Kimberly Hicks
@KA_HicksCOO/CFO/Treasurer @OpenMedF | Funding outcome-driven research and changing the global landscape for chronic complex diseases: https://t.co/3C3mNtIjHk | #mecfs #longcovid
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“What you do makes a difference, and you have to decide what kind of difference you want to make.” ― Jane Goodall #inspiration, #legacy
So proud of this collaboration with @getbcard and the innovative approaches to supporting communities like @OpenMedF So many opportunities to create positive network effects for all and solve big global health issues at the same time.
Canadian non-profits and charities, @canadiancharity is a stellar partner to have on your team, and provides helpful & informative online resources and webinars.
Online courses are not as much fun as in-person. But they save a lot of travel time and cost and are available sometimes 24/7 not once per year or 2. Also you can start and stop at your pleasure. You can even replay Checkout our 19 courses canadiancharitylaw.ca/courses/
Hello @memdotai 👋 just setting up my Twitter flow. Here's my validation code: 5OCSqazfTtY7LnCGIaFL
Thanks @PutrinoLab for this excellent summary and response, and for your continued and valued work to understand #LongCOVID and similar diseases like #MECFS and others.
We are in our fourth year of work to understand #LongCovid and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a 🧵 on why LC IS NOT FND (1/)
Kudos @r_prior . Blows my mind (and @OpenMedF) that articles like this are still needed in the face of overwhelming scientific evidence of biological basis of #MECFS & #LongCovid
Today for @openmind_mag, I have a big new essay about #longcovid, #mecfs, and how we’ve surpassed a historic pivot point in the scientific understanding of post-infectious disease. openmindmag.org/articles/gasli…
ICYMI: Check out the following #research initiatives supported by OMF in 2022: omf.ngo/2022-research-… Thanks to you, we’ve made incredible strides in collaborative research that have laid the foundation for OMF to now move forward with small clinical trials for ME/CFS treatment.
Does ME/CFS Change Molecularly Throughout a Day? Jonas Bergquist & Christopher Armstrong's New Study: bit.ly/3NVNejI This study plans to use high-frequency blood testing—multiple tests over a 6–8-hour period—to evaluate what changes in #MECFS patients over a day.
ICYMI! This #TripleGivingTuesday is special because we are raising funds for an entirely new arm of research: small clinical treatment trials! Donate now and have your gift tripled: bit.ly/3V81GIp
Will you help us fund small clinical treatment trials this #TripleGivingTuesday? Now is the time to TRIPLE your impact and help us find effective treatments! Learn more: omf.ngo/do-you-want-an…
Could oxidative stress ("redox imbalance") be the link between #LongCovid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)? A new perspective @PNASNews pnas.org/content/118/34…
This is a must read regarding healthcare’s failure with chronic complex diseases. See what @OpenMedF is doing to fix this.
"It did not matter that I was an educated medical professional receiving care from the same hospital system in which I worked. The moment I became sick I was just a patient in a bed, no longer credible in the eyes of most physicians." Powerful piece👇 medium.com/@InkOnThePage/…
The monthly letter from Dr. Howard Zucker, @nysdoh Health Commissioner, urges physicians to recognize signs & symptoms of #LongCOVID and to consider diagnosis of #MECFS. Read the full letter: on.ny.gov/3C8YkLM #CountLongCOVID #Millionsmissing #PwME
Touching piece by @Rivkatweets: Perspective | For years, my chronic illness kept me isolated. The pandemic helped me get closer to my community. washingtonpost.com/health/chronic…
While post-viral illnesses are not new, they have been considerably neglected by the public health, medical, and scientific communities. The COVID-19 pandemic is now causing a reckoning with this institutional neglect. blog.petrieflom.law.harvard.edu/2021/07/29/lon…
"#LongCovid has exposed medicine's blind spot". Which blind spot? Previous (post-infection) chronic symptoms, despite a long history of high numbers of patients, have remained very poorly understood and constitutes one of medicine's largest blind-spots. thelancet.com/journals/lanin…
❤️😭
"Just to walk two blocks with my dog, it wipes me out." Clinics around the U.S. are focusing on treating Covid-19 patients who experience symptoms ranging from memory loss to fatigue months after getting sick. on.wsj.com/34gJTXD
Many thanks to @edyong209 and @ChrisCuomo for continuing to shine a light on this topic. #covidlonghaulers @OpenMedF
This is such an important perspective on the true impact of this and similar diseases: Long-Haulers Are Redefining COVID-19 - The Atlantic theatlantic.com/health/archive…
This is such an important perspective on the true impact of this and similar diseases: Long-Haulers Are Redefining COVID-19 - The Atlantic theatlantic.com/health/archive…
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Who to follow
-
Lucinda Bateman
@LBatemanMD -
MEAction GA
@meactionga -
Massachusetts ME/CFS & FM Association
@MassMECFS -
Katharina 🍀 @[email protected]
@katha1970 -
Illustrator Interrupted
@FranceyME -
Alexandra
@AlexBliss101 -
Alice
@Alice_mecfs -
Sue Worrall
@susiewo80 -
Susan - M.E/Fibromyalgia Awareness
@mefibromyalgia1 -
Kristin 💚💙 Keep Going 🌊
@KJKrathwohl -
Maya
@MayaLongCovid -
TiggaMom
@MomTigga -
Bea
@BeaDavi -
Jane Tatum
@JaneTatum8 -
Tadhg
@tadhg_mecfs
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