Flor 🥀
@lugaresxcomuneswe need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
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The latest paper from the Cornell Center is available at the PNAS website. Our study implicates T cell exhaustion in ME/CFS.
The Guardian: '‘I was in denial about it’: actor Matt McGorry on having long Covid' 'Orange Is the New Black and How to Get Away With Murder star speaks about the disease and another way of looking at health' theguardian.com/wellness/ng-in…
I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwME 1/
On Nov 25 the online encyclopedia Wikipedia featured its article about #MECFS on their front page. Such feature articles are considered as one of the best articles according to Wikipedia's editors & are used as examples for writing other articles. en.wikipedia.org/wiki/Myalgic_e… #CFS
Here are the results from @organichemusic’s incredible massive survey into the treatments that help people with ME and Long COVID
Oh this is exciting! This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most know her as @organichemusic I helped screen & edit early versions of the survey, which was v long but comprehensive! 1000’s of you took part! medrxiv.org/content/10.110…
No disabled person should be subjected to assisted dying where government and society have systematically denied disabled people the necessities of life.
ME denialism rarely looks like claiming "ME doesn't exist". It looks like: - paying excessive attention to the mental health of people with ME, in ways that suggest *that* is the cause of their physical symptoms - only sharing miraculous recovery stories
1) The German agency for research BMBF has published the results of their call for proposals on ME/CFS. Approximately € 15 million is going to 7 projects and research networks over the period 2024-2027.
🆘️ 🔴 No existe una enfermedad que se llame síndrome de sensibilización central, ni un conjunto de enfermedades que se llamen así. Lo explicamos ⬇️ 👉 M. Yunus, fue el primero q "propuso" el concepto "Síndromes de Sensibilización Central" para unas enfermedades en las que…
𝗰𝗼𝗺𝘂𝗻𝗶𝗰𝗮𝗰𝗶𝗼́𝗻 de 𝗽𝗼́𝘀𝘁𝗲𝗿 🔊Fremanezumab es efectivo en pacientes con síndromes de sensibilización central (SSC) comórbido a la migraña 🖐🏾Alicia Adán (MIR3)
Love in the Time of COVID: Psychiatric Lessons from Oxytocin and the “Endocrine Organ” This article has one of the best titles! and the conclusions are pretty helpful as well given the role of oxytocin and 'tight junctions' aka 'leaky gut'. Gut-brain axis!!!!…
Endothelial inflammation in COVID-19 "Disrupted endothelial function underlies the multiorgan complications of COVID-19" with long term effects in #LongCovid @ScienceMagazine (and yes, endothelial dysfunction in acute and LC was known in 2020-1) science.org/doi/10.1126/sc…
Very sad to hear about the passing of Byron Hyde. There are few who genuinely did so much for #myalgicencephalomyelitis RIP and thank you for everything 💙
Terribly sad news: Another giant in the M.E. field has died. Canadian doctor Byron Hyde, a larger-than-life investigator and thinker, who in his last years lived mostly in Sicily, died November 10. For several decades, nothing deterred Hyde from seeking clarity in ME.
It's grotesque how a recent #LongCovid paper has tried to twist the failure of a handful of biomedical trials to-date, failure to properly phenotype patients, and failure to progress biomarkers identified in research into some perverse argument for CBT being 'the only answer'...
Deeply moving photographs "Jeremy Jeffs is a filmmaker & photographer whose experience of living with #ME inspired him to talk to & photograph other #pwME. Here 9 #pwME reveal the devastating difficulties #ME brings" @ExploreWellcome #MEcfs #MedTwitter wellcomecollection.org/stories/living…
A friend just sent me this. ME/cfs is on the English wikipedia homepage today.
Anyone see Wikipedia's featured article today? It is about ME/CFS! Each day, a summary of one of Wikipedia's features articles appears at the top of the main page as "Today's Featured Article". en.m.wikipedia.org/wiki/Main_Page Check it out & go to meaction.net to learn more.
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