Sabeeha Malek
@SabeehaMalekMIBTP PhD student @Warwick_CMCB in Koester lab & @wingyingchow lab🔬📚🧬 Studying cell biomechanics & collagen/ECM changes in EDS/HSD #biophysics
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@hEDStogether
@BluesteinLinda
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@TheEDSociety
@asktheallergist
@Dysautonomia
@hEDSrehab
@ehlersdanlosuk
@DocZing
@HBMastCells
@jdibon
@DrEReinhold
@SEDSConnective
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Excited to share my new paper with @ActinDomain! We are proposing an updated definition of #EDS/#HSD, and explain how they could all be disorders of membrane-bound collagen. We explain the science in our new publication in @FrontCellDevBio doi.org/10.3389/fcell.…
We’ve all used the Beighton Score to measure joint hypermobility. But this narrative review looks to see if it is suitable in Generalised Joint Hypermobility diagnosis. Here’s a thread summary 🧵 Spoiler: It ain’t positive pubmed.ncbi.nlm.nih.gov/33738549/
This outstanding paper “The Beighton Score as a measure of generalised joint hypermobility” by @SabeehaMalek @GemmaSPearce and @DrEReinhold should be mandatory reading! 🧬 #hypermobility #EhlersDanlos #EhlersDanlosSyndrome ncbi.nlm.nih.gov/pmc/articles/P…
2 new articles out on pregnancy & birth outcomes, experiences & tools to support people with hypermobile #EhlersDanlosSyndrome & #HypermobilitySpecrumDisorders 1 mdpi.com/1660-4601/20/2… 2 mdpi.com/1660-4601/20/2… @SallyPezaro @LMBell_ @DrEReinhold @hEDStogether @Paul_NTDC
mdpi.com/1660-4601/20/2… Just out, our latest #research on #pregnancy & #birth with #EDS #hEDS #HSD #hypermobility. Significant findings: high rates of #eclampsia #preeclampsia #haemorrhage #PTSD #postpartum #psychosis #premature and rapid #birth #hyperemesis & shoulder dystocia
The @NorrisLab launched a new research survey, and are looking for participants. The questionnaire is online, anonymous, and takes approximately 30-minutes to complete. Our aim is to better understand the comprehensive clinical overview of EDS and HSD. redcap.link/EDSHSDsurvey
Check out this fascinating overview of collagen pathology research in Ehlers-Danlos syndrome and proposal that traditional collagen defects may not be the crux of the EDS/HSD, but instead, problems with cell adhesion and fibroblasts: frontiersin.org/articles/10.33…
🚨Healthcare professionals & patients NEEDED!🚨 Do you treat patients with #hypermobility spectrum disorders (HSD) or Ehlers-Danlos syndrome (EDS)? Do you or a family member have HSD or EDS? If yes, please consider completing our survey below!⬇️ redcap.link/hypermobility-…
Don't forget to come to my talk at 1:10 pm in MD0.01 to see some cool microscopy data! 🪰🔬
PGRs we are ready for you! WMS 2023 Symposium is set up ready for our delegates tomorrow. Looking forward to seeing the excellent work from our PGR students #wmspgr #phdlife @BMSatWarwick @HealthSci_WMS @WarwickCTU @ABRCwarwick @MRCDTP_IBR @WarwickArap @DC_Warwick
Join us later today for our next research culture coffee club! We'll be in room A0.41 in the Medical School Building from 2-4pm to talk about intersectionality!
Co-creation is something we use in #hEDStogether, but what is it? This blog explains more about it & says how you can find out more through a free course! hedstogether.com/what-is-co-cre… @CocreateWelfare @GemmaSPearce @ndholliday @Paul_NTDC @CovUniResearch
We were incredibly lucky to have Barley, Mabel, and Banjo-Oreo from @PetsAsTherapyUK join us for our doggy destress session! As a thank you, we are trying to raise £200 for @PetsAsTherapyUK, please donate and share!! justgiving.com/page/abrc-pets…
In case you missed it: Women are less likely to be credited for their scientific contributions than men. It’s true across multiple fields & at all stages, with important repercussions for career progress. #WomenInSTEM #WomenInMedicine #MedTwitter nature.com/articles/s4158…
Join us this Friday for ABRC's Researcher's Mental Health Day! We have 2 seminars in the morning by Dragonfly Mental Health, followed by a Pets As Therapy Doggy Destress session!
It was great working with you the past few weeks and looking forward to continuing in the future!
Today was my final day in the @Dunn_lab at @StanfordEng! A huge thank you to the exceptional @bri_zhong for showing me how to design & make integrin-based force sensors over the past few weeks for our #EDS research. I've learned so much! 👩🏾🔬🧪🔬
@SabeehaMalek is presenting her poster at #BPS2023 on unraveling the mechanics behind Ehlers-Danlos Syndrome. Come visit her poster (LB86) today morning at Exhibit Hall BC.
Today was my final day in the @Dunn_lab at @StanfordEng! A huge thank you to the exceptional @bri_zhong for showing me how to design & make integrin-based force sensors over the past few weeks for our #EDS research. I've learned so much! 👩🏾🔬🧪🔬
It's finally my turn to present my poster at the Biophysical Society conference! #BPS2023 Please come over to poster LB86 in exhibit hall BC to learn all about my exciting research into the role of cell mechanics in Ehlers-Danlos Syndrome! #EDS
Excited to be attending #BPS2023 in San Diego! Looking forward to my lab mate presenting her research later today at 5:45pm on cell-cell adhesion formation and dynamics in cancer cells in room 11AB! 🤩
It has been a pleasure to participate at #BPS2023 and be enthralled by the amazing science. Super excited to give my first BPS talk today at 5.45 pm titled “Study of cell-cell adhesion formation and dynamics in cancer cells using a hybrid cell-lipid bilayer system”(Room 11AB).
"We're born with this and will never be free..." Great to see @SabeehaMalek explaining #EhlersDanlosSyndrome and its impact so eloquently. -Solidarity, #hEDS comrades! #hypermobility #HSD #WhyWeDoResearch
"We're born with this and will never be free:" Five patients with a mysterious medical condition explain what it feels like cnn.it/3C0gEZl
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Who to follow
-
hEDStogether
@hEDStogether -
Hypermobility MD: Dr Linda Bluestein
@BluesteinLinda -
BendyBrain: Dr Jessica Eccles
@BendyBrain -
The Ehlers-Danlos Society
@TheEDSociety -
Anne Maitland, MD
@asktheallergist -
Dysautonomia Intl.
@Dysautonomia -
Bonnie Southgate
@hEDSrehab -
Ehlers-Danlos Support UK
@ehlersdanlosuk -
Alissa Zingman MD MPH - ZebraMD
@DocZing -
Hell's Bells & Mast Cells
@HBMastCells -
Jeannie Di Bon
@jdibon -
Emma Reinhold
@DrEReinhold -
SEDSConnective
@SEDSConnective -
HMSA Charity
@HMSACharity -
OhTWIST.bsky.social now too
@H2OhTwist
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