axeALSFoundation
@stevens_nationOn a mission to #axeALS Instagram: @teamstevensnation Facebook Group: Team Stevens Nation
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Yesterday was my fav day of yr w/my fav people. Spent day @ the @stevens_nation Axe ALS Charity Golf Event at VA CC w/my heroes Eric & Amanda Stevens-the most inspiring & amazing people. Love them & their kids Peyton & Dean so much. Raised a ton of money to help fight ALS. If u…
Today marks one year since Pat got his trach. It has been a tough but rewarding year. At times, it got too much for many, but Patrick and Nataly never gave up. A year later, Pat now has an amazing group of caregivers taking care of him. A great group of friends that visit him…
Ex-NFL player Steve Gleason shares how ALS changed his life: “This body may be a prison but my mind is free.” cbsn.ws/4gsMCjl
You're raising money for ALS this season.. "Steve Gleason has inspired a lot of people & I wanted to do something to encourage him for all he's done" ~ @thomasmorstead We as a progrum will match whatever you & the other punters end up donating at the end of the season #PMSLive
A year ago I did the near impossible, incredibly rare. I graduated from hospice because I no longer met their criteria. A year later, absolutely nothing has changed. ALS is relentless so I will absolutely celebrate this achievement. #ALS #FightLikeAGirl #DefyingAllOdds
Happy Valentine’s Day to the grievers, the ones standing in the greeting card aisle with an ache in their chests, the ones who know love doesn’t die when your person does. And to Chris, 4 yrs ago I wrote this for you. I miss you. I miss you. I miss you. kelsiesnowwrites.com/2020/02/14/7/
So thankful for your support @fredcouplesgolf!! We love you! #axeALS
We had an an amazing day last month at the 3rd AXE ALS Golf Tournament for Eric and Amanda Stevens. The AXE ALS Foundation is a cause close to my heart. Suzanne and I are proud to be involved with this great family. We raised about $300k for the Foundation and had a blast…
We are excited to announce that our grant application is OPEN! We will be accepting applications from December 1st- December 15th, 2023. You must submit your application by midnight December 15th. Apply here: axeals.org/our-impact/#ap… #axeALS
So grateful for this conversation with Amanda Stevens and all she's doing for the ALS community through AxeALS. Listen in as she updates us on how her husband Eric is and what she's been working on. Available on any podcast app or here: bit.ly/ListenOnAppleP… @stevens_nation
Great day at @stevens_nation event with Cal HOFer @CoachMcArthur6 and Kirk Cartozian and his Tequila Mandala which was insane. #axeals #calfootball
Can’t wait to see y’all tomorrow!! #axeALS
One of my favorite days of the year at Virginia Country Club in Long Beach supporting Eric and Amanda Stevens and The axe ALS Foundation. These two are inspirations to us all and are making a huge impact in the als community fighting this horrible disease. #axeals…
One of my favorite days of the year at Virginia Country Club in Long Beach supporting Eric and Amanda Stevens and The axe ALS Foundation. These two are inspirations to us all and are making a huge impact in the als community fighting this horrible disease. #axeals…
They said I wouldn’t be able to talk- I can talk! They said I wouldn’t be able to eat- I can eat, a lot! They said I wouldn’t be alive today- I am very much alive! Never let someone else put boundaries on your life! Believe in yourself when others don’t. #ALS #FightLikeAGirl
So proud of the hard and impressive work of the coalition of @iamalsorg volunteers and others to push forward PPA for faster access to promising treatments. Proud to testify last week, to read Brian’s words on his behalf because ALS has taken his voice, along with so much else.💔
I call on @BrainstormCell to hold a Town Hall for the ALS community, so that it can explain why it withdrew the BLA before the PDUFA date. Also, please explain how this was the best decision for NurOwn and the ALS community. You owe this to us after we fought for a yes.
BrainStorm Cell Therapeutics to Meet with US FDA to Discuss Development Plan for NurOwn as a Treatment of ALS ir.brainstorm-cell.com/2023-10-18-Bra…
We are with you @sabrevaya If you don’t have ALS, stay the hell out of this debate. We are one of the few who can say that Eric had NurOwn in his body. He wants & needs more. Let that be his choice, not yours. Until you’re dying, we don’t wanna hear from you. Just stop.
Today, I saw true courage from ALS patients and family. Unfortunately, it was not enough to get an approval recommendation from the AdCom who voted a 18 no, one yes and one abstain. I am ‘f’ing livid.
If you are one of those people that believe #NurOwn doesn’t work, you are effectively calling me a liar. Think about that for a minute. You probably should reevaluate who you are listening to. I would trust someone who knows firsthand what this therapy can do over anyone else.
Thank you @stevens_nation (aka axeALS) for signing onto our NurOwn statement! iamals.org/updates/septem…
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