Similar User
@AmyloidosisA
@DaniTomasoni_
@ProthenaCorp
@CarcinoidNETs
@pharmabe
@Ele_naAB
@kristennhsu
@Global_Reg_Svcs
@lshubwales
@TonyMartignett1
@Cappellifrance2
@Ataxia_and_Me
@BioPartner
@BettinaRyll
@paomilani
A multi-system disease needs to be evaluated and treated by a multi- disciplinary team. More centers need to replicate the model of the BU Amyloidosis Center @vsanchorawala @Amyloidosis_BU
We call these things trials for a reason
When a trial in a rare disease doesn’t show positive results the only failure is if data from the trial isn’t shared with the community.
Myeloma Patients Europe's Annual General Meeting is about to start. #MPEAGM2018 #myeloma #patientadvocacy @MyelomaEurope @Syopapotilaat
Detection of Misfolded Forms of TTR in Plasma from Patients with Hereditary ATTR Using Conformation-specific TTR Antibodies. Stop by! #ISA2018
Stop by Prothena booth and add a blossom to the cherry tree to support ARC. @Amyloidosis_ARC @ProthenaCorp #ISA2018
Message from @MorieGertz at #ISA2018: If you’re a cardiologist, nephrologist or oncologist and haven’t Diagnosed #Amyloidosis, you aren’t doing a good job. •Ratio of MM pts to AL pts is 5:1. •renal biopsy for nephrotic syndrome amyloid in 13% •median 3 MDs seen before dx
Great talk on diagnosis of AL amyloidosis by Dr. Gertz. Even today diagnosis is delayed in many patients. #ISA2018 @MorieGertz
Dr. Kevin Alexander from BWH on the increasing reporting of mortality from Amyloidosis in the United States: 1979 - 2015. Over 30,000 deaths. #ISA2018 #amyloidosis
A great first day here in beautiful Kumamoto for #ISA2018. Looking forward to the days ahead with our colleagues from all over the world who are here to discuss research and potential new therapies #Amyloidosis #ThinkAmyloid
Conference President, Professor Yukio Ando, gives a great opening lecture to start off the symposium. Incredible participation from all over the world as shown in the slide! #amyloidosis #ISA2018
Today for #RareDiseaseDay we raise awareness about AL #Amyloidosis. Did you know that this #RareDisease can affect multiple organs? If you are a healthcare provider, visit thinkamyloid.com to learn more #Amyloidosis #ThinkAmyloid
Get the facts about #amyloidosis. Visit the @Amyloidosisfdn website to learn more: amyloidosis.org. Proud to celebrate our 15th year of funding research for a cure. Pls RT on #RareDiseaseDay2018! @KatTimpf @DianaWilliamsNY @RareDiseases @RareAdvocates
Amyloidosis is a rare disease classified by the misfolding of Amyloid protein. In light of #RareDiseaseDay, learn more about how you can support our research in our mission to find a cure: bu.edu/amyloid/donate/ #RareDiseaseDay2018 #Amyloidosis
United States Trends
- 1. $CUTO 5.746 posts
- 2. #tuesdayvibe 3.732 posts
- 3. #GMMTV2025 3,37 Mn posts
- 4. Bill Gates 39,7 B posts
- 5. Canada 435 B posts
- 6. Good Tuesday 34,8 B posts
- 7. #AsWeAre_WithSeungmin 9.338 posts
- 8. #csm185 N/A
- 9. #TTPDTheAnthology 1.442 posts
- 10. Tariffs 154 B posts
- 11. Happy Thanksgiving 22,2 B posts
- 12. hobi 157 B posts
- 13. Hangovers N/A
- 14. Taco Tuesday 7.776 posts
- 15. Alec Baldwin 5.957 posts
- 16. Pitchfork 4.446 posts
- 17. Chanyeol 73,1 B posts
- 18. Buy American 4.811 posts
- 19. Irene 317 B posts
- 20. Toyota 30,2 B posts
Who to follow
-
AMYLOIDOSIS ALLIANCE
@AmyloidosisA -
Daniela Tomasoni
@DaniTomasoni_ -
Prothena Corporation
@ProthenaCorp -
CarcinoidCancer CCF
@CarcinoidNETs -
pharma.be
@pharmabe -
Elena AB
@Ele_naAB -
Kristen Hsu
@kristennhsu -
Global Reg Services
@Global_Reg_Svcs -
Life Sciences Hub Wales
@lshubwales -
Tony Martignetti
@TonyMartignett1 -
Cappelli Francesco
@Cappellifrance2 -
Ataxia and Me CIO 1184030
@Ataxia_and_Me -
BioPartner UK
@BioPartner -
Bettina Ryll
@BettinaRyll -
Paolo Milani
@paomilani
Something went wrong.
Something went wrong.