SMA Research
@SMAresearchSpinal Muscular Atrophy scientific research news from around the world. Follow @smatrust for general SMA Trust information and fundraising updates.
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@CureSMA
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Today is #UKSMAAwarenessDay! Spinal Muscular Atrophy is a rare, genetically inherited neuromuscular condition. Please retweet to help raise awareness of #SMA
We are honoured to be supported and have the opportunity to work with @MDUK_News !
We're happy to announce we're funding Dr Bowerman @BowermanNMD at @KeeleUniversity to investigate whether combining a potential new #SMA drug with emerging genetic therapies for #SMA can lead to a more effective treatment. Read more here: qoo.ly/sav3e
UK #SMA Research conference attendees, representing @NDCNOxford @EdinUniNeuro @neuroshef SMAReach @UCL_ICH @ryanezmunoz @ISTM_Keele @univofstandrews - Mostly all funded by @smatrust at some point!
A day at #SITRAN, finding out what the UK #SMA laboratories are working on. Keynote delivered by Prof Azzouz on DNA damage in SMA.
End-of-study results from Biogen's CHERISH trial demonstrate stabilisation or improvement in motor function in individuals with #SMA, where the natural history of the disease is a decline in motor function over time. bit.ly/2HPjJh0
#SMAEurope held its first international scientific congress on #SMA in Krakow, Poland 🎓. It was a huge success. Find out more from @drgroen : bit.ly/2sHBSts
20 days to go until SMA Europe's first Scientific & Clinical Congress 🎓on SMA! Although geared to researchers & clinicians, we will be reporting back. In the meantime, check out our programme! bit.ly/2xv8V5O
Scottish Medicines Consortium will be assessing #nusinersen for patients with SMA. We will be working with @SMASupportUK & @smatrust to provide a Patient Group Submission. #SMA
RT @amrc: Please read our statement on the Government's announcement of a new accelerated access pathway: bit.ly/2yrog8o #sma
RT @SMAEurope: 2 days left before abstract submisson deadline 4 our int. scientific Congress on #SMA. Get them in! ow.ly/Nh3A30g7NbQ
Roche provided a community statement on the SUNFISH clinical trial RG7916 for #SMA. Find out what it says here: ow.ly/Id3a30fVMoq
Great news! Early Bird registration 4 our #SMA Congress in Krakow extended until 27th Oct! Register quickly here: bit.ly/2yKUpo2
We expect an exiting meeting with top invited speakers, oral presentations from selected abstracts, posters, workshops, prizes. Do not miss!
Are you an #SMA researcher or clinician? Do not miss the 1st European SMA Congress in Krakow, Jan 2018. All details: ow.ly/O9p230f4e8k
AveXis 2 initiate pivotal trial for gene replacement product, AVXS-101, in #SMA Type 1 in the U.S. ow.ly/hGFc30fBnc4
3 days left for early bird registration 2 our #SMA conference in Krakow. Don't miss out! #smaresearch #SMAKrakow2018 bit.ly/2yKUpo2
Roche announces start of the 2nd part of the Phase 2 #SUNFISH clinical trials 4 Type 2/3 #SMA. Find out more: ow.ly/4Kgo30fenjT
I'm registered! Are you?
Are you an #SMA researcher or clinician? Do not miss the 1st European SMA Congress in Krakow, Jan 2018. All details: ow.ly/O9p230f4e8k
Follow @BowermanNMD 's lead and register 4 our first European Congress on #SMA ! We have a very exciting programme: bit.ly/2xv8V5O
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Who to follow
-
Cure SMA
@CureSMA -
SMA News Today
@SMANewsToday -
Spinal Muscular Atrophy UK
@SMA_UK_ -
TREAT-NMD
@TREAT_NMD -
SMA-Europe
@SMAEurope -
Dr Haiyan Zhou
@lab_zhou -
Brunhilde Wirth
@BrunhildeWirth -
Journal of Neuromuscular Diseases
@journal_nd -
Pharmacy Research UK
@PharmResUK -
Healthy Debate
@HealthyDebate -
ENMC
@_ENMC -
Action Duchenne
@ActionDuchenne -
Cure SMA Foundation of India 🇮🇳
@curesmaindia -
ern euro_nmd
@euro_nmd -
The National Centre for the 3Rs
@NC3Rs
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