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Hope springs infernal.

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.@iamalsorg #awareness #als How "awareness" gets done:

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CRITICAL ALERT This is a recall of all microphones obtained after 2007 due to defective users.


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This is an important point. Now that our elusive "patient representative" is public & seeking donations, perhaps Mr. Buckley could step forward & share his process of recruitment into the "voice of the community" position. Help Andy Buckley Manage His ALS Journey:…

Never a more accurate observation. We should be well on our way to #NurOwn. @alsassociation can’t make $$ from it slowing progression, so sentencing everyone to death. Criminal. #JohnAndrewBuckley. Why don’t you tell us how you feel about this?



Have we got you on the run, Bobby boy? Sept 27 is going to come back to haunt you no matter how much you flap your yap about reform. Fraud carries consequences; evidence is now in the hands of E&C commission and reporters. Y'see we got nothin' to lose. You already killed us. #als

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FDA Commissioner Robert Califf said that “systemic” efforts are underway to reform advisory committee meetings and reiterated his belief that it is not necessary to take a vote at most meetings. bit.ly/3Uqo5CZ



Couple summers ago, 8 House Reps signed a letter to FDA Ringleader Califf about the state of flexibility for ALS treatments. (excerpt only in image) "Just waiting to hear back." OVER 9000 DEAD IN THE INTERIM. Eight congressional lawmakers can't compel a response from the FDA…

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~ Seriously. Imagine you're this person. Let's say you DO actually have ALS and the headrest wasn't a prop. When your day comes up, how would you like to be remembered? ~

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~ Gooood Monday morning fellow bullied, abandoned, terminally ill superstars! Let's kick off the week with THE ELEPHANT IN THE ROOM! FDA EXPLAIN YOURSELVES! ALS ASS'N EXPLAIN YOURSELVES! 🔽 WHO. IS. THIS. PERSON? 🔽 A "voice of the community" who speaks AGAINST the the…

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