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EmilysEntourage's profile picture. Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.

Emily's Entourage

@EmilysEntourage

Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.

Joined July 2011
4KPosts 2KFollowers 2KFollowing
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CFNewsToday's profile picture. We exist to bring you science, research and clinical news about Cystic Fibrosis. We are a free digital publication dedicated to the patient community.

@CFNewsToday

emilykg1's profile picture. Co-Founder @EmilysEntourage, Patient Advocate/Speaker, Bioethicist, Digital Health Enthusiast, To-Do List Writer

@emilykg1

CFRI_CureCF's profile picture. CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.

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CfAdventurers's profile picture. CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.

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RoadmapToCF's profile picture. The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls

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CF_Dad's profile picture. Just cure CF. Three beautiful daughters...two have Cystic Fibrosis and they are winning the daily battle!

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CFWarriorProj's profile picture. Husband to Andrea. Dad to Avery and Ethan. Enemy to cystic fibrosis. #cfwarrior #cfwarriorproject #curecf! https://t.co/SzVWjDG4cH.

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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Dec 12

⏳ Just 10 days left to apply for EE’s 2024-25 Research Grant Program! Help accelerate breakthroughs for the final 10% of the #CF community. 📅 Deadline: Dec. 20, 2024 🌟 Apply now: emilysentourage.org/translational-… #CFResearch #CureCF #CFWarriors

EmilysEntourage's tweet image. ⏳ Just 10 days left to apply for EE’s 2024-25 Research Grant Program! Help accelerate breakthroughs for the final 10% of the #CF community. 📅 Deadline: Dec. 20, 2024 🌟 Apply now: emilysentourage.org/translational-… #CFResearch #CureCF #CFWarriors
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Emily's Entourage
 @EmilysEntourage
Dec 9

This year, we're celebrating 13 years of transformation: from laying groundwork to seeing life-changing impact for those with #cysticfibrosis in urgent need. But being on the brink isn’t enough. The final 10% can't wait. Help us get there in time: bit.ly/3BhwqBK

EmilysEntourage's tweet image. This year, we're celebrating 13 years of transformation: from laying groundwork to seeing life-changing impact for those with #cysticfibrosis in urgent need. But being on the brink isn’t enough. The final 10% can't wait. Help us get there in time: bit.ly/3BhwqBK
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Emily's Entourage
 @EmilysEntourage
Dec 6

✍️ Join Emily’s Entourage CF Clinical Trial Connect for the opportunity to participate in #clinicaltrials tailored for you. Together, we can speed lifesaving treatments for 100% of the #CF community. 💜 🔗 Learn more: emilysentourage.org/ctc #CureCF #CysticFibrosis

EmilysEntourage's tweet image. ✍️ Join Emily’s Entourage CF Clinical Trial Connect for the opportunity to participate in #clinicaltrials tailored for you. Together, we can speed lifesaving treatments for 100% of the #CF community. 💜 🔗 Learn more: emilysentourage.org/ctc #CureCF #CysticFibrosis
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Emily's Entourage
 @EmilysEntourage
Dec 5

Team EE showed up strong at the @Philly_Marathon, racing to accelerate breakthroughs for the final 10% of the #cystficfibrosis community! 💜💪 We raised $37K+ and shared an unforgettable weekend. 🔗 Catch all the highlights in our latest blog: bit.ly/49ondEf #CureCF

