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@AutismAdulthood
@Spectrum
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Based on parent-report CBCL scores for autistics aged 6-18, comparing "general psychopathology" vs "internalizing/externalizing" factor models & finding "neither model had an acceptable fit" sciencedirect.com/science/articl… "CBCL may not be the most appropriate measure for autistic youth"
"Questionable research practices in the quantitative coding of open-ended data... can undermine scientific progress & harm those affected by the research. Unfortunately, with current standards, these questionable practices remain hidden..." journals.sagepub.com/doi/10.1177/25… autism-relevant
"Frank autism" in autistic & LAD ("loss of autism diagnosis") & typical 12-39 year-olds? molecularautism.biomedcentral.com/articles/10.11… for 33% of autistics, "clinicians... did not have an initial impression of autism"? "LAD individuals are indistinguishable from their NT peers on initial impression"?
Autistic (vs non-autistic) adults were not "slower or more error-prone... during perspective taking and/or belief reasoning" but "committed significantly fewer mistakes" journals.sagepub.com/doi/10.1177/13… "findings cannot be explained in terms of simplistic deficit-based notions of autism"
More on "persistent" vs "non-persistent" autism?--in N=213 children (N=134 persistent, N=79 non) link.springer.com/article/10.100… 32.1% of children classified as "persistent" had ADHD, 34.3% had ID, 6% had anxiety; vs 19%, 0%, 7.6% of children classified as "non-persistent," respectively?
Emotion dysregulation profiles in young autistics? 18% were "persistently self-regulated" & 54% were "moderate & declining" & 28% were "persistently dysregulated"? sciencedirect.com/science/articl… child characteristics "failed to demonstrate reliable associations with trajectory profiles"
"despite minimal baseline group differences, functional connectivity measures were ‘shifted’ differently by each drug probe in autistic compared to non-autistic individuals"? medrxiv.org/content/10.110… "the autistic brain had a greater magnitude of shift in response to any drug..."?
Decades too late, behavior analysts mention "adverse collateral effects" of ABA programs, "such as emotional responding, bursts of dangerous behavior, & the emergence of new topographies of problem behavior—which are often unreported" link.springer.com/article/10.100… autism-relevant, COIs
In the US, "24.2% of counties... have neither a BCBA nor an RBT in residence"? 7.4% of BCBAs (N=3074) were supervising 11 to >51 RBTs? link.springer.com/article/10.100… meanwhile still no evidence that BCBAs or RBTs are more beneficial vs harmful for autistics; and see the undisclosed COIs
"although requiring ethical approval for Patient & Public Involvement & Engagement would be a step too far, and stifle research progress, PPIE needs to be conducted with an ‘ethical anchor’ to facilitate ethical practice and mitigate risk"? researchinvolvement.biomedcentral.com/articles/10.11… autism-relevant
Still not finding support for claims that more intervention is better for young autistics pubmed.ncbi.nlm.nih.gov/39495503/ but "It would be preferable to use individual participant data" (yes, big variations within studies)--which "would require greater openness and data transparency"
Registered: "how ageing impacts cognition in middle aged and older adults who are autistic or have high autistic traits" & "the evidence for (1) accelerated cognitive ageing, (2) parallel cognitive ageing, and (3) ‘protective’ ageing" crd.york.ac.uk/prospero/displ… systematic review
Autistics aged 65-75 on healthcare needs & access, free journals.sagepub.com/doi/10.1177/13… participant quotes: "Older autistic people might be more isolated than older typical people" "I think it is extremely worrying contemplating where autistic people are going to be when incapacitated"
In US health system electronic records from 2011-22, of N=2,116,993 people aged 65 & up, only N=494 were diagnosed autistic (0.2 per 1000)? pubmed.ncbi.nlm.nih.gov/39476234/ & "relative increases in autism diagnosis rates were greatest among young adults compared with all other age groups"
For N=87 autistic children, scores on the new parent-report "Behavioral inflexibility scale" ranged from 10-190 (mean=81, SD=40)?--190 is the maximum possible onlinelibrary.wiley.com/doi/10.1002/au… "Behavioral inflexibility is not different between minimally verbal & verbal autistic children"?
In recent ABA papers, 39% of preference assessments used edible reinforcers link.springer.com/article/10.100… "edible reinforcers may have deleterious effects on the health & well-being of individuals participating in the research as well as those receiving services based on that research"
Among N=43 autistic adults, 28% (N=12) were "verified synesthetes" & 7% (N=3) met the cut-off criterion for aphantasia link.springer.com/article/10.100… compared to N=42 non-autistic adults--9.5% (N=4) were "verified synesthetes" & 7% (N=3) met the cut-off criterion for aphantasia
Interviews with professional autistic actors (age 16-38) journals.sagepub.com/doi/10.1177/13… "Outside of casting searches specifically targeting autistic actors to play autistic characters, the participants tended to withhold disclosure to avoid being treated differently or infantilized"
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Who to follow
-
Autism In Adulthood
@AutismAdulthood -
Spectrum (Autism Research News)
@Spectrum -
Autism Journal
@journalautism -
Luke Beardon
@SheffieldLuke -
International Society for Autism Research, INSAR
@AutismINSAR -
thinkingautism.bsky.social
@thinkingautism -
Sue Fletcher-Watson
@SueReviews -
Autistica
@Autistica -
Steven Kapp
@drstevenkapp -
Amy Pearson
@DrAmyPearson -
Laura Crane
@LauraMayCrane -
Prof Francesca Happé
@HappeLab -
TheAutisticAdvocate
@KieranRose7 -
Dr Georgia Pavlopoulou
@JoPavlopoulou -
Liz Pellicano
@liz_pellicano
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