Fiona Fallon
@FFallon2020Proud mam, ❤️Congenital Heart Disease Advocate, PPI rep INICUA, Volunteer IHF, FCI, CIH & HCI, Organ Donor, Carer, Home Economics teacher. Opinions all my own.
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Thank you so much @itsthatgirlsuzi @djcribbin @ClarCahill @Liz69695098 it was an honour to be a voice for paediatric ICU patients and families of sick children..I hope decision makers were listening! @CeoHardiman @CHIatCrumlin @noca_irl @HSELive
Special school, special units, special class, mainstream school, mainstream class are ALL PLACES OF EDUCATION & none are better than the other. As long as the individual child is being educated in the best place for them that is what is most important. Not one size fits all.
"Every child deserves to be valued, nurtured, respected & supported to reach their own full potential." Aisling McNiffe, who cares for her son Jack, is highlighting special education & the provision of vital therapies as key issues for the next govt. 🗳️#GE24 #MakeCarersCount
🗳️Voter Registration Deadline⏳ Today (Tuesday 12th November) is the deadline to register and update your details for in-person voting ahead of the General Election. Make carers count on November 29th by visiting checktheregister.ie today.✅ #GE2024 #GE24
🚨 Today is the last day to register to vote in the upcoming General Election 🚨 Visit checktheregister.ie to register for the first time or to make sure your details are up to date Don't delay, check today #YourVoteYourVoice
In memory of all babies gone too soon. Always loved, never forgotten 💖💙 #BabyLossAwarenessWeek #BLAW #WaveOfLight #BLAW24 #BLAW2024
Entire humans Not labels or boxes We need to go back to the beginning, put the person at the centre of the frame #healthcare #EthicalDecisionMaking
She has epilepsy, intellectual disability and is autistic. They feel she has adhd but the system doesn't look at entire humans so unless we can seperate out her struggles into neat boxes she'll just fall between the cracks like she has done since the day she was born.
Families driven to extreme measures to obtain services What does a family travelling abroad, or a parent studying law, or training in SLT, tell us about where partnership & co-design are rn? If our aim is #partnership we’ve got to act on patient’s lived experience
In case you missed it! The HSE has introduced a new immunisation programme to protect newborn babies born between September 2024 and February 2025 against RSV (Respiratory Syncytial Virus). This vital step follows a recommendation made in the Irish Paediatric Critical Care…
This is our friend David with a passionate plea to #ACHD specialists as he enters hospice. It's important that you listen his journey and hear what he has to say!!! #heartfailure #CHD youtu.be/8im7BqYgAIg?si…
On the hunt again for OLD style Peppa pigs for Jack, must be the TY version with beans in the bum. The modern versions in all the shops won’t do. I looked for a few this time two years ago & was lucky to get two plus a bonus big one. He loves her & is rarely seen without her. TIA
In 2017 Simon Harris was responsible for the curious contract signed for the NCH with BAM. The hospital was due to open in 2021. The question I think that’s worth asking is how was it that the then Minister Simon Harris tied tax payers into a contract that has resulted in at…
💪 So well said @McNiffecent🫶 The courage it takes to speak publically about the challenges of being a parent carer should NOT be underestimated.❤️🔥👏 Voters please🙏 elect leaders that listen and respond to the reality of life for families like Aisling & Jack. 🗳 #familycarers
🙏@AmyDonohoe1 @childreninhosp for highlighting this issue for many families, long hospital stays are tough financially as well as emotionally/physically 💔😓 @scolionetwork @heartchildren_ @JackandJillCF @LauraLynnHouse @ChildhoodCanIre independent.ie/irish-news/my-… @Independent_ie RT
The NOCA team were delighted to exhibit at the HSE Patient and Public Partnership Conference 2024 today. We were delighted to have 2 of our amazing NOCA PPI's, Tara Regan from @Arthritisie and Edel Wilson from @HeadwayIreland join us at the NOCA stand to chat to attendees. It…
📢 For anyone around Leinster House tomorrow who would like to show their support for children waiting on life-changing surgery and treatments, we will be outside from 3pm before our AV briefing to TDs and Senators. Join us @scolionetwork @SBH_PAG #TimelyCare…
Thanks @EoinBeattyKfm @kfmradio for chatting to me this morning about the upcoming budget and @childreninhosp pre-budget submission re having a payment for families who have children long term in hospital. There are so many non medical expenses that have to be paid. @welfare_ie
I’d just like to remind ALL political parties that none of you had the backbone to say STOP re The New Children’s Hospital & you had plenty of time to say NO, you were also well informed by Doctors, allied health professionals, parents & other stakeholders who didn’t want SJH
Can we just agree that any clinical service that has a wait list of 3-5yrs to be ASSESSED isn’t a real service? Esp. for children & YP who are hugely impacted by waiting It creates false hope in patients Doesn’t give voice/respect Breaches human right to access healthcare
He’s listening to every Tom, Dick and Harry but not the parents on the ground. This has always been the failure of every #scoliosis initiative. Every single one.
As parents and part of the Scoliosis Advocacy Network, we were deeply disturbed by An Taoiseach’s angry response to @MaryLouMcDonald in the Dáil yesterday. His frustration was misdirected at her, not the system that has failed children like Harvey. It’s not @SimonHarrisTD role…
I’ve seen a lot of people asking how they can help us, and children like #harvey. If you could please share this and encourage your local td’s and senators to attend and show support it would be really appreciated ❤️ @SBH_PAG @scolionetwork @Stephen63224725 @mulvanypeopleb1…
📢 AV Room Briefing - Leinster House This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed…
Certain groups of children are being desperately failed in this country We stand in solidarity with all family groups trying to get the services their children need & deserve We ask TDs&Senators to show up for @scolionetwork & offer proactive support to the campaign
📢 AV Room Briefing - Leinster House This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed…
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