The Genetic Discrimination Observatory
@DGenetiqueA network of researchers dedicated to researching and preventing discrimination based on genomic and other omic data worldwide. Retweets are not endorsements.
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N’oubliez pas de vous joindre à nous pour notre 5e conférence annuelle, qui se tiendra à Istanbul les 17 et 18 décembre 2024 ! 🧬🧬 Visitez notre site web pour plus d'informations: gdo.global/en/latest_news…
Don’t forget to join us for GDO’s 5th Annual Conference Happening in Istanbul on December 17th and 18th, 2024!🧬🧬 Visit our website for more info on how to join: gdo.global/en/latest_news…
🌏 With advancements in precision medicine, governments are stepping up to protect citizens from GD. Discover Singapore's mission to strengthen its moratorium on genetic testing and insurance through new legislation on genetic test data: insightplus.bakermckenzie.com/bm/healthcare-…
The GDO's 5th Annual Conference is happening on December 17th and 18th in Istanbul! This year’s theme is "Genetic Discrimination in the Era of Artificial Intelligence and Advancing Technologies". 🧬🔬 Visit our website for more info on how to join: gdo.global/en/latest_news…
Fresh off the press! In this article published in JAMA Network Open, GDO members gathered expert perspectives on Genetic Non-Discrimination policymaking, ultimately pointing towards a human-rights approach to prevent GD. Read it here: jamanetwork.com/journals/jaman…
Exciting news! 🎉 Kudos to Dr. Jane Tiller and the A-GLIMMER Project. The Australian Government will soon ban life insurers from using genetic tests to deny coverage—a huge step for those avoiding life-saving tests due to insurance fears. More details: abc.net.au/news/2024-09-1…
In a new MIT Technology Review article, GDO's founding director Yann Joly highlights the urgent need to ensure safeguards against genetic discrimination. Check out the full article: technologyreview.com/2024/07/19/109…
In this recent article, a group of researchers incl. GDO Member @YvonneBombard looked at the situation of HCS patients and their views and experiences with GD. Read more about this important work at gimopen.org/article/S2949-…
Check out this interesting discussion around the crossroad between AI governance and Genetic Non-Discrimination policy! Available at: link.springer.com/article/10.100… Dans cet article prends place une intéressante discussion sur le croisement entre l'IA et la Discrimination Génétique.
Congratulations to GDO Member @YvonneBombard for the well-deserved President's Impact Award! Big thanks to Dr. Bombard's for her remarkable efforts related to GD.
Congratulations, Dr. @YvonneBombard, scientist at St. Michael's Hospital, for being recognized with a @UofT 2024 President's Impact Award! 👏 Dr. Bombard was chosen for her contributions to ending genetic discrimination and advancing genomics research. artsci.utoronto.ca/news/five-rese…
Malgré le moratoire passé en 2019 en Australie, cette étude récente montre que la Discrimination Génétique inquiète le public, les décourageant de passer des tests génétique.
Despite the 2019 Moratorium in Australia, a recent study shows that public concerns about GD persist, deterring people from undergoing genetic testing: nature.com/articles/s4143…
Despite the 2019 Moratorium in Australia, a recent study shows that public concerns about GD persist, deterring people from undergoing genetic testing: nature.com/articles/s4143…
An interesting read by members of the GDO on Canada's Genetic Non-Discrimination Act: what is it, and what effect has it had on insurance practices in the country? Read it on The Conversation: theconversation.com/canadas-geneti…
A recent study from the GDO finds that Canada’s Genetic Non-Discrimination Act leaves room for insurers to circumvent the Act to obtain Canadians' personal genetic information. Read More: mcgill.ca/newsroom/chann…
Still Using Genetic Data? In this comparative assessment, members of the GDO looked at quantifying the impact of the GNDA on insurance underwriting practices. Available at facetsjournal.com/doi/full/10.11…
Rejoignez-nous ce Mercredi 10 Janvier pour un évènement à ne pas rater si vous êtes intéressés par la Discrimination Génétique! Lors de ce séminaire RGHL hybride, Prof. Yann Joly, Fondateur et Directeur de l'ODG, discutera de l'ODG et de promouvoir l'accès à la santé.
Join us on Wednesday, January 10th for an event not to be missed if you are interested in Genetic Discrimination! In this hybrid RGHL Seminar, GDO Founder and Director will talk on Access to Health and the role of the GDO.
Join us on Wednesday, January 10th for an event not to be missed if you are interested in Genetic Discrimination! In this hybrid RGHL Seminar, GDO Founder and Director will talk on Access to Health and the role of the GDO.
As we go into the new year, we'd like to thank everyone who made the GDO 4th Annual Conference a success. This meeting brought up many interesting ideas around Genetic Discrimination. Un grand merci à tous.tes qui ont rendu la 4e Conference Annuelle de l'ODG possible!
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