Dr Ros Taylor 💜
@hospicedoctorPalliative physician. Former Clinical Director @hospiceuk Med Director @harlhospice Founder of #HPAL @hpal_medindex info site #rememberPhoebe💜
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@drkathrynmannix
@CicelySaunders1
@PalliativeMedJ
@BMJ_SPCare
@EndofLifeStudy
@CSI_KCL
@hospiceuk
@PCRScommittee
@APMPostTweets
@PalliativeMed_j
@IOELC
@kesleeman
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@ProfMarkTaubert
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Off to Montreal for the McGill Int Pall Care Congress Will be tweeting with #mipcc2024 Much to learn from Canada 🍁 re #assisteddying And much else !
“…somebody with a terminal condition and very little time left has only BAD options” says @kimleadbeater Err..palliative care can be a GREAT option if ONLY it was more widely available AD law may change - but huge investment in palliative care is critical #AssistedDying
#ConfMSH24 Our Conference was much enjoyed yesterday Death, dying and all that jazz! Lectures will be on YouTube soon Much learning ! The jazz theme - passion, creativity and improvisation in palliative care was a thread thru the day
#ConfMSH24 Heather Wells Consultant Clinical Psychologist discussing death anxiety Why me? Why now ? What next ? ‘What’s bothering you most about dying?”- simple brave questions Often very practical responses ‘My husband doesn’t know how to do my daughters hair’ #DMAW24
#ConfMSH24 French proposals re assisted dying Also proposing BILLIONS of Euros for palliative care Could we do this in the UK ? Balancing care, compassion and autonomy #DMAW24
#ConfMSH24 Nurse Consultant Jo Fernandes giving a nuanced talk on Assisted Dying It is so not a binary issue #DMAW24 #AssistedDying
ConfMSH24 More drama at home! Husband started measuring up his wife after her death ‘Why are you measuring her?’ asked the nurse… ‘Oh I am going to put her in our chest freezer - to keep her at home for a while!’ Need to talk to families about care after death ! #DMAW24
#ConfMSH24 Now it’s ace CNS Team Lead Barbara van Brummen @CNWLNHS sharing stories of drama at home caring at the end of life What do people appreciate ? #DMAW24
#ConfMSH24 Nana Zhvitiashvili Art Psychotherapist sharing a case of how to support a bereaved child Adversity Organised Growth Fabulous therapeutic art work by children The questions they ask … #DMAW24 #Grief
#ConfMSH24 Paula Boyd talking about how to support children who face loss Huge numbers of children with neurodiversity being referred for support after loss 27000 parents die a year - that’s so many children affected Early conversations matter #DMAW24 #Grief
#ConfMSH24 Colleague senior nurses Mark Troup and Amie Lacey doing an amazing and shocking dramatisation of BOB admitted to Hospital at 1am from a care home …. And the outcomes were f a sad suffering over-medicalised death in hospital How can we do better ?
#ConfMSH24 HPAL getting mentioned a lot at our Conference @hpal_medindex Opioid conversions Help for breathless patients And so much more ! hpal.medindex.co.uk/c #DMAW24
#ConfMSH24 ‘Time is not a question of length, it is a question of depth’ Prof Ann Gallagher @Bruneluni Reminds us of this Cicely Saunders quote
#ConfMSH24 Prof Ann Gallagher Talking about the SLOW movement Storytelling is part of this “Stories give us the steer on how to live … and how not to live
#ConfMSH24 Prof Ann Gallagher tells us of her childhood in Donegal ‘Wake’ was part of the culture - with dead bodies in the front room … Has death disappeared now ? #DMAW24 @KevinToolis
Newly branded HPAL hpal.medindex.co.uk/c Demo at Harlington / Michael Sobell Conference tomorrow #ConfMSH24 #DMAW24
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Who to follow
-
Kathryn Mannix
@drkathrynmannix -
Cicely Saunders Int
@CicelySaunders1 -
Palliative Medicine
@PalliativeMedJ -
BMJ SPCare
@BMJ_SPCare -
End of Life Studies
@EndofLifeStudy -
Cicely Saunders Institute at King's
@CSI_KCL -
Hospice UK
@hospiceuk -
PCRS
@PCRScommittee -
APM
@APMPostTweets -
Journal of Palliative Medicine
@PalliativeMed_j -
IOELC
@IOELC -
Katherine Sleeman (also on Bluesky)
@kesleeman -
Libby Sallnow
@libby_sallnow -
Prof. Mark Taubert
@ProfMarkTaubert -
Dying Matters
@DyingMatters
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