PaulineLaybourne MBE
@laytwitRetired Civil Servant. Alpha 1 and I’ve had a double lung transplant. Greatest moment of my life was receiving the MBE for services to police families 💙
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There are over 7k rare 72% of rare diseases are genetic A disease is considered rare when it affects fewer than 1 in 2,000 people On average it take about 4-5 years to get a diagnosis #alpha1awareness #RareDiseaseDay #RareDiseaseDay2024 #RareDisease
I just signed the @DailyMirror petition calling for Alan Bates, the ex-postmaster who led the decades-long fight to expose the Horizon system scandal to be awarded an honour. Will you sign too? #MrBatesVsThePostOffice you.38degrees.org.uk/petitions/give… via @38degrees
AADR originated from southern Scandinavia where the highest frequency of the mutation was found, suggesting that the mutation was dispersed by migration patterns matching areas of Viking conquests across norther Europe, between 800 and 1100 AD #alpha1awareness
Panniculitis is an inflammation of the panniculus which is the fatty layer under the outer layer of the skin. Alpha-1 is one of the causes. #alpha1awaress
The liver produces the protein alpha-1 antitrypsin. The job of AAT is to protect the body from inflammation, especially in the lungs. People with Alpha-1 their AAT is malformed and cannot be released by their liver. #alpha1awareness #alpha1awarenessmonth alpha1.org.uk
It’s #WorldHeartDay 🫀 – let's spread the word to encourage more people to confirm their decision on the NHS Organ Donor Register. Thanks to the kindness of donors and their loved ones, 207 hearts were transplanted last year in the UK to save lives. ➡️ orlo.uk/dEsbo
Our beautiful new sculpture made out of recycled materials was erected in the organ donation garden at Nobles today. #rememberingandrecognising #organdonorheroes #giftoflife @NHSOrganDonor @PublicHealthIOM @sandi_sund
Over 11 years ago Sophie received her precious new #lungs thanks to a courageous #donor and their family agreeing to #OrganDonation. Sophie was diagnosed with #CysticFibrosis when she was a few days old and shares her story ❤️ facebook.com/30838101964460…
Hold the Met Police criminally accountable for the barbaric killing of two leashed dogs - Sign the Petition! chng.it/NYKy8PbB via @UKChange
When I was waiting for my new heart, I was told my life expectancy would not exceed 2/3 years. Next month, it will be my 4th transplant anniversary. I get to enjoy more time because of my #incredible #donor. Please #shareyourwishes on #organdonation ❤️ #forevergrateful
A #transplant isn’t a cure, it's a form of treatment that allows recipients to have a 2nd chance of life and/or a better quality of life. On this #WorldMentalHealthDay we share #TransplantLife again as having a transplant is an emotional experience ❤️ facebook.com/30838101964460…
Two years ago today a complete stranger passed away and had made the decision to donate their organs. A family out there who will be remembering their loved one. I’ll never forget this selfless lady for giving me the most precious gift of life. 💙 #organdonation #alpha1
So proud of my son! He is donating stem cells today @AnthonyNolan @NHSBT @DKMS_uk #BBMR (British Bone Marrow Association) #giveblood #donatetoday ❤️👏💜💉🩺🩹🩸🩸🫀👨🏻⚕️👩🔬👏
Help one of us win this amazing Early Summer Break for two at Potters Resorts Five Lakes with @PottersResort wn.nr/BzDDsT
It's as simple as that! Thank you if you've already decided to save lives by agreeing to #OrganDonation & have shared your organ donation decision. By sharing this post you may encourage others to share their wishes about their organ donation decision & more lives may be saved ❤
Please get both doses of the COVID-19 vaccine and, when eligible, your booster. Since February, 82% of the patients we have treated for coronavirus have been unvaccinated. One-third of our critical care beds are regularly occupied by people being treated for COVID-19.
JCVI wording a bit clumsy but our reading is that the 6ms timing refers to the THERAPY not the transplant, so we should receive booster unless transplanted AFTER receiving the vaccine….”those who have had therapy for a solid-organ transplant in the six months before vaccination”
A year ago today beautiful Thalia, whose wait for a #heart and #lung #transplant sadly became too long, passed away. Today our very own Abbie, who became friends with Thalia’s Nannie Christine, pays tribute to Thalia. We send our love to Thalia's family ❤ facebook.com/30838101964460…
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