Nerve Tumours UK
@NervetumoursUKFormerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
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@ChildhoodTT
@nfnetwork
@ChildrensTumor
@nf2biosolution1
@hba_support
@NFHopeConcert
@UKTSA
@tumourbc
@NFYIForum
@Glut1UK
@DrezBoston
@NipintheBudFilm
@NfIreland
@NF2BioSolutions
@BattenDiseaseuk
⏳Two week countdown has BEGUN, get your tickets in soon!⏳ Win a ps5 bundle or £1,000 cash! 🛒💸 Tickets start at just £1, and every entry boosts your chances! Don’t miss out—enter by November 30th! 🎟️ 👉 Enter here: bit.ly/4g2d7fv #SuperDraw #WinBig #Lottery
Wonderful to see #TomGk discussing his #NF2 diagnosis with the @BBC Tom talks his new album, being a musician and comedian with #NF2, his hearing loss, and making the moment count. Full article here bbc.co.uk/news/articles/… More about Tom here nervetumours.org.uk/news/no-laughi…
Aged between 11-17 and living with NF1? Would you like to help further NF research? @OfficialUoM have a brand new study to help improve learning for young people with NF1 All expenses covered and £60 in vouchers for taking part. Further info bit.ly/3Q9Vv6m
Are you a patient at Guys & St. Thomas'? Pop by this Wednesday to chat with other #NF patients over a tea or coffee at 1 PM. This week's topic is mindfulness. Email gst-tr.guysnfnurses@nhs.net with the subject 'coffee', or leave a message at 020 7188 1029 to book your place.
🎉CONGRATS to this week's winner MS. C! 🎉 Win a ps5 bundle or £1,000 cash! 🛒💸 Tickets start at just £1, and every entry boosts your chances! Don’t miss out—enter by November 30th! 🎟️ 👉 Enter here: bit.ly/4g2d7fv #SuperDraw #WinBig #Lottery
🌟 Nerve Tumours UK Helpline 🌟 Questions about NF? Our Specialist NF Nurses are here to help! 🕒 Helpline Hours: Mon, Wed, Fri: 9am-5pm Tue, Thu: 10am-12pm (appointment only) Confidential support via phone or email - bit.ly/38ZV4VO #SupportHelpline #NerveTumoursUK
Release your inner Santa! The ultimate festive fundraiser, whatever your pace, a Santa-tastic marathon through the most famous spaces in London. Bring your best Santa outfit, run the iconic South Bank, raise vital funds for #NF services. Register here 👉nervetumours.org.uk/get-involved/c…
From the big presents to the stocking fillers, every purchase from our shop helps someone else in the #NF community receive the services and support they need. If you'd like to buy a gift that keeps on giving this year, you can enter our shop through here shop.nervetumours.org.uk
Release your inner Santa! The ultimate festive fundraiser, whatever your pace, a Santa-tastic marathon through the most famous spaces in London. Bring your best Santa outfit, run the iconic South Bank, raise vital funds for #NF services. Register here 👉nervetumours.org.uk/get-involved/c…
From the big presents to the stocking fillers, every purchase from our shop helps someone else in the #NF community receive the services and support they need. If you'd like to buy a gift that keeps on giving this year, you can enter our shop through here shop.nervetumours.org.uk
Ellen shares the history of her treatment; from her first diagnosis at 16, to the radical surgeries that followed, how it affected her, how she finally surfaced, and why she's now fundraising for #NTUK 💪💙 Read Ellen's story here nervetumours.org.uk/news/ellens-st…
📬 Want to stay up to date with all things Nerve Tumours UK? Sign up for our monthly newsletter! 💙 Get news, events, and inspiring stories straight to your inbox. Don’t miss out – subscribe today! 👉 bit.ly/47fOd7W #NFCommunity #Newsletter #StayConnected
Win a ps5 bundle or £1,000 cash! 🛒💸 Tickets start at just £1, and every entry boosts your chances! Don’t miss out—enter by November 30th! 🎟️ 👉 Enter here: bit.ly/4g2d7fv #SuperDraw #WinBig #Lottery
👋 Join the #NTUK Facebook Community 👋 Looking for a way to connect with other members of the #NF community? Join our community group on Facebook. Talk privately about your #NF journey, share your story. get support and make new connections 👉bit.ly/3YzN9rD
Are you getting the support you need for your #Neurological condition? Take the #MyNeuroSurvey, help improve treatment & support nervetumours.org.uk/news/my-neuro-… As @NeuroAlliance members, @NervetumoursUK is committed to working together to improve neuro support & services across the UK.
It's #PurpleTuesday, a reminder for workplaces and businesses to do more for disabled inclusivity. Our #INform initiative connects #NF healthcare professionals with your workplace, offering training and workshops to keep your work space NF inclusive. nervetumours.org.uk/help/inform/in…
Christmas is around the corner (we know, how did that happen?) but don't stress! Everything you need for a perfect Christmas is in our online shop. AND the money from every purchase goes right back into services and resources for the #NF community! shop.nervetumours.org.uk
Registration for our Bromley #NF1 Information Day closes TOMORROW 12AM! We’re almost at full capacity. Don’t miss out on expert talks, Q&A sessions, and a chance to connect with the NF1 community. 💙 Register now: nervetumours.org.uk/news/bromley-n… #NF1 #InformationDay #NerveTumours
A huge thank you to Josh and Owen who will be raising money for #NTUK running in the MoMarathon in Cardiff on Saturday. It really is an extra special one as Josh and Owen are running in memory of their mum, Nicola, who passed away in 2017 Support them here justgiving.com/page/matthew-w…
On trustee week we want to celebrate our board of trustees, and their invaluable support in moving us forward, expanding our community, and strengthening our services. To find out more about our trustees, their contributions, who they are, click here 👉 nervetumours.org.uk/news/our-trust…
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Who to follow
-
ChildhoodTumourTrust
@ChildhoodTT -
Neurofibromatosis Network
@nfnetwork -
Children's Tumor Fdn
@ChildrensTumor -
NF2 BioSolutions UK & Europe
@nf2biosolution1 -
HBA Support
@hba_support -
NF Hope Concert
@NFHopeConcert -
Tuberous Sclerosis Association
@UKTSA -
Tumour Foundation of BC
@tumourbc -
Neurofibromatosis Young Investigators Forum
@NFYIForum -
Glut1 Deficiency UK
@Glut1UK -
Andrés Lessing ⭐️ ⭐️ ⭐️
@DrezBoston -
Nip in the Bud
@NipintheBudFilm -
NFIreland
@NfIreland -
NF2 BioSolutions
@NF2BioSolutions -
BDFA
@BattenDiseaseuk
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