NF Hope Concert
@NFHopeConcertA series of concerts aimed at ending #neurofibromatosis. 100% of proceeds benefit the NF Network, a nonprofit dedicated to helping those affected by #NF.
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@kbelly_76
So excited to collaborate with the one and only @debbiegibson on this special auction to benefit the @nfhopeconcert and @nfnetwork Proceeds will help the 130,000 living with Neurofibromatosis. Win the ultimate VIP experience here: debbie4nf.givesmart.com
Who’s ready for our very first holiday NF Hope Concert? Sunday, December 8 @ 3 PM, we return to Chicago to support the 130,000 living with #Neurofibromatosis. For tickets: nfhopechi24.givesmart.com #endNF #nf1 #nf2 #schwannomatosis #nfhope #nfhopeconcert #nfnetwork
Highlighting our amazing Presenting Sponsors, @SpringWorksTx and @AlexionPharma, starting today with our conversation with SVP, Head of Global Medical Affairs at SpringWorks, Uche Iloeje. #nfhopeconcert #TheLIVEInterviews youtube.com/live/QZTcAaRPK…
#nffactsfridays Symptoms vary significantly between the different types of Neurofibromatosis. NF1, the most common form, affects 1 in 2,500 births. NF2 (now called NF2-related schwannomatosis) affects 1 in 33,000 births. A 3rd type (schwannomatosis) also exists #NFfacts
TICKETS ARE ON SALE for Las Vegas’ 14th Annual NF Hope Concert!!!! Remember last year when @chetbuchanan and I asked you to bring 10 friends with you to the concert this year? Well... 😉 🎟️ thesmithcenter.com/nfhope 🎟️
Tune into an inspiring discussion with John Manth on Decoding NF as we explore the profound impact of service dogs for those with Neurofibromatosis. John's insights and experiences are truly enlightening. Listen today at decodingnf.com/3! #DecodingNF #ServiceDog #NFStrong
NF patients with a plexiform neurofibroma have an 8 - 13% chance of developing an NF-specific cancer called Malignant Peripheral Nerve Sheath Tumor (MPNST). #endnf #neurofibromatosis #nfhopeconcert #nffacts #nffactsfridays
Thank you @GillianA for contributing this amazing raffle item! ❤️⚾️ The raffle is open through July 7! Grab those raffle tickets now!
I've autographed this signed Ernie Banks baseball to raise money for the @NFHopeConcert and @nfnetwork ⚾️ Buy a raffle ticket now! $8 for 1 ticket $35 for 5 tickets $60 for 10 tickets (and remember, hips before hands 😉🧢) Enter here: e.givesmart.com/events/vrq/i/_…
The #NFHopeConcert is honored to have the support of @SpringWorksTx Thank you for all you do for the NF community. 🙏
SpringWorks was proud to be a sponsor of the @NFHopeConcert which took place last night in Las Vegas to help raise awareness and funding for #neurofibromatosis. Learn more about NF Hope Concert series, hosted by the @nfnetwork here: nfnetwork.org/events/nf-hope…
It’s @NFHopeConcert Day!!! Join us in person at @SmithCenterLV or online at nfhopeLV22.GiveSmart.com. Concert starts at 2pm PT!!
ONE MORE DAY…until the #NFHopeConcert!!!
The 12th Annual @NFHopeConcert is this Sunday, October 23, 2022 @ 2:00 PM PT in Las Vegas! Get tickets (live & virtual!) here: nfhopeLV22.givesmart.com Check out their silent auction items here: e.givesmart.com/events/sG0/i/
Don't miss our founder on @MOREFOX5 this morning at 10AM talking about this Sunday's #NFHopeConcert. And while you're waiting to watch the interview...bid on some auction items! 😉e.givesmart.com/events/sG0/i/
Do you have your tickets yet for this Sunday's NF Hope Concert in Vegas? Don't miss an unforgettable afternoon of entertainment in support of this important cause. Get your in-person and livestream tix at: nfhopeLV22.givesmart.com
Just posted a photo instagram.com/p/Cj54FOJPi91/…
#NFHopeConcert co-founder @JeffLeibow will be on air with @chetbuchanan at 8:20 AM PT to talk about this Sunday's NF Hope Concert at The Smith Center in Las Vegas! Turn your radio to @985KLUC or listen online at audacy.com/kluc!
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Who to follow
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Neurofibromatosis Network
@nfnetwork -
Children's Tumor Fdn
@ChildrensTumor -
ChildhoodTumourTrust
@ChildhoodTT -
Nerve Tumours UK
@NervetumoursUK -
Neurofibromatosis Young Investigators Forum
@NFYIForum -
Connie B Sorman
@Roo797 -
Tumour Foundation of BC
@tumourbc -
Andrés Lessing ⭐️ ⭐️ ⭐️
@DrezBoston -
Kelly Carpenter
@Hockey_NF_Mom -
Kelly B
@kbelly_76
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