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“Our community urgently needs access to an expanded NHS Parkinson’s workforce and social security support." It was a Budget with big announcements but we await more details to understand whether it will deliver for the Parkinson’s community. Read more 👉🏾 prksn.uk/4ehrNFg
A very positive first meeting of the Parkinson's APPG (re-established following the election). This group brings together the MPs & Lords who will help us fight for better care & support for ppl with Parkinson's. Lots for us to do but feeling hopeful @ParkinsonsUK @ParkinsonsEN
Great to see many MPs and Lords from across @UKParliament at the first All-Party Parliamentary Group (APPG) on Parkinson's. The APPG heard from Katherine, a member of the Parkinson's community, about life with the condition and how they can take action in Westminster.
Great to see many MPs and Lords from across @UKParliament at the first All-Party Parliamentary Group (APPG) on Parkinson's. The APPG heard from Katherine, a member of the Parkinson's community, about life with the condition and how they can take action in Westminster.
“We see the human cost daily. People are unable to live fulfilling and independent lives. People are worried. Families are under extreme stress.” says CSA co-chair @finferg Read our letter to the Chancellor 👇 careandsupportalliance.com/budget-2024/ @hmtreasury @RachelReevesMP #Budget24
Chancellor, don’t ignore social care in the #Budget. As a member of @candsalliance, we're asking the Government to prioritise urgent social care reform in the upcoming budget. We can’t afford to wait any longer. @hmtreasury @RachelReevesMP prksn.uk/4dW7z3E
NEWS: 'We're the forgotten ones' say those who draw on social care, as they ask the Government not to ignore social care in the #Budget. @hmtreasury @RachelReevesMP bigissue.com/news/social-ju…
People living with Parkinson’s face unacceptably long waiting times for specialist care, inadequate access to multidisciplinary support, and unequal access to advanced treatments. Help shape the future of the NHS in England by sharing your experiences via the link below👇
Have your say and share the ideas you have for change. Help us shape the future of the NHS. ➡️ change.nhs.uk
💙Share our content to reach as many people as possible. ✊🏽 Help us tell the new UK government to make mental health a priority by signing our petition. bit.ly/3YrCznX 🫴 Donate or fundraise for us so we can continue to be there for people who need us.
Together, we told MPs what people with Parkinson's need: Timely access to a full range of NHS professionals. A boost for Parkinson's research. Strengthened employment rights for a healthier working life.
We want to say a huge thank you to the volunteers from the Parkinson's community who joined us @LibDems, @UKLabour & @Conservatives conferences this year. Christine, Mark, Shafaq, Syed, Katherine & Maria shared their experiences of life with Parkinson's with Ministers & MPs.
We're here at Conservative Party Conference in Birmingham! Over the next few days our fab volunteers Katherine and Maria will be letting Conservative MPs and delegates know what it's like to live with Parkinson's and what they can do to help. Say hello if you see us. #CPC24
Parkinson’s is a complex, fluctuating and progressive neurological condition affecting around 153,000 people in the UK. I met with Parkinson’s UK at #Lab24 to discuss ways to improve healthcare, employment, and research for people living with Parkinson’s. @ParkinsonsUK
What a privilege to be able to tell my story & sit on a panel with @crassell2 @CamilleBCarroll @SKinnock @MarkIMardell thank you @ParkinsonsUK #parkinsons
Packed few days ahead at #Lab24 conference! Along with our volunteers, we’re sharing our community’s experiences of Parkinson’s with Government MPs. We’ll let them know how they can champion Parkinson’s in Westminster & create real change. Come & say hello if you see us!
🔴 NHS commits to ending deadly delays in Parkinson medication first revealed by The Telegraph telegraph.co.uk/news/2024/09/1…
That's a wrap on @ParkinsonsUK time @LibDemConf! We met with MPs @Steffanaquarone @CliveJonesMP @VikkiSlade72 @GideonJAmos & attended several events to share our community's stories. Huge thanks to our fantastic volunteer Christine who championed our community brilliantly!
We had wide-ranging conversations on issues like employment rights, NHS healthcare & Parkinson's research, & look forward to continuing the dialogue in Westminster. Next stop @UKLabour conference in just a few days to raise the profile of Parkinson's with the Government! #Lab24
Beautiful day in Brighton. Kicking off with an important discussion on the role of tech in social care with former Minister Paul Burstow, @Steffanaquarone @fivanmierlo and Clive Gilbert of Policy Connect. #LDconf
Thanks to @ParkinsonsUK for a great meeting. we need more research into this crippling condition, improved access to benefits & workers rights to keep those living with it in work & better integrated Neuro care. I’ve agreed to join APPG to offer my support in Parliament
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Who to follow
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Siân Gregory
@SianGregory7 -
alison day
@atday_19 -
Parkinson's UK Northern Ireland
@ParkinsonsUK_NI -
Alzheimer's Society Campaigns
@AlzSocCampaigns -
Rowan Wathes
@RowanWathes -
EdinburghParkinsonsBranch
@EdinburghParki2 -
Monica Mason
@MonicaJMason -
Christoph Moosbauer 🇺🇦 🇮🇱
@chrmoosbauer -
Laura Cockram 💙💙
@Lozzaram -
Mark MacDonald
@markjamesmacd -
Carlotta Rauch
@CarlottaRauch -
Laura Vicinanza
@laura_vicinanza -
Kathleen Falconer
@kath_falconer -
Danny
@DannyHackett -
Elliot Dunster
@ElliotDunster
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