RPVCanada's profile picture. Helping Canadian🇨🇦 patients and caregivers voice their opinions through surveys to improve medical products and services. Join our community today!

Rare Patient Voice

@RPVCanada

Helping Canadian🇨🇦 patients and caregivers voice their opinions through surveys to improve medical products and services. Join our community today!

Joined April 2016
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#RareDisease

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Canadian patients with #RareDiseases - Sign up to share your opinions and earn cash rewards! rarepatientvoice.ca/sign-up

RPVCanada's tweet image. Canadian patients with #RareDiseases - Sign up to share your opinions and earn cash rewards! rarepatientvoice.ca/sign-up

We're seeking patients and caregivers of patients with moderate/severe Hemophilia A to participate in a study in Toronto. $150 reward for a 1 hour interview. If you'd be interested in participating, please sign up at rarepatientvoice.ca/sign-up!


Thank you @ArthritisSoc for hosting a great event Sunday! If you missed the walk or our booth, check us out online @ rarepatientvoice.ca/sign-up

Thank you to everyone who joined us for the #WalktoFightArthritis. With your help, we raised $1.25M to help Canadians living with #arthritis

ArthritisSoc's tweet image. Thank you to everyone who joined us for the #WalktoFightArthritis. With your help, we raised $1.25M to help Canadians living with #arthritis


Don't let the rain stop you! Come by our booth at Woodbine Park!

Thank you to everyone who joined us for the #WalktoFightArthritis. With your help, we raised $1.25M to help Canadians living with #arthritis

ArthritisSoc's tweet image. Thank you to everyone who joined us for the #WalktoFightArthritis. With your help, we raised $1.25M to help Canadians living with #arthritis


No sun no problem! Ready for a great morning at the #WalkToFightArthritis @ArthritisSoc!

RPVCanada's tweet image. No sun no problem! Ready for a great morning at the #WalkToFightArthritis @ArthritisSoc!

Come say hi at our table this Sunday at @ArthritisSoc's #WalktoFightArthritis at Woodbine Park!

No one should have to live with the pain of #arthritis. Who are you walking for? #WalktoFightArthritis

ArthritisSoc's tweet image. No one should have to live with the pain of #arthritis. Who are you walking for? #WalktoFightArthritis


June is ALS Awareness Month! How will you #SeizeTodayALS? Find out how to show your support with @ALSCanada als.ca/blogs/seize-to…


Thanks to @CFCanToronto for organizing a fantastic Walk yesterday! #AWorldWithoutCF #CFCanWalk

We can't thank everyone enough for such an amazing day. #AWorldWithoutCF #CFCanWalk

CFCanToronto's tweet image. We can't thank everyone enough for such an amazing day. #AWorldWithoutCF #CFCanWalk


Having a great time at the Walk to Make Cystic Fibrosis History with @CFCanToronto at Wonderland! Come by our table in the Courtyard!

RPVCanada's tweet image. Having a great time at the Walk to Make Cystic Fibrosis History with @CFCanToronto at Wonderland! Come by our table in the Courtyard!

Rare Patient Voice Reposted

Happy Sunday! We're up bright and early to kick off our walk to make cystic fibrosis history! #AWorldWithoutCF @CFCanadaWalk

CFCanToronto's tweet image. Happy Sunday! We're up bright and early to kick off our walk to make cystic fibrosis history! #AWorldWithoutCF @CFCanadaWalk

Looking forward to Sunday's Walk to Make Cystic Fibrosis History at Canada's Wonderland with @CFCanada! secure.e2rm.com/registrant/Loc…

RPVCanada's tweet image. Looking forward to Sunday's Walk to Make Cystic Fibrosis History at Canada's Wonderland with @CFCanada! secure.e2rm.com/registrant/Loc…

Today is #WorldLupusDay! Head to lupuscanada.org to learn more about this disease which affects 1 in 1000 Canadians @LupusCanada

RPVCanada's tweet image. Today is #WorldLupusDay! Head to lupuscanada.org to learn more about this disease which affects 1 in 1000 Canadians @LupusCanada

Excited to announce that we will be attending the Walk to Fight Arthritis with @ArthritisSoc in Toronto on June 4th! walktofightarthritis.ca


It's #MSAwarenessMonth! Find ways to support those living #lifewithMS in your community with @MSSocietyCanada #endMS mssociety.ca


May is Cystic Fibrosis Awareness Month! Find out how you can get involved with @CFCanada across Canada this month!

Cystic Fibrosis Awareness Month is Here! Here’s an overview of everything we have going on this May: bit.ly/2pFmk6m



Rare Patient Voice Reposted
AsthmaCanada's tweet image. Did you know? #WorldAsthmaDay #WorldAsthmaDay2017

We love getting to know patients and caregivers in person. Reach out to us if you are hosting a #RareDisease event in Canada!


Today is the start of Brain Tumour Awareness Month! Learn how to help #TurnMayGrey with @BrainTumourFdn at braintumour.ca/BTAM #BTAM

RPVCanada's tweet image. Today is the start of Brain Tumour Awareness Month! Learn how to help #TurnMayGrey with @BrainTumourFdn at braintumour.ca/BTAM #BTAM

Wonderful time yesterday at @bumruntoronto for Colorectal Cancer awareness! Missed our booth? Sign up at rarepatientvoice.ca/sign-up


Looking forward to a great morning with @bumruntoronto at Queen's Park! Good luck #BumNation!


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