@govan31 Profile picture

Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ

@govan31

Mother of girls, grandmother of boys - one lost to DIPG. Advocate for DIPG and childhood cancers awareness & research funding, Scottish Independence & Remain

Joined May 2016
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From Logan's 2nd mum: We went to Rothesay today to remember Logan on the day before his 4 year anniversary. 4 years since he died aged 3. Heโ€™s been dead longer than he lived. Let that sink in. We sat on his beautiful memorial bench. A memorial bench for a 3 yo. Let that sink in

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DIPG (Diffuse Intrinsic Pontine Glioma) affects mainly children - average age at diagnosis is just 6 years... My grandson, Logan, was not quite 3 years old on diagnosis...he never saw his 4th birthday ๐Ÿ’” Please be aware, support childhood cancer research & a cure ๐ŸŽ—๏ธ

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

This has the potential to be an absolutely incredible appointment. I need to sit down.

James Timpson OBE @JamesTCobbler has been appointed Minister of Stateย (Minister for Prisons, Parole and Probation)ย in the Ministry of Justice @MoJGovUK

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

๐Ÿšจ End of life care has been overlooked and now the shortfall in support is at a critical level. We can't let this crisis continue. Whoever wins the election must take action. Agree? Sign our petition now.


Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

URGENT! Pls share. The last chance to register to vote in the General Election is 11.59pm tomorrow Tue 18 June. Potentially 8m aren't registered at their current address. Here's 4 key facts... 1) You can do it online here registertovote.service.gov.uk/country-of-resโ€ฆ 2) It's good for your finances.โ€ฆ


Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Seems fitting that our editorial "Diffuse midline glioma, H3K27-altered: Illuminating the dark side of the moon" discussing DMG's lack of treatment vs the pioneering discoveries of Sidney Faber is published while @PNOC_kids meeting @DanaFarber in Boston academic.oup.com/neuro-oncologyโ€ฆ


Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Please read this thread the stark and sad facts of a #DIPG diagnosis that only affected families can truly comprehend ...they are brutal and shouldn't be a reality. We're trying ,a brighter outlook cannot come soon enough ๐Ÿ’— #billythebrave

Weโ€™re coming to the end of #braintumourawarenessmonth and I wanted to let you know a bit more about DIPG. DIPG is short for Diffuse Intrinsic Pontine Glioma. It completely ravages its victims - mostly all young children like Billy.

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Weโ€™re coming to the end of #braintumourawarenessmonth and I wanted to let you know a bit more about DIPG. DIPG is short for Diffuse Intrinsic Pontine Glioma. It completely ravages its victims - mostly all young children like Billy.

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Given that Ministers have had the final @bloodinquiry recommendations on infected blood scandal compensation since April 2023, many will suspect that this story might well apply more widely than just the Post Office Horizon scandal.

๐Ÿ”บEXCLUSIVE: In an interview with The Sunday Times, Post Office chairman Henry Staunton claims that he was instructed by a senior civil servant to stall on compensation payments to Horizon victims. The government said this was โ€œincorrectโ€ ๐Ÿ”ฝ thetimes.co.uk/article/post-oโ€ฆ



Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Itโ€™s international childhood cancer day, there are no other words to say but , Iโ€™m sorry itโ€™s happened to you and your family. ๐Ÿงก๐ŸŽ—๏ธ๐Ÿฆ‹

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

โ€œToday is International Childhood Cancer Day. This collage contains all the children that I put into new collages in September 2019, children with many different cancers. The photographs were submitted to posts I made. A total of three hundred children and young people who are noโ€ฆ

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Today is International Childhood Cancer Day Share The Love โค๏ธ ๐ŸŽ— #KeepSmilingTilly #BrainTumour #Cancer #ChildrenWithCancer #ChildhoodCancer #Cancer

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Today is International Childhood Cancer Day. Childhood #cancer impacts millions of children (0-19 years) worldwide, but it is not the same as adult cancer. Find out how genetic factors, access to care & social support play a role in cancer outcomes bit.ly/2NeFF8B


Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Today on International Childhood Cancer Day, join us in raising awareness for this disease that takes away too many childhoods. We will keep working until there is a cure. Share this post to amplify this message. ๐Ÿงก ๐Ÿ’› #ICCD #ChildhoodCancer #DefeatDIPG

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer


Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Today is International Childhood Cancer Day. We recently launched the Children and Young People Cancer Taskforce to help save lives and reduce the long-term impact of childhood cancer. Find out more: gov.uk/government/newโ€ฆ #ICCD2024

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Very glad our campaign to get federal support for #DIPG #DMG research & clinical trials has been heard & actioned. Thanks Minister @Mark_Butler_MP, I know the Australian paediatric brain cancer community will make the most of this opportunity#DunLab @UON_research @HMRIAustralia

This is great news ๐Ÿ‘ Watch Maddy's adorable reaction here: bit.ly/49otG11

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

This #WorldCancerDay let's acknowledge equity of access, celebrate the advances but know those made do not reach everyone. #DIPG remains lethal with only 10% of child patients surviving beyond 2 years. They need our support ๐Ÿ’—

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

This will be really important viewing, based on @doctor_oxford excellent factual book - looking forward to it

Proud to share the key art image for @ITV's BREATHTAKING. @JoFroggatt captures so hauntingly the exhaustion, grit & shellshocked face that so many NHS staff wore. Transmission dates to be announced next week. #NHS ๐Ÿ’™

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Fiona G๐ŸŽ—๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐Ÿ‡ช๐Ÿ‡บ Reposted

Worth a reminder that @RishiSunak has overseen record delays and backlogs in the criminal courts - waits of 5 years are now not uncommon in rape cases - and has shown not a shred of interest in fixing it.

Exclusive: Rishi Sunak will fast-track migrant appeals against deportation to Rwanda by drafting in 150 judges & freeing up courtrooms in bid to stave off mass Tory revolt No 10 believes this deals with rebel criticism that courts will be clogged up with individual claims.โ€ฆ



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