Teresa Holm
@holmmom#CureFA ❤️💙 https://t.co/NyFsRnmlUV
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@Friedreichsatax
@CureFA_org
@AtaxiaFacts
@Carolinegilhop
@michael_gehr
@jonathonaut
@BLamascus
🏈GAMEDAY GIVEAWAY🏈 I’m going to be choosing one lucky #Vikings fan to win a handmade wood art piece of their choice! #SKOL To Enter: 1. Like and Retweet this post 2. Tag any and all Vikings fans 3. Follow me Winner announced via retweet tonight @ 7:30 PM CST
This April we're teaming up w/ @CureFA_org to help raise $$ in the fight vs Friedreich's Ataxia -a debilitating, progressive neurological childhood disease. Join us April 13 at home vs Cal U- all funds raised that day will go to FARA! Click here to help: curefa.org/ClarionBaseball
Here is a chance for every rare disease patient to support legislation that directly impacts their condition. Email your representatives and let them know we need more treatments and the Orphan Drug Act can make that possible. #OrphanDrugAct #CureFA
Today, @GKButterfield & @RepGusBilirakis introduced a resolution that celebrates the success of the #OrphanDrugAct & calls for its continued support. Learn more about the resolution & how you can help here: ow.ly/CjUM50nulbJ
👋 Greetings from Australia! 🇦🇺 After presenting about the international research effort and the importance of patient engagement yesterday at @FARAaustralasia 13th annual FA symposium, Jen Farmer and Ron Bartek presented the Ronald J. Bartek Acting Together Award🙌
@KyleABryant if finding a cure for FA meant I had to do this every week.. it would be a small price to pay...my daughter meg and you kyle inspired me the whole way @2DDPodcast @BBCNews
They've officially done it! The #Miles4Meg team have completed a Three-Day EPIC cycle all the way from Bisham to the Summit of Snowdonia! Thank you so much for raising vital funds for FA research: bit.ly/2O2G1ls #FridayFeeling
We are excited to announce that we will be playing Indiana University on October 20th, 2018 at Bosse Field! This game will benefit a great organization in FARA (Friedreich’s Ataxia Research Alliance) Tickets go on sale September 10th! #USIBaseball #CureFA
Thanks David. Small correction, we are closer to 10X bioavailability than 5X. Appreciate your support and input.
Proprietary drug formulation of resveratrol with 5X bioavailability headed to the clinic. Data Ive seen is impressive. "I am not aware of any other safe drug candidates that induce robust mitochondrial biogenesis, let alone in the brain.” #longevity lnkd.in/ex6Qs_J
Proprietary drug formulation of resveratrol with 5X bioavailability headed to the clinic. Data Ive seen is impressive. "I am not aware of any other safe drug candidates that induce robust mitochondrial biogenesis, let alone in the brain.” #longevity lnkd.in/ex6Qs_J
This week the DOJ argued the law that makes insurance companies cover people with pre-existing conditions is unconstitutional. That's wrong & I'll fight it. Join me and stand up for people like my friend Pete who has ALS—a pre-existing condition: action.amyklobuchar.com/p/salsa/web/co…
Help put a stop to the Department of Justice deeming insurance coverage for Pre-Existing Conditions unconstitutional: action.amyklobuchar.com/p/salsa/web/co…
This is for @NAF_Ataxia @CureFA_org @MSACoalition @MSAtrust @cureataxianow @CureFA_org @AtaxiasARG @KyleABryant @ataxiaandme @RareDiseases @MSAtrust @MSAawareness @ATCure @Friedreichsatax @FARAaustralasia @TheCerebellum @CadentTx @biogen @pfizer
Ataxia trials desperately need a Patient Reported Outcome Measure for Ataxia. Please share this video with ataxia families. e-mail us at cerebellum@mgh.harvard.edu for the link to complete patient and caregiver surveys anonymously. If you’re an ataxian, PROM-Ataxia is for YOU!
🤘 GIVEAWAY ALERT: Retweet to win 2 TICKETS to tonight's @Pink concert at the @ArmoryMn brought to you by @nomadic_ent_grp! 21+ only, all standard rules apply. Winners chosen at 3pm. [Rules in bio]
🏈 GIVEAWAY ALERT: RT to win 2 tickets to Super Bowl Experience driven by @GenesisUSA *Private Party Courtesy of @Vikings* on Monday, Jan. 29 1-3pm CST. [For official rules, see link in bio] #BoldNorth #SBX
![MNSuperBowl2018's tweet image. 🏈 GIVEAWAY ALERT: RT to win 2 tickets to Super Bowl Experience driven by @GenesisUSA *Private Party Courtesy of @Vikings* on Monday, Jan. 29 1-3pm CST. [For official rules, see link in bio] #BoldNorth #SBX](https://pbs.twimg.com/media/DUq4LjmWsAEH26U.jpg)
🏈 GIVEAWAY ALERT: RT for the chance to win 2 tickets to Opening Night fueled by @Gatorade on Mon. Jan 29 @XcelEnergyCtr! [For official rules, see link in bio] #BoldNorth #OpeningNight
![MNSuperBowl2018's tweet image. 🏈 GIVEAWAY ALERT: RT for the chance to win 2 tickets to Opening Night fueled by @Gatorade on Mon. Jan 29 @XcelEnergyCtr! [For official rules, see link in bio] #BoldNorth #OpeningNight](https://pbs.twimg.com/media/DUpz1mwXkAAO9eX.jpg)
Had to get out of my chair to honor the Vikings helmet😉💜 #bringithomeboys #pepsinflhelmets #pepsinflsweepstakes
ASGCGP is supporting a local cause to fund an immediate, one-of-a-kind Freidreich's Ataxia research study. For every RT, $2 will be donated. Check out the story: argusleader.com/story/news/201…. If she were your daughter, what would you do? #WeCanMakeItHappen #FinishTheFAFund
ICYMI: #Graduate won't let #FriedreichsAtaxia bring her down. #Police officers helped her walk across stage #inspiration #DontGiveUp #cureFA
And they still think you're Twins...
Ya know growing up, everyone did think we were twins, and we ended… instagram.com/p/BVr1_iBhloRw…
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