@PudendalHelpNow Profile picture

Pudendal Neuralgia Help

@PudendalHelpNow

Raising awareness for those suffering with #Chronic #PelvicPain #CPPS #BHP #CoccyxPain #LevatorAni syndrome

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#Pudendal #Neuralgia is an INVISIBLE, oft MISDIAGNOSED, but TREATABLE condition, affecting mostly women, but also #MEN Symptoms: -#Rectal pain -Sitting #coccyx pain -#perineal pain -#testicle #penis pain -#prostate pain -difficultly with peeing 💩 🧻 -erectile/ejaculation pain

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The darkness surrounds me It tries to come inside It sets up camp It digs its claws in Unrelenting Intangible Crushing Mocking Despair Hopeless But a light shines Who is it? Who is the Light? It’s Messiah! He whispers… He shouts! “I’ve already destroyed the darkness!” “Come!”


Pudendal Neuralgia Help Reposted

It’s all connected. 🧠 💥 💨 #pelvicpain #fascia #pelvicfloor #pelvictension #weakcore #psoas

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Pudendal Neuralgia Help Reposted

“The #unpredictability – can I do the thing or not, will the thing kill me or be super easy? Will this sneeze be a sneeze, or something akin to a surprise cameo of Green Arrow’s arrow through my right ovary?”: buff.ly/2Lvfo5n #ChronicPain #ChronicIllness #MondayBlogs


Pudendal Neuralgia Help Reposted

"Brain functional and anatomical changes in chronic prostatitis/chronic pelvic pain syndrome" #CPPS #pelvicpain #prostatis #mindbody pubmed.ncbi.nlm.nih.gov/21571326/

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Pudendal Neuralgia Help Reposted

This is what a GOOD urologist uses to treat patients with CP/CPPS, called "UPOINT" - Please note that sexual dysfunction is also considered a category. #pelvicpain #CPPS #urology #menshealth #prostatitis Via: pubmed.ncbi.nlm.nih.gov/34552790/

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Pudendal Neuralgia Help Reposted

Thanks for sharing this! Men’s pelvic pain is definitely under researched and my research did reveal that the focus on endo has negative consequences for patients, including unnecessary surgeries. So in that sense, I have considered it a bit, but would love to dive further!


#Men only make up about 10-20% of #CPPS sufferers, so it’s no surprise the majority of online content and support is driven toward #women with #endometriosis. Add the complexity of sub-type/syndromes for CPPS (levator-ani, coccydynia etc)… it’s a challenge to find real support


Please post the link

A study to learn about people's experiences when seeking diagnosis for pelvic pain, created by @MedStudentForum's President @JenRomanello Enrollment open. #MedTwitter #MedStudentTwitter #research #ChronicPain #endometriosis #pelvicPT #vulvodynia #sexmed

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MEN: Paruresis, “shy bladder”, or urinary hesitance, difficulty starting and emptying your bladder, can sometimes be misdiagnosed as #BenignProstaticHyperplasia can be a sign of #PelvicFloorDysfunction. #CPPS #PelvicPain #LevatorAniSyndrome #PudendalNeuralgia

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Anxiety/stress play a critical role to managing #pelvicpain. Stress causes not only cellular oxidation but also promotes hormones that lock in muscle spasms, precipitating more PAIN/STRESS! How do we break the cycle? This technique is VERY effective. youtu.be/823sUMTyjNs


Oh how I long to sit. That’s the tweet.


#Chronicpain is a predictable motivator. It causes us to (unwillingly) evaluate our: -habits -positions -activities -lifestyle -finances -life choices We can buck against the wave and keep making #badchoices, or we can surrender to the process and allow the fire to refine us!


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