Gro Mesna Andersen
@MesnaGKlarinettist, kulturskolelærer og mor til barn med ME. Twitrer nok mest om det siste.
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@Nina_Steinkopf
@LenaFoxfoot
@MEforeldrene
@HegeGull
@Diplodokus1
@t_schei
@Mirka777
@Sissel777
@ME_Rogaland
@memhj
@RamstadHanne
@EirikAks
@MEforeningen
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@Recovrnot
What can wage development before and after a G93.3 diagnosis tell us a... sciencedirect.com/science/articl…
Prognose for ME-syke: «Innenfor de tidsrammene vi har analysert – som for deler av gruppen strekker seg over 10 år - ser få ut til å komme fullt tilbake i lønnet arbeid, og den generelle trenden er en negativ utvikling for de fleste.» fafo.no/component/zoo/…
Hva betyr «den lille andelen»? Med 4 millioner infeksjoner hvert år tilsvarer en risiko på 1 % til 40.000 rammede hvert år. 2 % = 80.000, 3 % = 120.000, 4 % = 160.000.
Just published: Confirmed: The Conclusion by NICE that CBT is not an Effective Treatment for ME/CFS; Re-Analysis of a Systematic Review scibasejournals.org/neurology/1022… #MEcfs
People should know about ME/CFS, just as MS, Parkinson’s, and diabetes are common knowledge. When ME patients disclose their illness, they are often met with comments such as “I’m also tired”. Patients shouldn’t have to face such ignorance—it’s a severe illness. #MEAwarenessHour
Att lyfta fram barnen som på många sätt glöms bort när det kommer till postcovid är så otroligt viktigt. Vi får vända blickarna utomlands för mer information och sedan implementera det även i Sverige.
I am so excited to present our latest research at this meeting in Rome! @surf4children @BinitaKane @PutrinoLab @Sunny_Rae1 @LaelYonker
I dag får ikkje ME-pasientane rett behandling dagogtid.no/ordskifte/i-da…
Four years ago today, Mila got up for a few minutes for the last time, came into the living room where we turned off all the lights and ate a tiny piece of birthday cake. Since then, it has been 1461 days of total darkness, silence and isolation. #LearnAboutME #VerySevereME
Jeg er utrolig rørt over at @KajaHeilo sendte meg @FLilledalen sin bok «Gjør ingen skade». I morgen reiser jeg hjem til Australia for et par uker, men jeg vil lese denne boken så snart jeg er tilbake i Norge ❤️
- Den beste måte å redusere sykefraværet på er å få folk friske. Vil @jcvestre bidra til et håp om en bedre framtid for landets titalls tusen ME og LC-syke? Takk til @raubreywhite for viktig en stemme og for viktig forskning 🙏🏻 nettavisen.no/norsk-debatt/s…
Norway's largest conference on ME/CFS & Long Covid will take place in Stavanger on 7 & 8 May 2025. Here, 11 speakers from six countries will provide an introduction to research in the field & share experiences from clinical practice. mekonferanse.no/en/ #MEcfs #CFS #PwME
Did you know that #MECFS is a serious, chronic, complex, systemic illness that often leads to profound functional impairment? It affects people of all races, all age groups, and all social groups. Psychiatric treatment is not indicated by a diagnosis of ME/CFS.
We recorded an episode of @thetimes The Story podcast about my daughter's death from Severe ME. There are messages for @wesstreeting about ME & the NHS. But also for @ShabanaMahmood and maybe @hammersmithandy about the bare cruelty of the inquest system open.spotify.com/episode/02h2VI…
Here's our last parody song about the #USElection2024. It's called "Bohemian Trumpsody" (based on the inimitable @QueenWillRock but with only six voices & no overdubs) & we've self-trolled in it as 'libtards' already, just to save folks time who might be offended 🎶🗳️🤞…
The recent history of ME/CFS treatment has to be seen to be believed. Children forcibly taken from parents, then subjected to terror "treatments", women dismissed as "hysterical", then sectioned. And some of this is still happening .... Watch and wonder. youtube.com/watch?v=cDeu_O…
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️ theconversation.com/ignored-blamed…
The hidden city of #ME patients. Part of the powerful and compassionate article by Chris Ponting @CGATist
Clip of @GeorgeMonbiot "gobsmacked" by the shocking and outrageous treatment of #MECFS patients, from outright medical neglect, to threats of being sectioned or put in psychiatric wards.
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Who to follow
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Nina E. Steinkopf
@Nina_Steinkopf -
Lena Kjempengren-Vold
@LenaFoxfoot -
ME-foreldrene
@MEforeldrene -
HegeGull
@HegeGull -
Diplodokus
@Diplodokus1 -
Trude Schei
@t_schei -
May Iren
@Mirka777 -
Sissel Sunde 🇳🇴
@Sissel777 -
Norges ME-forening - Rogaland Fylkeslag
@ME_Rogaland -
Marit Hjelsvold
@memhj -
Hanne Ramstad
@RamstadHanne -
Eirik
@EirikAks -
Norges ME-forening
@MEforeningen -
ME Nytt
@ME_nytt -
Memento Mei
@Recovrnot
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