Mid Kent Branch MNDA
@MNDMidKentWorking to raise awareness and to support those affected by Motor Neurone Disease in the Mid Kent area
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@SEWalesMND
@MNDwestsussex
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@MNDACARDIFFVALE
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If you're looking for last-minute gifts, why not come along to our Christmas Bazaar in Rochester on Saturday November 30th? There may even be a visit from the man in the red suit.....Timings and location details below.
Karen McGirdy is running 31 miles in January to raise funds for the MNDA - you can sponsor her here 👇 Good luck, Karen! facebook.com/donate/1955841…
Fantastic news!
S U C C E S S 👏 We're delighted to share that the National Institute for Health & Care Excellence (NICE) has announced that it has reconsidered its routing decision for Tofersen, an effective drug for SOD1 #MND. Over 15,000 of you signed our petition. This is your victory.
What March of the Day 2 is all about - huge thanks to @mattholland8 & @Redsmail Pls sign up to walk, sponsor and spread the word to help us #AttackMND with @DarbyRimmerMND Details at redwoodevents.co.uk/march-of-the-d… @WL_MND @MNDwestsussex @MNDsouthlondon @ClaireRyanSport @livermore_tom
As part of the preparations for March of the Day II in support of the @DarbyRimmerMND, @mattholland8 shares his thoughts about being part of the core team walking 178 miles between @wembleystadium and @IpswichTown in March next year. youtu.be/gKVeWHMhlco?si…
It's vital that raising awareness of motor neurone disease, never stops. Our graphic highlights the key facts about #MND. Today, help us raise awareness and share this with at least one person. Get involved here: mndassociation.org/get-involved
11 AM today. Please join our friendly online peer support group if you live with #MND or care for someone living with it. @MNDpatients & carers share their experience & point towards sources of help & advice. Joining instructions on graphic.
Caring for an adult family member or friend can be rewarding and fulfilling, it may also happen suddenly and result in change and some challenges. We are offering two FREE 90 minute workshops delivered by the British Red Cross. Email hello@involvekent.org.uk or call 03000 810005.
1 in 6 people has a neurological condition, – that’s any condition that affects the brain, spinal cord and/or nervous system. Share your experiences and improve care for people affected by neurological conditions. bit.ly/4cN4Dqk
Please sign this petition for @MNDPatients with the SOD1 gene variant. Absolutely crucial for them, but also to get authorities "thinking properly" about potential personalised treatments being studied for various genes @MNDwestsussex @mndawss @westsurreymnda @MNDAEastKent
Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease. It works. It can slow progression of their #MND. Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below. #PrescribeLife
Great to see technology in action, helping people living with MND to keep their independence. Thanks for sharing this Sam.
For the first time in 2 years, I fed myself dinner! Thanks to modern technology I controlled ‘Obi’ using two foot pedals. MND takes so much, but it won’t take that away from me.
Please sign and share this petition to give hope to people living with MND.
Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease. It works. It can slow progression of their #MND. Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below. #PrescribeLife
We're supporting our partner, @lifearc1, to better understand the challenges of living with MND to guide the development of new technologies that improve quality of life. Take the survey 👇
What technology could help improve daily life for those living with #MND? We'd like to better understand the daily challenges to guide the development of new technologies and inform our future research and investment. Share your thoughts in our survey: t.ly/hQTI_
Thank you @leedscastleuk for hosting one of our recent Support Groups. The sun shone and a good time was had by all 🌞
She did it! Yesterday, Alli Thompson ran the Kielder Marathon in aid of Mid-Kent and @MNDAEastKent She completed the 26.2 mile course round Kielder Water in 5 hours 18 minutes. Well done, Alli! She's already planning her next challenge....
The APPG on MND is re-forming with new MPs, and we need your help to get them involved! Invite your MP in just 30 seconds and help strengthen support for those living with #MND. Click here👇 ecampaigns.mndassociation.org/page/156649/ac…
'Forty MPs from eight parties signed a letter to the Chancellor which warns that motor neurone disease "causes significant muscle wastage, reducing the body's natural insulation and making it much harder to retain heat”.' t.ly/c4e4u Today the @Daily_Express is…
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Who to follow
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MNDA SE Wales
@SEWalesMND -
West Sussex North
@MNDwestsussex -
MNDANorwichWaveney
@MNDANorWave -
MND Association West Yorkshire
@MNDA_WestYorks -
MNDA West London & Middlesex branch
@WL_MND -
MNDA East Sussex
@MNDAEastSussex -
Roger Widdecombe
@RWiddecombeMND -
MNDA West Sussex South
@mndawss -
MNDA CARDIFF & VALE
@MNDACARDIFFVALE -
David Whalley
@DavidW_MND -
MND NE Wales
@MNDNEWales -
MNDA Leics & Rutland
@MNDA_Leics -
Rachel
@rachel_MND -
Clare Brennan
@ClareVBrennan
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