Dr Hannah Smith
@DrHannahSmith(she/her, PhD in Neuroscience) Post-doctoral research fellow @EdinburghUni studying the translatome in ALS, under Prof Tom Gillingwater (@GillingwaterLab)
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@MNDOxford
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@HafezparastLab
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@SaraTacconelli
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@olivia_rifai
I met Alan via @MNDScotland Scientific Advisory Panel in Jan (he's a Lived Experience Member, I'm the Eary Career Researcher Member). So glad to catch up with him again yesterday in Glasgow & he told me about this interview. There's still 1 LEARN event coming up in Dundee!
Glasgow families who’ve watched loved ones battle with Motor Neuron Disease are getting the chance to tell scientists what the condition’s really like. Alan Ogg from Bearsden lost his wife Liz three years after being diagnosed. They’d been together for almost 50 years 💔
Just reached Glasgow for @MNDScotland 's Lived Experience and Researcher Network event. Looking forward to presenting my #MND research & hearing from people affected by MND 💙 👩🔬
Tragic news, a trailblazer who brought Scotland to the front in MND research, set up a powerful research network via the Centre, & created a fantastic resource for accessible venues in Edinburgh & beyond (@EuansGuide)
It is with immense sorrow that we are sharing the sad news that Euan MacDonald died today. Euan was an extraordinary man who brought hope and helped transform the lives of countless people living with MND & other disabilities. euanmacdonaldcentre.org/about/news/mes…
I'm going to see this beauty later today! 🏵🪴
Still here this morning, still looking utterly magical ✨ Looking forward to meeting those of you who managed to grab a free ticket. I will make sure my minions keep those of you who can't bask directly in my presence up to date with how my magnificence is progressing 😁
There's (one of) our amazing PhD students, Hattie, in the middle! Sounds like it was a fantastic event yet again 👩🔬👩🔬
Excellent presentations on their work by our Early Career Researchers at #mndencourageuk The future of #ALS #MND research🔬🧬💊🧫 is in good hands!
TY for the chance to describe my experience w/ @MNDScotland as part of their SAP for #MNDAwarenessDay. A fantastic opportunity for ECRs learning how to write better grants & see the variety of #MND research asking for funding! Hope other funders follow & inc ECRs in panels 👩🔬🧠
Dr Hannah Smith @drhannahsmith shares her journey as the first ECR on MND Scotland's Scientific Advisory Panel. Discover how this role has shaped her research (and future grant applications)! #MND #MNDAwarenessDay @MNDScotland dementiaresearcher.nihr.ac.uk/blog-the-grant…
So excited to be part of this! Anyone impacted by #MND or curious to hear research direct from scientists, join the webinar to learn abt LEARN events! In Sept & Oct I'll be presenting our #ALS work in Edinburgh & Glasgow 👩🔬 hoping to meet the MND community & learn from them too
Excellent talk by @c_mchutchison, fellow @EuansCentre member, comparing the varying frameworks used in assessing behavioural/cognitive changes in familial but pre-onset ALS/FTD #ENCALS2024
First day of @ENCALS 2024, in beautiful sunny Stockholm 🇸🇪. I'm poster 271 at tomorrow's session, come say "Hej!" Presenting my work with @GillingwaterLab funded by @MNDScotland, along with @hellychayts & other researchers who are part of @EuansCentre #ENCALS #MND #ALS
What a difference a year makes! I'm scared of heights, so I thought acrobatics would help overcome it 😅. Compare 1st vid (slow, pausing each stage w/ fear, forest of spotters & crashmat) vs 2nd (first try of 1-hand entry, no need for spotters at this point)
Tofersen is a high-tech genetic therapy for SOD1-ALS which works. The decision by @NICEComms to assess it like a routine #MND #ALS therapy means it is likely to be rejected for UK patients, even though it is already approved in the USA and Europe. We urge @NICEComms to reconsider
@NICEComms, "Computer says no" is not acceptable. UK patients and UK scientists helped develop this groundbreaking treatment for #ALS #MND, already approved in the US and EU. Please listen to us and reverse your decision. @UKMNDRI @united2endmnd @mndassoc @MNDoddie5 @MNDScotland
Tour of my poster at #SMACongress2024 - research performed with @GillingwaterLab in collab with Prof Gabriella Viero. This project was designed by & established w/ huge amounts of work by @dinjavd during her PhD, along w/ initial work by @drgroen . Super-collaborative science!
Last week, we heard disappointing news that the National Institute for Health & Care Excellence has confirmed its decision to appraise tofersen through the Single Technology Appraisal. We join @mndassoc and @MNDoddie5 in our statement which outlines the implications below 👇
All ready to go for #SMACongress2024 - gave a flash talk at the ECR/advocate event yesterday, but come check out my poster during this conference - P10, in the Development section! @SMAEurope #SMA
Here at @MNDScotland Shindig to raise money & awareness for #MND! Attending w/ @hellychayts as invited researchers 💙💙💙
At Murrayfield with most of @GillingwaterLab seeing off the #Dodd1e5Gr4ndS7am team for their #RaceToRome fundraiser! 3000km (via multiple routes & methods!) all raising money for vital #MND research @MNDoddie5
Great step forward for those w/ familial SOD1-MND - the European Medicines Agency has recommended approval for tofersen as a treatment. This isn't the final step, but fingers crossed that this treatment gets approved by the European Commission & then in the UK too! #ALS #MND
A milestone for SOD1-MND care today as the EMA recommends tofersen approval, 26 years since the last EU-approved MND treatment. Pending European Commission approval, this is a significant step forward in #MND care. mndscotland.org.uk/news/tofersen-…
👩🔬💙 Needless to say, I'm honoured to join & help evaluate incredible research proposals to fight #MND. Also, incredible that all 3 scientists did PhDs as part of @EuansCentre - a testament to the strength of that network in training passionate MND clinicians & researchers! #ALS
We are pleased to welcome five new members to our Scientific Advisory Panel, including an early career researcher and two lay members. 🧑🔬🔬 They'll play a crucial role in peer-reviewing research funding proposals and help to shape our research strategy. mndscotland.org.uk/news/mnd-scotl…
Like others who attended last year's event, I cannot overstate what a great experience #MNDEnCouRageUK was. So useful for students & ECRs to network & practice communicating your research to people impacted by #MND. Definitely apply if you're in the #ALS field!
💥 #MNDEnCouRageUK is back for 2024! 💥 Aiming to support #MND #ALS early career researchers through workshops and networking, the event also aims to bring the community together with people affected by MND. You won’t want to miss this. More info ⬇️ mndassociation.org/research/mnd-e…
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Who to follow
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Heather Marriott
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*#ScottAllen
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Dr Chayts
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Prof Janine Kirby
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Hafezparast Lab
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GregoryLab
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