EmilysEntourage's tweet image. Team EE showed up strong at the @Philly_Marathon, racing to accelerate breakthroughs for the final 10% of the #cystficfibrosis community! 💜💪 We raised $37K+ and shared an unforgettable weekend. 🔗 Catch all the highlights in our latest blog: bit.ly/49ondEf #CureCF
EmilysEntourage's tweet image. Team EE showed up strong at the @Philly_Marathon, racing to accelerate breakthroughs for the final 10% of the #cystficfibrosis community! 💜💪 We raised $37K+ and shared an unforgettable weekend. 🔗 Catch all the highlights in our latest blog: bit.ly/49ondEf #CureCF
EmilysEntourage's tweet image. Team EE showed up strong at the @Philly_Marathon, racing to accelerate breakthroughs for the final 10% of the #cystficfibrosis community! 💜💪 We raised $37K+ and shared an unforgettable weekend. 🔗 Catch all the highlights in our latest blog: bit.ly/49ondEf #CureCF
EmilysEntourage's tweet image. Team EE showed up strong at the @Philly_Marathon, racing to accelerate breakthroughs for the final 10% of the #cystficfibrosis community! 💜💪 We raised $37K+ and shared an unforgettable weekend. 🔗 Catch all the highlights in our latest blog: bit.ly/49ondEf #CureCF
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Dec 3

Rare disease advocates! Do you or someone you know live in Michigan? Give a voice to people w/ rare diseases, including those with #cysticfibrosis, by helping to get this important bipartisan bill passed! Details below on how to take action. @RoadmapToCF #CF #CFWarriors

RoadmapToCF's profile picture. The Bonnell Foundation: Living with Cystic Fibrosis provides funds, scholarships, & resources to navigate life with CF. #CFMomof2girls
The Bonnell Foundation
 @RoadmapToCF
Dec 3

Let's pass HB 4167, the Rare Disease Advisory Council. Call/email Senator Winnie Brinks office Tuesday, or Wednesday December 4th to ask her to put HB 4167 for a vote to the full Senate in this lame duck session. Call or email: 517-373-1801 or SenWBrinks@senate.michigan.gov

RoadmapToCF's tweet image. Let's pass HB 4167, the Rare Disease Advisory Council. Call/email Senator Winnie Brinks office Tuesday, or Wednesday December 4th to ask her to put HB 4167 for a vote to the full Senate in this lame duck session. Call or email: 517-373-1801 or SenWBrinks@senate.michigan.gov
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Emily's Entourage
 @EmilysEntourage
Nov 28

Dearest Entourage, This #Thanksgiving, we’re so grateful for YOU. Your support fuels hope & breakthroughs for the final 10% of the #cysticfibrosis community still waiting for lifesaving therapies. In a world full of worthy causes, thank you for standing with us. 💜 #CureCF

EmilysEntourage's tweet image. Dearest Entourage, This #Thanksgiving, we’re so grateful for YOU. Your support fuels hope & breakthroughs for the final 10% of the #cysticfibrosis community still waiting for lifesaving therapies. In a world full of worthy causes, thank you for standing with us. 💜 #CureCF
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 21

💫💜 We believe that people with #cysticfibrosis should be equipped with information to make their own choices about clinical research and care. Join CF Clinical Trial Connect for early trial updates — straight to your inbox. 📧 🔗 Learn more: : emilysentourage.org/ctc

EmilysEntourage's tweet image. 💫💜 We believe that people with #cysticfibrosis should be equipped with information to make their own choices about clinical research and care. Join CF Clinical Trial Connect for early trial updates — straight to your inbox. 📧 🔗 Learn more: : emilysentourage.org/ctc
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 15

More than 10% of people with #cysticfibrosis don’t benefit from current CFTR modulators. We’re on a mission to change that — and do it fast. 💪💜 🔗 Learn how we're helping to accelerate breakthrough therapies for those with #CF who feel left behind: emilysentourage.org/ctc

EmilysEntourage's tweet image. More than 10% of people with #cysticfibrosis don’t benefit from current CFTR modulators. We’re on a mission to change that — and do it fast. 💪💜 🔗 Learn how we're helping to accelerate breakthrough therapies for those with #CF who feel left behind: emilysentourage.org/ctc
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 15

We’re ONE week away from the @Philly_Marathon! 🏃💨 Our #TeamEE runners are pushing hard to raise awareness for the final 10% of the CF community. 💜 Drop your best training tip or tag us in your training pics! Let’s crush it! 💪 #CureCF

