and vote by the end of the day. #VOTE
Welcome to our first #MythBustingMonday First myth : Clinical length telomere and genetic are not important in dx. FACT : Telomere length testing and finding pathogenic variants in TBD genes has significantly advanced TBD dx and patient options. teamtelomere.org/diagnosis-mana…
Welcome to Telomere Biology Disorder Awareness Month! This year, we are celebrating 15 years since Team Telomere’s 501c3 status. Join us for #TeamTelomere15! With your help, we can keep building brighter tomorrows for the TBD community. #TelomereBiologyDisorders #TBD
Tomorrow marks #TBDAwarnessMonth - publications have been on a roll this year and we are so proud to be a collaborator on this important paper. Well done, team!
TBD vs CPLT - In a Nutshell doi.org/10.1111/bjh.19… #TBD #CPLT #CancerResearch #telomere #CCCTAA @BrJHaem @TeamTelomereInc
Join Team Telomere’s annual Halloween Costume Competition! Tag us in your Halloween posts to show us your costume - and for a chance to win some new Team Telomere merch. Bonus points if your costume can make Katie, our Executive Director, laugh. Let the costume fun begin!
Join us for our next Community Chat on Hematology in #Telomere Biology Disorders (#TBD) with Dr. Chris Reilly from Dana-Farber Cancer Institute! Open to all individuals impacted by a TBD, family, and other community members. Register here: us02web.zoom.us/meeting/regist…
New merch alert! 🎉 Our latest Team Telomere gear just dropped, and it is the perfect way to show your support and raise awareness! With #TBDAwarenessMonth coming up in November, order now to get your merch in time. Wear your support and tag us in photos! bonfire.com/store/team-tel…
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Who to follow
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Repeat Diagnostics 🇨🇦
@RepeatDx -
CSNK2A1 Foundation
@csnk2a1org -
Stephanie Fischer
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@SoftBonesHPP -
BHD Foundation
@BHD_Foundation -
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@FoundationUSP7 -
Sharon A. Savage, M.D.
@SharonSavageMD -
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@TANGO2Research -
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WeHealth
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