MND Elite
@MndEliteFundraising on behalf of the MND Association for their Children and Young People & Quality of Life Grants - Living with MND Dec 17th 2019(all views are my own)
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I simply don't have time to die, to busy having a laugh, I'll have this photo recreated when I'm in a wheelchair on a ventilator, i'll still be saying the same, I'm getting measured for a wheelchair in a few weeks, only for occasional usage I avoid crisis point by being proactive
Stop thinking..start acting, forget Mars and landing on the moon...focus on what we need here on Earth...A cure
So angry @sajidjavid @RishiSunak @BorisJohnson You have taken Hope away! Funding over a few years will vastly outweigh any long term needs and will give suffers and families their lives back and hope
Focus on what is important, stop standing still and shift momentum @MndNavigate
Thanks, Mick @onein300 @AberdareNic @ChrisJohnsonQPM @MummywithM & many other @MNDPatients aren't giving up either. @sajidjavid @KwasiKwarteng are now aware of @mndresearch underfunding & targeting issue. They've acknowledged it & are hopefully seeking solutions. #United2EndMND
Thanks, Mick @onein300 @AberdareNic @ChrisJohnsonQPM @MummywithM & many other @MNDPatients aren't giving up either. @sajidjavid @KwasiKwarteng are now aware of @mndresearch underfunding & targeting issue. They've acknowledged it & are hopefully seeking solutions. #United2EndMND
As politicians spend the week pontificating about saving the world, closer to home MND remains the ‘forgotten disease’ as @Rob7Burrow tells the Sunday Express - he’s ‘devastated’ @RishiSunak and @BorisJohnson didn’t help in the budget..but he won’t give up
@MndElite @MndNavigate @mndassoc @ArthurRankHouse @CharlotteHawkns @Rob7Burrow @DoddieWeir5 In preparation for the might challenge in 2 weeks. This was my first time in the chair and racked up 2 miles @MndQuirk
smashing it 💙💙
We've just hit £2⃣9⃣,0⃣0⃣0⃣ 🤩 @MNDoddie5 Could we reach £30k by the time we finish?! 😍 #DoingItForDad #TacklingMND justgiving.com/fundraising/mu…
Proud of my two teams supporting me demonstrate that life does not end once diagnosed with MND, Coe October I'll be two months away from my prognosis, Bulbar onset MND...when you're smiling...when you're smiling..Stay Strong..Stay Elite
7 good mates in good health - 1 not in such good health that's me MND = 8. 2 in each team - will complete a half marathon between them = 6.5 miles each - not by walking - not by running - but in wheelchairs - this October raising funds for @ArthurRankHouse @CambsMNDBranch
7 good mates in good health - 1 not in such good health that's me MND = 8. 2 in each team - will complete a half marathon between them = 6.5 miles each - not by walking - not by running - but in wheelchairs - this October raising funds for @ArthurRankHouse @CambsMNDBranch
If you get the chance please follow my other MND page @MndNavigate I’ve just recently been interviewed by @ArthurRankHouse about my journey with MND @NickGoldup1 @StephSteward__ @Rob7Burrow Navigate your journey with courage and heart
Happy 6th wedding anniversary, I wouldn’t want anyone else in my corner..Through sickness and in health... 💙
Brilliant showcase and honoured to have been invited..Stay Strong..Stay Elite @MndNavigate @StephSteward__ 💙
Great to be involved in the @mndassoc Showcase today - I interviewed @NickGoldup1 about the care & support MND patients are being given, plus how technology is helping. Just watching @theJeremyVine interview @DrBrianDickie about the latest research. Fantastic work all 👏👏💙🧡
Amazing work
Well isn't this just incredible! 🤩 £1020 to @MNDoddie5 😍 Massive thanks to everyone who bought a bottle and an even bigger thanks to the absolutely amazing @ElecSpiritCo for this incredibly generous offer 🥰 Safe to say I'll be raising a glass in celebration tonight! 🍸
Hi, It would be great if you could also follow my other MND page MND Navigate, this is where I'll begin to share my journey with MND, what I try and do on a regular basis to stay motivated and positive hoping to inspire others along the way.
Just had an amazing zoom call with the wonderful @StephSteward__ I best get on with the housework now😃
I'll be attending the wake of a fellow MND fighter this Friday, he was 23 years old, he battled well, you done your family proud mate...Stay Strong..Stay Elite 💙
My heroes, my wife and two children, I'm just so pleased that we may have stumbled across the reasons why I have this most beautiful and devastating condition & that's me it's happening to, we can now take proactive measures to ensure 'Mini Elites' never take this journey💙
3 weeks on from the big row/cycle, I have recovered phewww, repaired, healed and ready to go again...Stay strong...Stay Elite
I've just come back from a refreshing long weekend away with the family, you know? I've never once been angry about having MND, it sucks, but if I were to be angry about it, I think I'd find it exhausting, we know how this ends for the family, we've accepted it and live strong.
We have our Cambs Text2donate Number!!! Let’s all have a go and support the Cambs Branch! 💙💙💙💙
We woke to the news of a fellow MND fighter who won his battle against MND and took his fight against it right to the wall, those living with MND know, we will not win the fight, but we sure as hell raise our shields made of blue hearts and battle, 23 years old RIP my friend💙
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Who to follow
-
David Whalley
@DavidW_MND -
MummywithMND
@MummywithM -
Tim Atkinson
@TimJAtkinsonMND -
StampOutMND
@StampOutMnd -
MND Nottinghamshire
@MNDNotts -
MNDANorwichWaveney
@MNDANorWave -
Rachel
@rachel_MND -
Alli Anthony
@AlliAnthony2 -
Ian Lev
@lev_ian -
Roger Widdecombe
@RWiddecombeMND -
Paul (Mingoe Adventures) Joynson
@PaulJoynson1 -
MNDA West Sussex South
@mndawss -
MNDA West London & Middlesex branch
@WL_MND -
EJayne Yates
@EjayneYates
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