Global Parents for Eczema Research
@eczemaresearchGrassroots, parent-run nonprofit that advances research on pediatric #eczema & improves quality of life for families. Host of @eczemabreakthroughs Podcast!
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@nationaleczema
@MyEczemaTeam
@EczemaOutreach
@PPopDerm
@PeDRAResearch
@_BDNG
@eczemasociety
@andy1online
@EczemaNoMore
@alifewitheczema
@IADPO
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Until now, the gut microbiome hasn't been used to make clinical diagnoses. That may change. A new report on its utility for non-invasively diagnosing inflammatory bowel disease. nature.com/articles/s4159… @NatureMedicine @Siew_C_Ng
#Allergicdiseases are characterized by abnormal immune responses to ordinarily innocuous environmental substances, leading to inflammation and a variety of clinical symptoms. Treatment approaches have advanced significantly, incorporating various strategies to manage symptoms and…
Eight measures related to the experience of living with eczema and provision of medical care and treatments compared in 12 countries. UK not doing so well?#eczema @eczemaresearch improveeczemacare.com/dashboard
Glad to see this used to ask these kind of questions!
Eight measures related to the experience of living with eczema and provision of medical care and treatments compared in 12 countries. UK not doing so well?#eczema @eczemaresearch improveeczemacare.com/dashboard
Where are the NICE eczema guidelines?
Perfect skin images online have nothing to do with reality 🤳❌There is much more to the #AtopicEczemaUnfiltered lives of patients. Let’s ensure they are heard and receive the care and timely treatment they need! Join World #AtopicEczemaDay, 14 Sept 🖇️ efanet.org/campaigns/worl…
You can find out more on our #GUIDEMAP website : sites.manchester.ac.uk/guidemap/guide…
For this year's #NationalEczemaWeek, we'll be sharing short videos from our 'Just One Thing' series, sharing views from the eczema community on 'just one thing' that they'd like others to know. 1st video is in the @eczemasupport post below. @UK_DCTN @eczemaresearch @UoNOutreach
Eczema improves with age SOMETIMES @CEBDNottm @UK_DCTN @eczemasociety @eczemaoutreach @EFA_Patients #eczema #AtopicEczemaDay #EczemaWeek #eczemaresearch buff.ly/47NMN4x
In this 'Just One Thing' video, a Consultant Paediatric Dermatologist talks about how you can find support and information to help you manage your eczema #NationalEczemaWeek @UK_DCTN @eczemaresearch @UoNOutreach
Eczema - you are not on your own @CEBDNottm @UK_DCTN @eczemasociety @eczemaoutreach @EFA_Patients #eczema #AtopicEczemaDay #EczemaWeek #eczemaresearch buff.ly/47NMN4x
Another 'Just One Thing' video for #NationalEczemaWeek. Children's allergy nurse Lisa Clarke gives advice on reducing the risk of food allergies in babies with eczema @UK_DCTN @eczemaresearch @UoNOutreach
Advice on food introduction for babies with eczema @CEBDNottm @UK_DCTN @eczemasociety @eczemaoutreach @EFA_Patients #eczema #AtopicEczemaDay #EczemaWeek #eczemaresearch #weaning buff.ly/47NMN4x
The sound of silence: where are the voices of patients in eczema guideline development? #eczema @eczemaresearch @andy1online @MarioPicozza onlinelibrary.wiley.com/doi/10.1111/bj…
That would be amazing, the more who can benefit from this important research the better! 🙂
Some children will outgrow #eczema, but many won't (as many as 40%). Waiting is not a strategy. #Eczema should be adequately treated even if the promise of "outgrowing eczema" is on the horizon. Meme credit: Global Parents for Eczema Research #atopicdermatitis
Today our 2024 judging panel met to consider and choose this year's finalist ideas for our Big Ideas for #Eczema Research Challenge! We're so grateful to collaborate with this esteemed panel of researchers and parent/patient leaders! #atopicdermatitis
"My Life With Eczema" video. For children everywhere who have #eczema, you are not alone. There are things that can help you get better! vimeo.com/754262863
Happy to see this coverage of our Global Scorecard Project which is a collaboration between @eczemaresearch and 14 patient organizations worldwide. This article features data from our Argentina patient survey, collected, analyzed and published in partnership with @somosAADA!
Disease-specific education, shared decision-making, and addressing mental health concerns and financial burdens are key priorities in optimizing care for #atopicdermatitis patients and caregivers in Argentina. dermatologytimes.com/view/supportin…
BREAKING: The @US_FDA accepted the supplemental new drug application (sNDA) for tapinarof cream (Vtama) treatment of #AtopicDermatitis. Want to learn more? View our summary of the announcement: hcplive.com/view/fda-accep… #eczema
🎗REMINDER! The deadline to submit a Letter of Intent for our Childhood #Eczema Prevention Grant is today (April 30, 2024)! GPER will award up to three grants, each up to USD $25,000! For more information visit: gper.org/grants #atopicdermatitis #prevention
But in over 40% it does not. There is a persistent myth that all children will outgrow Eczema and it is not true.
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Who to follow
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National Eczema
@nationaleczema -
MyEczemaTeam
@MyEczemaTeam -
Eczema Outreach Support
@EczemaOutreach -
Paediatric & Population-Based Dermatology
@PPopDerm -
PeDRAResearch
@PeDRAResearch -
British Dermatological Nursing Group
@_BDNG -
National Eczema Society
@eczemasociety -
Andrew Proctor
@andy1online -
Eczema No More
@EczemaNoMore -
A Life with Eczema
@alifewitheczema -
GlobalSkin
@IADPO -
Nottingham Eczema
@eczemasupport -
EczemaSocietyCanada
@EczemaSocietyCA -
LiVDerm
@LiVDerm -
Learna | StudyPRN
@StudyPRN
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