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Single T1D Mom

@Single___Mom

Single mom of an amazing girl with Type-1 Diabetes and Celiac

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I'm sick of hearing that "list price" of medical supplies isn't the "actual price paid." When a patient is faced with a deadlock where doctor's office and pharmacy can't get required info right for authorization, the patient has to pay "list price" to get life-saving supplies


Single T1D Mom Reposted

What's impressive about GoodRX: -- It's one of the few consumer-focused health apps -- It's a quiet success story in terms of growth/revenues -- They aim to help lower-income Americans, not the rich & healthy cnbc.com/2018/06/20/goo…


I just realized that my teen took the time to record the buzzing sound of an Omnipod pod failure to play it later as a prank and it really worked :( Yes, I have a Fear of Pod Failure. FOPF is real


Single T1D Mom Reposted

Doctor: Don’t confuse your Google search with my 6y at medical school. Patient: Don’t confuse the 1-hour lecture you had on my condition with my 20y of living with it.


Single T1D Mom Reposted

SEEING SOMEBODY FINALLY UNDERSTAND T1D IS THE BEST FEELING EVER


Nature just published an article about pancreas regeneration. One of the authors, Doug Melton is a #T1D dad so his work is of special interest since I know his sense of urgency is real. Nothing like living with this disease! nature.com/articles/s4158…


Will the @AllofUsResearch provide compensation for participants? or recognize the time they spend contributing data as volunteering hours? #JoinAllofUs #NIH


Single T1D Mom Reposted

How can an organization that purports to “save lives and protect people” be so out of touch with the crises faced by the diabetes community? @t1international @kidfears99 @thomasgoffe @diabetesmine insulinnation.com/research/cdc-r…


Finally, an initiative to provide psychological support for individuals with diabetes. I couldn't find any provider within 100 miles though... still needs time to evolve. How to Find Experienced Mental Health Care Providers for People with Diabetes diatribe.org/how-find-exper… #T1D


I love the #T1D community! Last night we had 2 back2back pod failures. I thought we were doomed for the night but I searched #omnipod with error ref. # 052 and 018 & found they were related to static! 3rd pod change worked by rubbing dryer sheets on the pod as others suggested!


Interesting read...Tech's Next Big Wave: Big Data Meets Biology for.tn/2FKPBSk via @FortuneMagazine


Refreshing my coding skills with @LeetCode


Single T1D Mom Reposted

Medicare Part D says yes to Omnipod! Everything you need to know is at the link. ardensday.com/blog/omnimed #omnipod #diabetes @myomnipod

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Single T1D Mom Reposted

“Every session about diabetes should have someone living with diabetes speaking and contributing” @RenzaS once more nailing how important it is to hear the voice of lived experience. #IDF2017 #NothingAboutUsWithoutUs


Using machine learning to accelerate drug discovery and reduce costs @deepgenomics Great keynote and story about the Spinraza drug at #NIPS2017. Another example of an amazing parent, who has a child with a genetic disorder, accelerating #digitalmedicine. Thank you @frey_brendan!


Single T1D Mom Reposted

Looking at sensitive info on your phone? A new Google-developed AI can tell if someone is looking over your shoulder: bit.ly/2zIITgJ #nips2017


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