Teera Fights SMA
@TeeraFightsSmaHappy 5 month old baby fighting Spinal Muscular Atrophy with a smile. Linktree: https://t.co/cRtRfti2mC Follow @TeeraFightsSma & RT with #teerafightssma
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Millions in donations. Billions of wishes. Trillions of prayers. Thank you all for making this day possible for us.❤️ Truly grateful 🙏 Officially our 2 million dollar baby #teerakamat received her #zolgensma injection today morning. #teerafightssma #spinalmuscularatrophy
28th Feb #RareDiseaseDay #SMAisrare Rare is different Rare is unique Rare is strong We are rare, we are fighting for rare! @rarediseaseday
#RareDiseaseDay is breaking the isolation of many people living with a rare disease in #Asia 🌏 and their families Our heroes represent the great collaboration that the rare disease community has shown in Asia #strongertogether 👉rarediseaseday.org/page/news/many…👈
P. D. Hinduja Hospital administered Zolgensma Gene Replacement Therapy indicated for Spinal Muscular Atrophy to 6-month-old Teera Kamat earlier today. We are the only hospital in Mumbai authorized for this treatment. Watch the video here youtu.be/eLZkgVn-oNI
खूप आनंदाची बातमी आज सकाळी 10 वाजता तीरा कामतला अत्यंत गरजेचं zolgensma injection मिळाले. ती आता under observation आहे पण प्रकृती छान आहे असं तिच्या वडीलांनी कळवलं आहे. या प्रवासात आपण सगळे जोडले गेलो होतो. खूप खूप धन्यवाद. आज मी सगळ्यात जास्त आनंदी आहे 💜❤️💜 @TeeraFightsSma
We are glad to be in the capable and experienced hands of Dr. Neelu Desai @HospitalHinduja, who has provided her valuable time and guidance, and has wholeheartedly supported our SMA treatment journey so far. Truly grateful for all the help and guidance throughout. #teerafightssma
Meet Teera Kamat, 6 months old, who has been suffering from this issue since birth. Watch the story on how her parents managed to crowdfund to give her best treatment & how doctors at P. D. Hinduja Hospital, Mumbai have been continuously supporting her. youtu.be/wDIq_VhdVVA
This five-month-old baby is fighting a genetic disorder that has no cure in India. But more than one lakh people and the Indian government have come together to help her fetch the life-saving drug from the US.
@narendramodi Ji @Dev_Fadnavis Ji Thank you for waiving 6 cr for @TeeraFightsSma's 16cr life saving injection. We highly appreciate it. But sir there are 100's of Teera across India waiting for life saving medicine, Wish these little souls could also get your help @curesmaindia
A new aspiration with another letter & the Aim to Defeat #SpinalMuscularAtrophy disease. Hope this time we can reach out to you Sir @narendramodi,@SonuSood with the help of @AmarUjalaNews Team.& Each #SMAwarriors can get medicine at affordable price.#ourlivesmatter @curesmaindia
'The finish line is near!': In one of the largest medical fundraisers in India, 1 lakh people raised 16 crores for Teera, a 6-month-old with Spinal Muscular Atrophy. @Devinab21 talks to Mihir Kamat, her overjoyed father. | @TeeraFightsSma fit.thequint.com/health-news/te…
One lakh strangers pool in Rs 17 crore for jab to save five-month-old toi.in/-9o93Z/a24gk via @TOIMumbai
@narendramodi Ji @Dev_Fadnavis Ji Thank you for waiving 6 cr for @TeeraFightsSma's 16cr life saving injection. We highly appreciate it. But sir there are 100's of Teera across India waiting for life saving medicine, Wish these little souls could also get your help @curesmaindia
Please help baby Janish the way you came to Teera's rescue. Need help soon #SMABabiesDeserveBetter
Honourable @PMOIndia, I would like to draw your attention towards 11 month old Janish from Tumkur, has rare genetic disorder called Spinal Muscular Atrophy , only treatment is Zolgensma, for which medicine imported cost 16Cr, plz sanction the required amount and save the child.
SMA kids are a bit special from regular new born's and need extra care, together we can bring the change to save these special infants, even impossible say I M POSSIBLE. Baby Arav will always be in our prayers Ankurji, god bless.
@Dev_Fadnavis @PMOIndia @ArvindKejriwal . Plz help these 5 childrens also like you help @TeeraFightsSma to save thier life, they are bateling with #SMA Help them to get #zolgensa gene therapy #sma treatment
काल दुपारी या बाळाच्या मामानं बीबीसी मराठीकडे आपली व्यथा मांडली होती... पण आज सकाळी ... #TeeraKamat #Teerafightssma #Teera bbc.com/marathi/india-…
Let's make our voices louder. Please save our SMA babies. #SMABabiesDeserveBetter Please RT to join the fight against SMA. @PMOIndia @narendramodi @FsmaIndia @curesmaindia
Another life lost to this #SMA. So sorry for your loss, baby Aarav's family. Not every family has enough time to fundraise for their baby's life. Govt. needs to step in. #Zolgensma #Risdiplam #Spinraza available before more babies die avoidable deaths. #SMABabiesDeserveBetter
Another life lost to this #SMA. So sorry for your loss, baby Aarav's family. Not every family has enough time to fundraise for their baby's life. Govt. needs to step in. #Zolgensma #Risdiplam #Spinraza available before more babies die avoidable deaths. #SMABabiesDeserveBetter
Rare disorder: 5 more babies on life support across the country Via: @vinodkumarmenon #Mumbai #MumbaiNews mid-day.com/mumbai/mumbai-…
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