The Comical Colon
@TheComicalColon👋 I'm Jenna, #ulcerativecolitis & #PSC patient advocate 💊 Oral #vancomycin saved my life 📣 I believe in the power of off-label drugs and the patient voice
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I'm thinking of all my fellow PSCers today 💚 If you ever have any questions, don't hesitate to reach out!
It's #PSCAwarenessDay! You can learn more about this #liver condition that is related to #IBD from our #IBDFamily member @TheComicalColon, who lives with #PSC. Listen to #AboutIBDPodcast in any #podcast app or on my site 👇
I fit in the 11% purple section. When my GI caught my elevated liver numbers, I was shocked because I was absolutely asymptomatic. #PSCVoicesPFDD #PSCAwareness #PrimarySclerosingCholangitis
PSC Partners Medical Science Liaison Joanne Hatchett is talking about timing of symptoms & diagnosis of #PSC. Up next in Making Our Voices Heard: PFDD Forum is Consequences of Lack of Effective Treatments for #PSC. Join us. pscpartners.org #PSCVoicesPFDD @PSCPartnersCa
Join us! Click here to sign in: pscpartners.org
Join us at the PSC Making Our Voices Heard: Patient-Focused Drug Development Forum. It's happening now, and we will be live through 4 p.m. ET. You can join any time at pscpartners.org. #PSCVoicesPFDD @PSCPartnersCa #livertwitter
New book review alert! Have you heard of the inspirational @AmyOes who survived an exploding stomach? She graciously sent me a copy of her memoir “My Beautiful Detour: An Unthinkable Journey from Gutless to Grateful!” ✨ Read my book review blog post! thecomicalcolon.com/2020/10/05/boo…
✔️Just had my annual eye and skin appointments. 🗓️My regular OBGYN and dental appointments are coming up shortly. Although I didn't want to schedule these during the pandemic, I did. And so should you! Thanks for this important reminder @nataliesparacio! #ibdcommunity
“One aspect of taking care of our overall #health that is often not discussed is the importance of staying on top of all the other #preventative health checks”: buff.ly/2ZdrzLF @nataliesparacio #medical #SelfCare #ChronicIllness
So thankful for @nvisiblediaries featuring me in their online magazine! I open up about my #ulcerativecolitis & #PSC & share - how I manage my mental health, - a common misconception about my disease - what i wish others knew Read it all here! theinvisiblediaries.com/digital-magazi…
Friendly reminder to tune in tomorrow Wednesday 8/26 for @nataliesparacio's Instagram takeover! She’ll be chatting about dating with #IBD & sharing personal experiences of how her #crohns diagnosis impacted her relationships. We’ll see you tomorrow at instagram.com/GaliHealth!
Infertility and postpartum doula, #IBD patient, & Gali Ambassador @amandabosowski will be taking over our Instagram Monday, August 24! She'll be talking about #fertility & #familyplanning with IBD. What questions do you have for Amanda? Leave them in the comments below!
I was featured on Amber's podcast, and what an honor it was! 🤩 Amber's IBD advocacy work was some of the first I found when I was first diagnosed with ulcerative colitis, and being on her podcast was like a dream come true. Listen to it here: bit.ly/AIBD73
What's the silver lining in your #IBD journey? On #AboutIBDPodcast 73, @TheComicalColon tells how #ulcerativecolitis stole some goals but also how she created new ones. Listen to About IBD in your #podcast app, on my site bit.ly/AIBD73, or Apple apple.co/2VbQ6io
I was featured on a podcast! Thank you @podcastdx for inviting me to speak about #PrimarySclerosingCholangitis (PSC), a rare, autoimmune, non-alcohol-related, progressive liver disease. Tune into this episode here! podcastdx.libsyn.com/primary-sclero…! #PSC #IBD #liverdisease
My friends at @IBDMoms are partnering with @GaliHealth to co-create some exciting weekly LIVE events throughout May to spread the love to all the moms and motherly figures out there! 💕 Follow them both so you don't miss a thing! #IBD #PatientAdvocates
My liver biopsy results came back just in time for #RareDiseaseDay! I'm an official Zebra now! 💚 #PSC instagram.com/p/B9KKzS2gCls/ #primarysclerosingcholangitis #zebrastrong
How will you show that Rare is many, Rare is strong, Rare is proud on Rare Disease Day? Don’t forget to use #RareDiseaseDay and tag @rarediseaseday in your posts!
You guys! @GaliHealth is helping break the stigma of both #IBD & #mentalhealth by hosting a LIVE round table TONIGHT at 8pm EST @ facebook.com/galihealth Let me or @JackieZimm know what things you'd like these 5 amazing advocates to cover in tonight's discussion. See ya there!
New Years Eve is one of my favorite days of the entire year! Not bc of champagne & staying up late partying...lol I’ll be in bed by 9! I ❤️ New Years bc I LIVE FOR goal setting, vision boards, & breaking in my new notebooks! ⭐️ 2020, I’m ready for you ⭐️ #NewYearsResolution
#CCAwarenessWeek day 7 & onward. After this week, raising #IBD awareness continues on. That’s what this @awarecauses necklace means to me: continuing the dialogue with friends, family, & strangers. Let’s continue to fight 💜 bit.ly/2RxL4vp #IBDawarwness #IBDvisible
Today is day 6 of #CCAwarenessWeek ! Honestly? I’ve NEVER been good at self-care or relaxing nor taking breaks 🤭 #IBD has forced me to fall in love with self-care, particularly baths & books, journaling, & walking outdoors! bit.ly/2PjBJ7V #IBDawareness #selfcare
Happy #CCAwarenessWeek day 5! Who would have guessed I’d LOVE writing about my chronic illness!? This red notebook is where I write about my diagnosis & topics like acceptance, identity, forgiveness, joy, & others. So therapeutic & emboldening 💜 #ibdawareness #ibdvisible
Happy #CCAwarenessWeek day 4! This waiting room is the epitome of #IBD for me. Waiting for new meds to kick in...Waiting for test results...Waiting for insurance to stop dropping the ball... Phew, #ulcerativecolitis is making me a patient person! 😂 bit.ly/2rYR3OZ
Years ago, I had different debilitating symptoms. So I put some of what I encounter now instead. #IBDvisible @CrohnsColitisFn #CrohnsDisease #ulcerativecolitis #ibdawareness #hope #CCAwarenessWeek 💜
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