@CarolineSethaki Profile picture

Caroline

@CarolineSethaki

Associate Scientist with interests in Biology, Animals, Conservation, Virology, Disease mechanisms, ME patient, wanting justice for people with ME

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EXPLOITING PEOPLE IN THE PUBLIC EYE - Sign the Petition! chng.it/XzMBGqVs via @UKChange


RIP CarolineFlack

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Caroline Reposted

Bristol MP ⁦@darrenpjones⁩ giving the “best speech” of the #MEdebate 👏🏻 #pwme #UKParliament


Caroline Reposted

If you missed the #MEdebate earlier today, don't worry! Watch the whole debate on our youtube channel now, share this and post your thoughts! #MyalgicE #pwME youtu.be/79BaSpvHywI


Caroline Reposted

‘This house respects you’ twitter.com/meactnetuk/sta… nailed it. #MEDebate

Incredibly passionate speech from Stephen Pound MP. Watch as he demands the House devotes its intelligence and its resources to research, ultimately to resolve and cure this terrible condition. #MEdebate #millionsmissing #pwME



Caroline Reposted

Don't miss @CMonaghanSNP opening remarks at the #MEdebate: “I commend the ME community for lobbying so successfully to ensure so many members are here this afternoon.” #MyalgicE #pwME


Caroline Reposted

Incredibly passionate speech from Stephen Pound MP. Watch as he demands the House devotes its intelligence and its resources to research, ultimately to resolve and cure this terrible condition. #MEdebate #millionsmissing #pwME


Caroline Reposted

Myalgic Encephalomyelitis (ME) is a long-term neurological condition, affecting an estimated 190–260k people in the UK. Today's @CommonsBBCom #MEdebate is on appropriate treatment for #MyalgicE. We've published a briefing for background bit.ly/2S77WTk


To many life’s have been destroyed. All we want is help and our life’s back. #MEdebate #CanYouSeeMEnow #pwME #scienceNOTstigma


.@stephenkerrMP As your consituent, I hope you are attending and voting at the #MEdebate on January 24th. #pwME in your constituency are missing from their lives. Their carers, families and friends want them back! #MillionsMissing #MyalgicE #UKParliament


Caroline Reposted

"Even in its mildest form, M.E. can have a significant impact on an individual’s life." Action for M.E. speaks to Anything Goes about living with the illness at anythinggoeslifestyle.co.uk/health-and-bea…


Caroline Reposted

This is huge!!! 🙌 so excited M.E. and Me was mentioned in Parliament, I hope this will keep the ball rolling for M.E. awareness and funding for biological research #pwme #MECFS @mecfsbiobank @MEAssociation

🎬 Here's MP Mary Glindon urging the government to provide more funding for research into ME, after watching our documentary on the illness. If you missed M.E. And Me, you can catch it on iPlayer here: bbc.co.uk/programmes/p06…



Caroline Reposted

To each and every one of you who contacted your MP: You made this happen! 🎉💪🎉 Just goes to show the people power our community has.

This has made me so happy. #EDM1247 is no.7 in the list of most popular EDMs this session! 😃💪🏼✊🏼#PwME #MEawareness #PACE

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Caroline Reposted

There’s nothing quite like a mother’s love! Thank you to Lianne Smith for sharing this beautiful photo of #WeeHamish and mum Victoria in the latest #SocialAnimals. Check out the rest here: socsi.in/hviFg

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Caroline Reposted

Ok guys, can we RT this & get much needed awareness & support for Celine & her Parents. My blood boils with fury at how Celine is suffering. Celine needs help & she needs it now @CMonaghanSNP @MEAssociation @SonyaChowdhury @GaryBurgessCI @AintreeHospital

Did you know? : The Nhs do not know how deal with children under the age of 18 with #SevereME #MEccfs. Could you help the family get the appropriate treatment? If you can’t help financially, don’t worrry, please share & raise awareness. 💜#CelinesCrusade💜 justgiving.com/crowdfunding/c…



Caroline Reposted

Thank you to all MPs who attended the #MEdebate in parliament today secured by @CMonaghanSNP Thank you for speaking up for your constituents and shedding light on the seriousness of M.E . As MP @StevePoundMP put it. Let this be the day we are taken seriously. #pwme #mecfs


Caroline Reposted

A positive vision? ME patients want: — theory grounded in careful observation — conscientious research designs — appropriate methods — open anonymized data — replication — scholarly debate — funding commensurate with disease burden In other words, good science, fully supported.

Did you know? : The Nhs do not know how deal with children under the age of 18 with #SevereME #MEccfs. Could you help the family get the appropriate treatment? If you can’t help financially, don’t worrry, please share & raise awareness. 💜#CelinesCrusade💜 justgiving.com/crowdfunding/c…



Caroline Reposted

A challenge has just been issued from the heart of Westminster to @rickygervais to apologise for that awful joke about people with M.E. Your move Ricky. #MEDebate #MEDebateParliament #MyalgicE #ME #PwME


Good luck at the Westminster debate today @CMonaghanSNP You are an inspiration and this will change the life’s of millions of people with this devastating disease #millionsmissing #canyouseeMEnow #MEAwareness

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