@n7_davidjames Profile picture

David

@n7_davidjames

Catholic, Husband, Father, Love my 3 Children, Epilepsy does not define me 💜, 50 year fan of Tottenham Hotspur, rugby, cricket & enjoy my Guinness

Joined October 2021
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So very true.

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425 days without one. Yes I appreciate I am blessed. But can’t help but feel so disappointed ended today. Start counting all over and have to wonder and have family wondering if I will cope. 😔


I have a red eye flight coming up and invariably can’t sleep and land wherever and usually the next day have a seizure. No other flight. Anyone has any ideas?


David Reposted

Please I have a retweet? It's Epilepsy Awareness Week this week and I'm trying to spread awareness! 💜 @adamhillscomedy @joshwiddicombe @alex_brooker

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Just about two and a half months without a seizure and then today for no reason!!! had one. 😩 Have to reset to clock. So very annoying. Really despise the nuisance I cause the family and this brain haze and headache.


Postictal the worst of the seizure for me

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Is there anyone who has the unfortunate postictal phase and managed to control it somehow? The pain and humiliation of the seizure is not as bad as the postictal for me


Retweeting what I reckon is so true and needs to be acknowledged

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Wishing everyone a seizure free and restful weekend ahead


Anyone have an idea how to effectively restrain/manage the postictal phase? In mine I wander around and push family away who want to help. I do not realise I do it. Latest episode I resisted and fell into a glass table in a hotel and landed up in hospital overseas. Ideas please


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