@sjsawareuk Profile picture

SJSAwareUK

@sjsawareuk

Our mission is to bridge the gap for those affected by SJS/TEN through info & support from the point of diagnosis & through their recovery & adaptation process

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Please check out the video below to learn about the Yellow Card Biobank Pilot Project and how you can help!❤️ youtube.com/watch?v=bDq2p5…


SJSAwareUK Reposted

We are looking forward to our Yellow Card Champions meeting this morning #yellowcardscheme #champions #patientysafety #reportsideeffects

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SJSAwareUK Reposted

We’ve scanned our 50,000th participant as part of the world’s largest imaging study to scan 100k - an amazing achievement! #Thankyou to #UKBiobank participants & staff members who’ve helped us reach this fantastic milestone. Received an invite? Book today: 0800 0276 276


SJSAwareUK Reposted

🔔 We are reminding healthcare professionals to ensure patients are aware of the known side effects of glucagon-like peptide-1 (GLP-1) receptor agonists For more information and to read the full announcement, visit ➡️ bit.ly/3YmIDN9

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SJSAwareUK Reposted

🔔 Have you had a severe reaction to allopurinol or direct oral anticoagulants? If so, we need to hear from you. To find out more about the Yellow Card Biobank, watch our short animation here ➡️ bit.ly/3QQE3UX

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SJSAwareUK Reposted

📣 We are asking patients to report, without delay, any safety problem with their continuous glucose monitor or insulin pump. To learn more and to review the guidance, visit ➡️ bit.ly/3BzZKn3

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SJSAwareUK Reposted

📣 Read our case study highlighting the importance of Yellow Card reporting in identifying potential safety problems with diabetes management equipment ➡️ bit.ly/3BzZKn3

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SJSAwareUK Reposted

🛎️The Commission on Human Medicines (CHM) is looking to appoint a Vaccination and Immunisations Specialist to the Clinical Trials, Biologicals and Vaccines Expert Advisory Group (CTBV EAG) 🛎️ To find out more about this role and to apply, visit 🔗 bit.ly/3KgTpxb

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Please take part in this study if you can. Its important for the public and professional to learn more about Adverse Drug Reactions!

📣 We have collaborated with Genomics England to deliver the Yellow Card Biobank study to research severe adverse reactions experienced by some patients to two medications - allopurinol or direct oral anticoagulants. Find out how to get involved at ➡️ bit.ly/3QQE3UX

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SJSAwareUK Reposted

📣 We have collaborated with Genomics England to deliver the Yellow Card Biobank study to research severe adverse reactions experienced by some patients to two medications - allopurinol or direct oral anticoagulants. Find out how to get involved at ➡️ bit.ly/3QQE3UX

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🎗️ SJS/TEN: Rare but life-changing. Discover how advocacy drives awareness, research, and support for these conditions. Together, we can make a difference! 💪 #SJSAwareness #RareDiseaseAdvocacy shorturl.at/4iB19

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💊 Understanding Stevens-Johnson Syndrome (SJS) is crucial for safe medication use. Learn about triggers, prevention, and the role of genetic testing to navigate treatment options effectively. 🌡️🧬 #SJS #MedicationSafety #Healthcare shorturl.at/XjVjA

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🧬 SJS/TEN: When meds meet genetics in a dangerous immune dance. 💊 Discover the science behind this rare skin condition. From T-cells to targeted therapies, unravel the mystery! 🔬🌟 #SJSAwareness #RareDiseaseResearch shorturl.at/pdngK

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Please watch this video below to learn about the Yellow Card Biobank project. Its goal is to improve understanding of how a patient’s genetic makeup may increase their risk of harm from side effects of medications. youtube.com/watch?v=pL88sJ…


🌟💪 Life after SJS: Discover the journey of hope and healing. #SJSRecovery #NeverGiveUp shorturl.at/fX2wD

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🌟💪 Life after SJS: Discover the journey of hope and healing. #SJSRecovery #NeverGiveUp shorturl.at/fX2wD

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🔍👨‍⚕️ Navigating SJS care in the UK? Discover how to find the right specialists for this rare condition. #StevensJohnsonSyndrome #RareDiseaseAwareness shorturl.at/rGtr0

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🤲 Supporting a loved one with SJS/TEN? Your care matters! Educate yourself, offer practical help, and be there emotionally. Remember, recovery is a marathon - your sustained support is key. Stay strong together! 💪❤️ #SJSAwareness #CaringForLovedOnes shorturl.at/IOv0d


🧬🔬 Genetic insights into Stevens-Johnson Syndrome empower families to make informed health decisions. Stay informed and advocate for better care. #Genetics #HealthAwareness 💡👨‍⚕️ shorturl.at/tvHoQ

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🔥 Stevens-Johnson Syndrome (SJS) is a severe, life-threatening condition. It turns the body against itself, causing immense pain and lasting scars. Organizations like SJS Awareness UK offer hope and support. #SJS #Awareness #Support shorturl.at/UlMdT


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