EmilysEntourage's tweet image. We’re ONE week away from the @Philly_Marathon! 🏃💨 Our #TeamEE runners are pushing hard to raise awareness for the final 10% of the CF community. 💜 Drop your best training tip or tag us in your training pics! Let’s crush it! 💪 #CureCF
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 14

🚨 BIG NEWS ALERT 🚨 Spirovant, the #cysticfibrosis gene therapy company EE helped launch, has dosed its FIRST patient with its gene therapy candidate in the SP101 + Augmenter trial for #CF! 💥👊 This is a HUGE moment! 💜 Read more: prn.to/3Z4pyAT

EmilysEntourage's tweet image. 🚨 BIG NEWS ALERT 🚨 Spirovant, the #cysticfibrosis gene therapy company EE helped launch, has dosed its FIRST patient with its gene therapy candidate in the SP101 + Augmenter trial for #CF! 💥👊 This is a HUGE moment! 💜 Read more: prn.to/3Z4pyAT
EmilysEntourage's tweet image. 🚨 BIG NEWS ALERT 🚨 Spirovant, the #cysticfibrosis gene therapy company EE helped launch, has dosed its FIRST patient with its gene therapy candidate in the SP101 + Augmenter trial for #CF! 💥👊 This is a HUGE moment! 💜 Read more: prn.to/3Z4pyAT
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 13

🏃‍♂️✨ Meet the #TeamEE Runners Racing for CF Breakthroughs! ✨🏃‍♀️ Nov 23-24, 30 amazing #TeamEE runners are taking on the @Philly_Marathon to fuel #cysticfibrosis research and bring hope to the 10% still waiting for life-saving treatments. 🔗 Read more: bit.ly/4eB43MI

EmilysEntourage's tweet image. 🏃‍♂️✨ Meet the #TeamEE Runners Racing for CF Breakthroughs! ✨🏃‍♀️ Nov 23-24, 30 amazing #TeamEE runners are taking on the @Philly_Marathon to fuel #cysticfibrosis research and bring hope to the 10% still waiting for life-saving treatments. 🔗 Read more: bit.ly/4eB43MI
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 8

💥 NACFC 2024 Recap: Top Takeaways for the Final 10% from Boston! 💥 Our Chief Scientific Officer, Chandra Ghose, PhD, shares the latest advances—from gene therapy to in-utero CRISPR—for those in the final 10%! 🔗 Read more on the EE blog: bit.ly/3AFjO76 #NACFC2024

EmilysEntourage's tweet image. 💥 NACFC 2024 Recap: Top Takeaways for the Final 10% from Boston! 💥 Our Chief Scientific Officer, Chandra Ghose, PhD, shares the latest advances—from gene therapy to in-utero CRISPR—for those in the final 10%! 🔗 Read more on the EE blog: bit.ly/3AFjO76 #NACFC2024
EmilysEntourage's tweet image. 💥 NACFC 2024 Recap: Top Takeaways for the Final 10% from Boston! 💥 Our Chief Scientific Officer, Chandra Ghose, PhD, shares the latest advances—from gene therapy to in-utero CRISPR—for those in the final 10%! 🔗 Read more on the EE blog: bit.ly/3AFjO76 #NACFC2024
EmilysEntourage's tweet image. 💥 NACFC 2024 Recap: Top Takeaways for the Final 10% from Boston! 💥 Our Chief Scientific Officer, Chandra Ghose, PhD, shares the latest advances—from gene therapy to in-utero CRISPR—for those in the final 10%! 🔗 Read more on the EE blog: bit.ly/3AFjO76 #NACFC2024
EmilysEntourage's tweet image. 💥 NACFC 2024 Recap: Top Takeaways for the Final 10% from Boston! 💥 Our Chief Scientific Officer, Chandra Ghose, PhD, shares the latest advances—from gene therapy to in-utero CRISPR—for those in the final 10%! 🔗 Read more on the EE blog: bit.ly/3AFjO76 #NACFC2024
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Nov 4

