KJ Cassells
@myyearcrashDanced around the ME/CFS spectrum for 6 years, currently landed in Moderate/Housebound. I write a bit about the ME story. #ME #CFS #ChronicFatigue #pwMe
myyearinacrash.blog/2024/09/05/i-b… I Bought A Bike. Short read (5 mins) about my last 9 months from crash to remission, to crash again. #MECFS #ME #CFS #Chronicfatigue #severeme #longcovid
Had a specialist course today (on energy mgmt), mostly people new to the illness, unsure what was happening to their body. Felt like an elder statesmen, giving advice where the course leader couldn't. Felt so bad for the journey these people were about to embark on. #MECFS
Living with a chronic illness is like a crash course. Gain understanding of grief, loss of a life once lived, greater perspective and appreciation of all the things you previously took for granted. Dream of being able to use your lessons and live again. #MECFS #LongCovid
My baseline has been slowly improving the last two weeks, then BAM I've been hit by a virus, and it's just a roulette where my baseline will end up afterwards. No end to the frustrations. #pwME #MECFS #LongCovid
I'm thick skinned when it comes to misunderstandings of chronic illnesses, but comments like 'ah I wish I didn't have to work either' are the closest to triggering me. I loved work, it gave me self-worth, social fulfillment and financial independence. I miss it. #pwme #MECFS
My fellow ME or LC sufferers would rock this competition. x.com/Johnny_suputam… #pwME #mecfs #LongCovid
competitive daydreamers gathered in Tokyo today for the “2024 Space-out Competition” Heart rates were checked and anyone who laughs, talks or dozes off was eliminated during the 90 min competition.
In any recovery story there's a loved one, a hobby or some form of treatment that is seen as the turning point. We try to see cause and effect in a senseless and frankly bizarre illness. No two cases of ME/CFS are the same and everyone's recovery story is there's to tell.
A short read (3 min) Defending ME. Are we just lazy? Latest figures saying 1.2millon suffer in UK, should we have to always beat the drum? #pwME #MECFS myyearinacrash.blog/2024/05/16/def…
Anyone else watch films and think 'geez, that looks exhausting' and it's just someone running up the stairs. #pwME #LongCovid
A short read about being a chronic cynic. Being cynical with a Chronic Illness #me #cfs #longcovid myyearinacrash.blog/2024/06/19/cha…
myyearinacrash.blog/2024/06/27/cha… The National, Elton John and a Van Morrison Cover band. My story of three gigs which summed up my road to recovery from #MECFS #chronicfatigue #longcovid
Been a week bed-bound but finally able to write again. What a kicker #mecfs #cfs #chronicfatigue #longcovid is. Here's another funny read of my year long crash. myyearinacrash.blog/2024/06/12/cha…
'The metaphor used to describe ME/CFS is that of a phone battery...to stretch out the metaphor even further, the phone screen fails to light up, the in-built speakers aren’t working properly and just opening one app can lead to the phone freezing.' myyearinacrash.blog/2024/05/28/cha…
Wanna read how my stir-crazy CFS riddled mind befriended a squirrel called Little Bushy. myyearinacrash.blog/2024/05/23/cha…
What we reckon #ME #CFS community, we all got Intergalactic powers as well? #longcovid #chronicfatiguesyndrome
I've always struggled with what I can and can't listen to when in a crash, #CFS #ME suffers know what I mean. But I've personally found piano based music helps soothe and relax, w/o headaches. And this new @kellymoran album is incredible youtube.com/watch?v=pzex9V…
If anyone has seen that MyPicture advert and feels like it's a crime to Stevie Wonder, I'm with you. And I've written about it here - myyearinacrash.blog/2024/05/19/cha…
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