Hannah
@violinvetI love rocks, trees, oceans, and gardens. I love playing violin, rock climbing, boating, baking. Episcopal priest. PhD candidate. I also have ME/CFS and POTS.
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Two years ago, someone gave me a wheelchair they were no longer using, as mine was looking rather tired. I'm proud to say that today I finally finished installing the battery. (It's rather more of a production than it sounds.) #MECFS triumphs.
In adventures of chronic illness, today we have: I managed to pull a muscle in my hip while removing compression stockings.
This whole #brainfog memory problem is gross sometimes. Like when you forget that you set mousetraps and wander around for a few days wondering why the house smells like dead mouse. #MECFS problems.
Got some much needed encouragement today for an article I wrote. Maybe I don't stink at this. #CFSPhD
What dissertation writing looks like with #MECFS. Trying to finish my last major chapter today in time for the deadline. Not pictured: all the meds. #CFSPhD
Today's breakfast is due largely to the current state of my garden and the excessive suggestibility brought on by trying to meet a deadline: Elderflower and gooseberry oatmeal microwave muffin. (It's actually pretty good)
Is regular IV fluids a recommended treatment for #MECFS or #POTS? Because I went in for an endoscopy the other day and the high I rode from those fluids lasted for 2 days.
So my friend called me to try and figure out how to manage some fatigue and pain he's had recently. Turns out that he had COVID a month ago and has been extremely fatigued ever since. Apparently, "Stop running 3 miles a day" is a revelatory, earth-shattering suggestion.
Granted there were administrative miscommunications that contributed to this, but I really did not need a note from a member of my doctoral committee saying "Hopefully you can move this project to the front burner this year." I spend every functional moment I have on it.
Possibly my favorite bit of the eclipse experience was the group of teenage boys who were loudly and badly singing "Please don't take my sunshine away" during totality.
My rose cuttings all made it through winter and are sprouting! There are roses in my future!
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