@NDPH_Research Profile picture

NDPH Research

@NDPH_Research

New Daily Persistent Headache - NDPH - raising awareness and money to find a cure! *views expressed are my own

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New Daily Persistent Headache is becoming a recognized symptom in some COVID-19 patients. hartfordhealthcare.org/about-us/news-…


Optimism & hope help kids better cope with chronic pain medscape.com/viewarticle/93…


Anecdotal reports of Bartonella involvement with some NDPH suggests the need for further research. This report of specific essential oils with greater antimicrobial properties than current antibiotics may prove helpful in battling persistent infection. mdpi.com/2079-6382/8/4/…


NDPH Research Reposted

Dr. Phillips presented Grand Rounds to MDs at @HackensackUMC who were blown away by data on chronic #Lyme & TBD. Education is key. Most stayed to ask further q’s & many recognized #ChronicLyme in their patients. Wanted to help. Watch here & see slides. facebook.com/lymebook/video…


NDPH Research Reposted

The Ehlers-Danlos Society is pleased to announce a further $300,000 in grant funding for #research. We are encouraging proposals for funding from all areas of health & social care applicable to the #EhlersDanlossyndromes & #hypermobilityspectrumdisorders. buff.ly/2OTa40v


This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself cnn.com/2019/07/27/hea…


CSF leaks are underdiagnosed. CSF leaks can sometimes present with non-positional headache. We intend to study this in New Daily Persistent Headache. We need your support. Please Donate youtu.be/go7bm85G5u4


NDPH Research Reposted

What disease (or type of disease) is this? 20 year old female college student is very fatigued. Sleeping all the time for the last 6 months. Her muscles are sore. She feels weak. She can’t ride a bike and has trouble with stairs. Goes to the ER, LFTs elevated and CK =60K.


There are 327,000,000 people in the USA and only 2 experts in CSF leaks


Looking forward to attending the @ahsheadache's annual scientific meeting #AHSAM this week in Philadelphia.

Join us Thursday, July 11, at 12 pm ET for a Facebook Live from Scientific Program Committee Chair Andrew Charles, MD, FAHS, about #AHSAM and what’s new in #headache and #migraine. He will be joined by @amfmigraine Executive Director @LalvaniNim More: bit.ly/2LyOTh1

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NDPH Research Reposted

Join us Thursday, July 11, at 12 pm ET for a Facebook Live from Scientific Program Committee Chair Andrew Charles, MD, FAHS, about #AHSAM and what’s new in #headache and #migraine. He will be joined by @amfmigraine Executive Director @LalvaniNim More: bit.ly/2LyOTh1

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Joint Hypermobility is documented in #NDPH. Bartonella is documented in some #NDPH. Here Bartonella appears to trigger joint hypermobility. Advanced bartonella is difficult to test for. Is an agressive anti-bartonella chemotherapy justified in #NDPH.

In this case history, a woman was treated with antibiotics to target persistent #Bartonella 👉 This led to resolution of her chronic rheumatic symptoms + substantial improvement in acquired joint hypermobility Ehlers–Danlos Syndrome (#EDS) type III: ncbi.nlm.nih.gov/pmc/articles/P…

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“No matter what disease you look at, in the end things usually come down to infection and inflammation.” Dr. Rudolph Tanzi forbes.com/sites/robinsea…


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