PANDAS Network - Official
@PANDASnetworkAdvocating for those impacted by PANDAS/PANS/AE through research, education, advocacy, and awareness programs.
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Please retweet
Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention? Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS My daughter is in remission, other kids need our help. 🙏🏾
Pandas kids need medicine
Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention? Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS My daughter is in remission, other kids need our help. 🙏🏾
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
Dr. Ugur Akcan @occludens gave a nice presentation today.
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
What PANS/PANDAS research question do you want Dritan Agalliu PhD to answer during the 6/29 webinar? Ask here & it might get answered. Webinar registration: bit.ly/dragalliuwebin… Read the research: shorturl.at/uxTX3 Hosted in partnership by @PANDASPPN & @PANDASnetwork
CLINICIANS & RESEARCHERS! Join Dr. Dritan Agalliu for an in-depth scientific & medical discussion on breaking PANDAS/PANS research! The free webinar will take place on 6/29 at 6pm ET. bit.ly/dragalliuwebin…
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
Finally--structures of D1, D2, D3, D4 and D5-dopamine receptors!! Congrats to folks from @RothLabUNC , Eric Xu's lab and many others. nature.com/articles/s4142…
Our AE Scientific Board member, Dr Westbrook
Dr Gary Westbrook, Vollum Institute, presents "What can #llamas and #mice tell us about anti-NMDA receptor #encephalitis" as an OBI May BRAINet Online Lecture. Use the link to register by Tuesday, May 16, 9am to receive the live-stream link. tinyurl.com/w4dj6cbd cc:@OHSUBrain
Learn about the mechanisms & inflammatory cytokines found in PANDAS PANS. June 29th we will have a second webinar for researchers & clinicians. Sign at pandasnetwork.org/events
Watch our latest free CME webinar: Preventing & Responding to Insurance Denials for PANS/PANDAS Treatments. pandasppn.org/cme The presentation will discuss: 🔵Defining ‘Medical Necessity’ 🟣UR-Related Laws 🟢Insurance UR/UM Systems 🟡Advocacy Strategies
Great images PANDAS mechanisms
Thank you @SiegenthalerLab @LehtinenLab Benoit and Joy for organizing a great #cshlbbb meeting. I’m honored to be chosen as a keynote speaker and looking forward to today’s talks!
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
Looking forward to presenting this evening and meeting with colleagues.
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
BRAVO !! IMPORTANT NEW RESEARCH For PANDAS PANS, Sydenham chorea and Autoimmune encephalitic sequela ..thank you Agalliu Lab, particularly Drs Dritan Agalliu, Charlotte Wayne & Tyler Cutforth
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
This is our invention patent based on @charlotterwayne work to target IL-17A for treating neuroinflammation in Group A Streptococcus infection sequelae. The paper will be posted on the BioRxiv later this week. inventions.techventures.columbia.edu/technologies/C…
Good morning to World Encephalitis Day! #WED My research team in Oxford shows representation from 🏴 , 🏴 , 🇩🇪, 🇲🇰, 🇹🇷, 🇲🇾, 🇰🇷, 🇮🇪 , 🇨🇳 and 🇧🇷. So we really do embrace the world 🌎 today @encephalitis
Fantastic review of CNS and AE a Review in Nature
The figures and tables look so good in published format!👍
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
So brave of you to share your traumatic journey. As you say, could’ve been so different.
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
The @BBCNews coverage of #GroupAStrep is helpful: but what's really important is to educate about the associated risk of #sepsis as that's what endangers lives! Most of us have these bugs somewhere on us, it's when it becomes invasive we worry!
We are happy to share with you the exciting news that Congress has taken action on PANS/PANDAS! BIDEN has signed into law the 2023 omnibus appropriations bill which is another step forward towards our goal of significantly growing federal funding for NIH research
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Who to follow
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PANDAS PHYSICIANS NETWORK
@PANDASPPN -
PANS PANDAS UK
@PANSPANDASUK -
ASPIRE
@ASPIREpans -
Immune Deficiency Foundation
@immunedeficienC -
The National Adrenal Diseases Foundation
@NADF_Adrenal -
Southeastern PANS/PANDAS Association
@pandas_pans -
Inflamed Brain Alliance
@inflamedbrain_ -
ParentingPANS
@ParentingPans -
Aly Shields 🌻
@AlyAShields -
Paula Scott
@PaulaScottUK -
Notes to my boy ✉️
@notestomyboy -
Kathryn Gillett
@kathryn_gillett -
Marnie Deschenes
@MarnieDeschenes -
FSR
@StopSarcoidosis -
Sharon
@Sharon45983259
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