Charlotte Massey
@Char_MasseySpecialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
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A wonderful 8 days across the pond 🇺🇸 at @NMSG_news and #MDCRN. A great opportunity to learn, share, collaborate and present the first part of my PhD study with international colleagues (and a quick detour to the Brooklyn Bridge 🌉)
A brilliant day at the #MDCRN meeting to advance treatments in #myotonicdystrophy #FSHD #LGMD #CMT 🇬🇧 UK team representing @UCLIoN @UCL_QS_CNMD @sheffielduni @neuroshef @StGeorgesUni
Any #physiotherapists interested in Neuromuscular research see below ⬇️⬇️ Great opportunity to work as part of the team at @cnmdrehab @UCL_QS_CNMD nhsjobs.com/job/UK/London/…
Do you or someone you know have MND? Would you like to help us do a short interview to help us know more about how to care for people experiencing emotional distress? @SYMNDA @AmmarAlChalabi @profcjmcdermott @MNDoddie5 @DarbyRimmerMND mndassociation.org/research/get-i…
Are you living with MND? We are looking for people to work with us for a new trial launching in September led by @DrEstherHobson! For more info please see: sites.google.com/sheffield.ac.u…
Thank you to @BTSrespiratory for inviting me to speak on the future of airway clearance for our patients with #neuromusculardisease. An interesting day highlighting the need for: 🔵 Interdisciplinary working 🔵 Identifying patient priorities
Learning everything #EBCD yesterday at @PointofCareFdn Great to meet others using this method and learn tips and tricks for implementation.
A very sad day. What an inspiration man who did so much to raise awareness of MND! RIP Rob
It is with deep sadness that the club can confirm that former player Rob Burrow CBE has passed away, aged 41. More here therhinos.co.uk/article/20426/…
Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. @ejmayberry @profcjmcdermott @Char_Massey @PaulWicks @SYMNDA @neuroshef @SheffieldBRC
Reflecting on a great few days in the Netherlands 🇳🇱 for #IDMC14 Increasing #AHP representation 🙌🏼 generating clinical research ideas to support the priorities of people living with #myotonicdystrophy💡🤩
Awesome #SLT #AHP representation at the #International #Myotonic #Dystrophy #Consortium #IDMC-14 last week 🇬🇧🇳🇱🇺🇸 #Teamwork #collaboration & #commitment keeping critical patient outcomes high on the #neuromuscular #treatment agenda 🏆 #eating #drinking #communicating
I'm also delighted to be part of a new chapter on Neuromuscular Disorders with Anna Mayhew, Meredith James & Jane Newman from @jwmdrc plus @Aleks_pietrusz & @Char_Massey from @cnmdrehab @UCL_QS_CNMD @UCLIoN @NHNN_therapies @sheffielduni
State of the art review: Development of respiratory care guidelines for Duchenne muscular dystrophy in the UK - key recommendations for clinical practice. thorax.bmj.com/content/early/… @BTSrespiratory
Congratulations to @MagdalenaDudzi6 for her first 1st-author paper from her doctoral work, & rest of the fab study team. Funded by @CMTUnitedKdom Still hoping we can scale this up to a bigger trial 🙏🏽 @cnmdrehab @UCL_QS_CNMD @LouieLeePhysio @Char_Massey doi.org/10.1002/mus.28…
Do any NMD physio teams have a 25m walk test built into their floor? Can you let us know who supplied it? Thanks 😊 @ACPIN_UK
Physio Twitter - can anyone recommend a supplier that could help us with provision of a 25 metre walk layout. We want it built into the floor. Alternately, tape over the floor #physiotherapy #neurology #outcomemeasure #neuromusuclar
I am not there in person in at #alsmndsymp in Basel this week but @DrEstherHobson and my poster are! Please take a look if you are interested in our #cough and secretion management preliminary work and plans for the future at poster CW-03 ⬇️
🚶 The NHNN therapy gait course is back **Friday 8th March 2024** 🚶♀️ Link for tickets: uclhcharitycourses.com/courses/gait-c… Talks on: biomechanics, orthotics, FES and common neurological presentations. Not one to miss. @NHNN_therapies @LondonACPIN
Sharing this letter for those #Physiotherapists that haven’t seen it yet. It asks the @thecsp to help us lobby and campaign for an immediate permanent ceasefire for the safety of all innocent civilians & HCPs If you are a member please consider signing docs.google.com/forms/d/e/1FAI…
Thank you @mndeducation for inviting us to present today on our experiences of cough and secretion management! Always a pleasure to present with @JodiAllenSLT (it’s almost like we still work together) 😊 Great day alongside @CatrinEmery @michellechatwin @dorindamoffatt
Excellent videos from @Char_Massey & @JodiAllenSLT talking about the upper airway in MND. I’ve always thought about glottic closure issues but not necessarily glottis opening issues and laryngospasm 🤔 @mndassoc
We are looking for healthcare professionals involved in cough and secretion management in people with #MND to join our virtual focus groups ⭐️ Friday 8th December 9am-10am ⭐️ Tuesday 9th January 9am - 10am Please contact me on here or via email if you would like to participate
Join our free Zoom webinar on neuromuscular conditions for healthcare professionals. We’re committed to improving care for people living with these conditions by upskilling professionals. Register: tinyurl.com/mt4w4mww #Orthotics #FootHealth #Physiotherapy #MedEd
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