📢 Researchers, new funding alert! Emily’s Entourage 2024 #CF Research Grants are open for innovative proposals on gene therapies, pathogen solutions, and more! Up to $100K/year for 2 years. Apply by Dec 20! 🔬🧬 🔗 Details: emilysentourage.org/translational-… #CureCF #CysticFibrosis

EmilysEntourage's tweet image. 📢 Researchers, new funding alert! Emily’s Entourage 2024 #CF Research Grants are open for innovative proposals on gene therapies, pathogen solutions, and more! Up to $100K/year for 2 years. Apply by Dec 20! 🔬🧬 🔗 Details: emilysentourage.org/translational-… #CureCF #CysticFibrosis
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Emily's Entourage
 @EmilysEntourage
Nov 1

🗓️ November is here, and that means it’s officially @philly_marathon month! 🏅 Huge thanks to our sponsor, @firstrustbank, for fueling #TeamEE as they run for #CF breakthroughs! Every step brings us closer to a cure for 100%! 💜🏁 Visit their website >> firstrust.com

EmilysEntourage's tweet image. 🗓️ November is here, and that means it’s officially @philly_marathon month! 🏅 Huge thanks to our sponsor, @firstrustbank, for fueling #TeamEE as they run for #CF breakthroughs! Every step brings us closer to a cure for 100%! 💜🏁 Visit their website >> firstrust.com
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Emily's Entourage
 @EmilysEntourage
Oct 31

💜 Sign up for Emily's Entourage CF Clinical Trial Connect to receive tailored #cysticfibrosis #clinicaltrial updates straight to your inbox. 📥 Registration is simple! 🖊️ 🔗 Join today: emilysentourage.org/ctc #CureCF #CF #CFWarriors

EmilysEntourage's tweet image. 💜 Sign up for Emily's Entourage CF Clinical Trial Connect to receive tailored #cysticfibrosis #clinicaltrial updates straight to your inbox. 📥 Registration is simple! 🖊️ 🔗 Join today: emilysentourage.org/ctc #CureCF #CF #CFWarriors
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Oct 24

📰 Big news! Paul McCray, Jr., MD, Emily’s Entourage’s 2024 Trailblazer Award recipient, was featured in @TheDailyIowan for his groundbreaking #cysticfibrosis research! We’re so proud! 💜 🔗 Read more: bit.ly/3BYVPAb #CureCF #CFResearch #CF @IowaMed

EmilysEntourage's tweet image. 📰 Big news! Paul McCray, Jr., MD, Emily’s Entourage’s 2024 Trailblazer Award recipient, was featured in @TheDailyIowan for his groundbreaking #cysticfibrosis research! We’re so proud! 💜 🔗 Read more: bit.ly/3BYVPAb #CureCF #CFResearch #CF @IowaMed
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sionna_tx's profile picture.
sionna_tx
 @sionna_tx
Oct 24

@EmilysEntourage is a nonprofit organization focused on accelerating breakthroughs in #cysticfibrosis (CF) research and drug development. Learn more: emilysentourage.org

sionna_tx's tweet image. @EmilysEntourage is a nonprofit organization focused on accelerating breakthroughs in #cysticfibrosis (CF) research and drug development. Learn more: emilysentourage.org
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EmilysEntourage's profile picture.
Emily's Entourage
 @EmilysEntourage
Oct 23

🌸 A Night of Hope at the 2024 Emily’s Entourage Gala 🌸 We raised $1.34M+ for critical #cysticfibrosis research! From inspiring speeches to unforgettable moments, it was a night to remember. 💜 🔗 Relive the event at the EE blog: bit.ly/4dXsLX2 #CureCF #CF

