TheRareFair
@therarefairPowered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9Fuzkl
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@remember_girls
@RareAdvocacy
@rarelikeher
@lukebrosen
@dazzle4rare
@RareAction
@DisorderRare
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@KAT6foundation
@RareDiseaseGh
@MamaBearforRare
@livinlavidalopo
@raregivers
@heidibp
@mensraredisease
Don't miss Dawn Ireland as she teaches our Non-Profit Workshop today! You can still register virtually through our bio!
UPDATE! Due to high demand registration will now be closing TOMORROW at 9PM ET!
On September 7th at 3pm as our 2 panelists discuss the future of the clinical trials!
On September 7th at 11am as our 2 panelists discuss the Duke undiagnosed disease network!
Join us on September 7th at 10am as our 2 panelists discuss the future of biotech! Get YOUR ticket(s) in our bio or visit buff.ly/3BnHGJj before 12pm ET today!
Don't miss Jessica Blomberg as she joins us for our panel "The Future in Biotech in Rare Disease"!
Join us on September 7th at 11am as our 4 panelists discuss the advancements & opportunities for newborn screening! Get YOUR ticket(s) in our bio or visit buff.ly/3BnHGJj before 12pm ET today!
Only 3 days away!! Registration closes today at 12pm ET!!
Don't miss Becky Sansbury as she joins Eden Lord on the "Community Listening Session: Real Talk About Rare"! #theraredair2023
Just 4 days away from The Rare Fair! Get YOUR ticket(s) in through our bio or visit buff.ly/3pZKZUY
Don't miss Dominika Murphy as she joins our panel "The Rare EcoSystem - Collaborating with Diverse Stakeholders to Achieve Common Goals"!
Join us on September 7th at 9am as our 3 panelists discuss why RTP is great for the rare disease community! Get YOUR ticket(s) in our bio or visit buff.ly/3BnHGJj.
Don't miss Dr. John Moses Jr. as he gives his talk on "Narrative Medicine"!
Join us on September 7th at 9am as our 4 panelists discuss collaborating with diverse stakeholders to achieve common goals! Get YOUR ticket(s) in our bio or visit buff.ly/3BnHGJj. #therarefair2023
Don't miss Melissa Poole as she joins us for our panel "RTP as an International World Disease Hub"!
Join us on September 8th at 2pm as our 3 panelists discuss what adult care is like in the rare disease community! Get YOUR ticket(s) in our bio or visit buff.ly/3BnHGJj.
Don't miss Sigma Mostafa as she also joins us for our panel "The Future in Biotech in Rare Disease"! #therarefair2023
Don't miss Sigma Mostafa as she joins our panel discussion on "RTP as an International World Disease Hub" on September 7th at 9am! #therarefair2023
IMPORTANT! Registration for The Rare Fair will be closing on Monday, September 4th at 12pm ET! Get YOUR ticket(s) for our event through our bio or go to buff.ly/3BnHGJj. #therarefair2023
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Who to follow
-
Remember The Girls
@remember_girls -
Rare Advocacy Movement
@RareAdvocacy -
Taylor Kane
@rarelikeher -
Luke Rosen
@lukebrosen -
dazzle4rare
@dazzle4rare -
Rare Action Network
@RareAction -
DISORDER: The Rare Disease Film Festival
@DisorderRare -
Effie Parks
@OnceUponAGene -
KAT6 Foundation
@KAT6foundation -
Rare Disease Ghana Initiative
@RareDiseaseGh -
MamaBearforRare
@MamaBearforRare -
Andra Stratton
@livinlavidalopo -
@raregivers
@raregivers -
heidi bjornson
@heidibp -
David Ross
@mensraredisease
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