@SusannahFox Profile picture

Susannah Fox

@SusannahFox

Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her SusannahRFox on🧵

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My book, #RebelHealth: A Field Guide to the Patient-Led Revolution in Medical Care, is available as a hard cover, digital, or audiobook, wherever books are sold susannahfox.com/rebel-health/

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Chris Arndt is a former financial analyst who has run the numbers. If you are worried about government debt, vote for @KamalaHarris

On the subject of the federal government's deficit and debt, there's a lot of heat out there and not a lot of light. As well, many people have their facts on this issue exactly backwards, especially when identifying the source of the problem. (cc @elonmusk ) So, I published a…



Pinching myself to believe I’m here in Vienna, Austria, to hear myth busting @Liz_ORiordan talk about her journey as a breast surgeon, cancer patient, and caregiver for her mother

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“How can this collaboration move from individual patient engagement (shared decision making) to structurally involving the patients collectively?” - question asked at #ICHOM2024


“How can we reduce the trust and transparency gap that we have in health care?” - question asked of a panel at #ICHOM2024


“What criteria are helpful for choosing a patient representative on your solution design team?” - question asked at #ICHOM2024 Any reactions? Thoughts?


#ICHOM2024 is using @Slidoapp to great effect for Q&A. Top question about elders’ use of digital touched off a deep discussion about not making assumptions about the patient and caregiver populations

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Susannah Fox Reposted

At #ICHOM2024 - @SusannahFox @snehadave98 talk about one small action you can do today to change healthcare = ENGAGE with patients, ask them, talk with them, find out about their lived experiences. The patient journey is packed with insights. it is the roadmap for change!

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Looking forward to joining this conversation on stage at the #NCQASummit on Nov. 1 in Nashville!

Join host Andy Reynolds for episode 10 of the #QualityMatters Podcast as he talks with these powerful women in quality about the #NCQASummit and what to expect from their panel discussion. Listen to episode 10 and subscribe today: bit.ly/3LA51wj

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Susannah Fox Reposted

C'mon people!! We can do this the easy way....or the hard way. healthit.gov/buzz-blog/elec…

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Susannah Fox Reposted

Meet ALStogether 🧡 join us at the link in bio


Susannah Fox Reposted

Meet Alice Wong (@SFdirewolf), a writer, editor, disability justice activist, and 2024 #MacFellow using storytelling to increase the visibility of disabled people and expose ableist policies and practices. Learn more about Alice ⬇️ macfound.org/fellows/class-…


Susannah Fox Reposted

I love that @SusannahFox described this group as the "diabetes rebel alliance" as they moved from this quadrant to one where the needs were met, but still invisible. Then, the industry finally recognized them so they were visible and their needs were met. #DirectTrust2024

Keynote @SusannahFox shares a matrix that categorically represents patient groups in the mainstream healthcare system, using her work to shed a spotlight on the lower left quadrant of “needs not met, invisible.” #DirectTrust2024

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Susannah Fox Reposted

“When mainstream healthcare fails, it is peer-to-peer healthcare that can fill in the gaps.” We are honored to welcome our first keynote speaker, @SusannahFox

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Susannah Fox Reposted

Last week, the Protecting Patients from Deceptive Drug Ads Online Act was introduced to the Senate. We are proud to have played a foundational role in bringing this issue to the attention of legislators and supporting its development. Learn more ⬇️: generationpatient.org/stop-misleadin…

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