EmilysEntourage's tweet image. 🌸 A Night of Hope at the 2024 Emily’s Entourage Gala 🌸 We raised $1.34M+ for critical #cysticfibrosis research! From inspiring speeches to unforgettable moments, it was a night to remember. 💜 🔗 Relive the event at the EE blog: bit.ly/4dXsLX2 #CureCF #CF
EmilysEntourage's tweet image. 🌸 A Night of Hope at the 2024 Emily’s Entourage Gala 🌸 We raised $1.34M+ for critical #cysticfibrosis research! From inspiring speeches to unforgettable moments, it was a night to remember. 💜 🔗 Relive the event at the EE blog: bit.ly/4dXsLX2 #CureCF #CF
EmilysEntourage's tweet image. 🌸 A Night of Hope at the 2024 Emily’s Entourage Gala 🌸 We raised $1.34M+ for critical #cysticfibrosis research! From inspiring speeches to unforgettable moments, it was a night to remember. 💜 🔗 Relive the event at the EE blog: bit.ly/4dXsLX2 #CureCF #CF
EmilysEntourage's tweet image. 🌸 A Night of Hope at the 2024 Emily’s Entourage Gala 🌸 We raised $1.34M+ for critical #cysticfibrosis research! From inspiring speeches to unforgettable moments, it was a night to remember. 💜 🔗 Relive the event at the EE blog: bit.ly/4dXsLX2 #CureCF #CF
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Foundation2017's profile picture. The Jack K Johnstone Foundation is a registered charity fundraising for children affected by illness, disability and sibling bereavement.

Jack K Johnstone

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abbymae

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Lynda Griffin

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Ken Johnson

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Andressa silva

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subrotopaul's profile picture. Thoracic Surgeon, Researcher, Entrepreneur: Success is not final, failure is not fatal: it is the courage to continue that counts. Winston Churchill

Subroto Paul MD

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Melissa Quilter

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Al

@Lali_Buriano
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Susanne Ostrander

@SusanQT2
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Kelly Krauss

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Yalda Fazlali

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Fund a Life 🫶

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Chordoma Foundation Labs

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Junjie Lu

@JunjieLu0
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Mike Traytons

@MTraytons90662
CF_Foundation's profile picture. Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Cystic Fibrosis Foundation

@CF_Foundation
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Gunnar Esiason

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Cystic Fibrosis Trust

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Jerry Cahill

@jcahillYCF
CFRI_CureCF's profile picture. CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.

Cystic Fibrosis Research Institute

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CysticFibrosisCanada

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Beam for Cystic Fibrosis

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Boomer Esiason Foundation

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Dr Meghan McGarry

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beth Vanstone

@bethdenniss
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Katie Fielding

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CF Vests Worldwide

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Jillian McNulty

@jilli09
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Bob Coughlin

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CF Adventurers

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ArrowheadPharma

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Global Genes

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Melissa Shiffman

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Vertex Pharmaceuticals

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The Philadelphia Inquirer

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Prof. Dr. rer. nat. Michael Kormann

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St. Luke's University Health Network

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Lovely Bride

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Deloitte

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Paratek

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Carver College of Medicine

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Waves for Change

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Rock CF

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the Mann.

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Jane Davies

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Good Morning America

@GMA
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University of Pittsburgh

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ReCode Therapeutics

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Pharma & Life Science News

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Sujatha Jagannathan

@RNA_biologist
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Carbon Biosciences

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RareDiseaseDiversityCoaltion

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UC San Diego Health

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4DMT

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Philadelphia Marathon

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KU Leuven

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URochester SMD

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Children's Hospital

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Jocelyn Kaiser

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AP Health & Science

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Emily Mullin

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Subroto Paul MD

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Metagenomi

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sionna_tx

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Jessica Fournier

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Zack Schildhorn

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Peter Wark

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ColorReflectionsPhly

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Guizhi (Julian) Zhu

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Kari Thrasher

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Dani Buller

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Alex Piotrowski-Daspit

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Devin

@devinknope
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Rob Reynolds

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Steve

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Zachary Sellers

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Fibrose Kystique CA

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Robert McCarthy #CureCysticFibrosis

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SmartVestSystem's profile picture. The SmartVest Airway Clearance System delivers effective symptom relief for individuals with chronic lung conditions, such as bronchiectasis and COPD

smartvestsystem

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