Cure SMA Foundation of India 🇮🇳
@curesmaindiaMaking Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
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Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji @narendramodi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏
These two SMA warriors are deteriorating everyday waiting for treatment availability @SGanguly99 @actorvijay @narendramodi @tvkvijayhq @CJI_ChandraChud @Roche @NovartisIndia @rashtrapatibhvn @msdhoni @mkoirala @bipsluvurself
@JPNadda @Swasticharan @MoHFW_INDIA @IndiaDST @karandi65 @narendramodi There's urgent need 2 save all d existing patients n prevention of disease as #spinalmuscularatrophy. The medicines mfd abroad r expensive n so there's urgent need 2 invest in indigenous research @ICMRDELHI
Yesterday, Scholar Rock announced positive topline results from our Phase 3 SAPPHIRE trial. Read more: bit.ly/3XUr0nB
Earlier today, we shared positive topline results from our Phase 3 SAPPHIRE trial of our investigational treatment for #SMA. Baseline characteristics will be presented at the 29th Annual Congress of @WorldMuscleSoc on October 11th. Read more: bit.ly/3XUr0nB
Scholar Rock announces positive topline results from the Ph3 SAPPHIRE trial of our investigational treatment for #SMA. We are grateful for the dedication of the patients, families and investigators who supported the trial. Read more: bit.ly/3XUr0nB
This clip went viral a while ago. An American vlogger discovers a Ph.D candidate running a food stall, part-time. What struck me as truly special, however, was the end, when he picks up his phone & the vlogger thinks he’s going to show him social media mentions of his…
My weekly column on issues n concerns of disability, in daily @Lokmat on Sunday today on Sept.26,2021 .U can also access this on Online Manthan magazine of Sunday @lokmat across the country. Here I have spoken about very costly medication for children with SMA. @curesmaindia @fn
During the meeting, Hon’ble Prime Minister said that today a new beginning has been made with the first meeting of the Governing Board of ANRF He stressed on the need to identify and remove obstacles in the research ecosystem of the country. He talked about setting big targets,…
A momentous occasion today in India’s R&D ecosystem !! The First meeting of the Governing Board of Anusandhan National Research Foundation (ANRF) was Chaired by the Hon’ble Prime Minister today creating a milestone in the country’s science, technology and innovation journey. It…
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Who to follow
-
SMA News Today
@SMANewsToday -
Alpana Sharma
@alpanaS16 -
NASCO India SCD Alliance
@IndiaNasco -
Archana Vashist Panda
@PandaVashist -
Cure SMA
@CureSMA -
Spinal Muscular Atrophy UK
@SMA_UK_ -
Moumita_SMA_Mom
@MoumitaG_17 -
ORDIndia
@ORDIndia -
Thalassemia Patients Advocacy Group
@pagthals -
Huntington's Disease Association of Ireland
@HDAI_ie -
Blood Donors India
@BloodDonorsIn -
Genetic Alliance UK
@GeneticAll_UK -
Pankaj Kumar
@pankajmrp -
VermaAnchal
@Harshasheesh02 -
Srilakshmi Nalam
@srilakshminalam
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