Louise Billingsley
@LouMooBillCYP Student Nurse at Bournemouth University. Regional Ambassador for Reverse Rett. Mum of 2 gorgeous small humans.
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I keep hearing reports that recent graduates are struggling to find work. Scary times. But why? Will be listening to this podcast to try and understand what's going on. And really hoping that things change as I apply soon 🙏 rcni.com/nursing-standa…
As we welcome a new government, and the chance to put children's voices at the heart of every decision, I am launching #100Voices - which will hear from children on issues which are important them, to make sure their voices are heard in these first vital days.
I've shared this manifesto to my local candidates. You can do the same on the link below. Will you prioritise the needs of disabled children and their families if you're elected @Simon4NDorset @JamesColdwellUK ?
The next Parliament needs Disabled Children’s Champions. Share the #DCPManifesto with the Prospective Parliamentary Candidates in your constituency today. bit.ly/DCPPPC
Thank you to @BBCRadio4 for highlighting the major problems around waiting lists for children in our hospitals. It's really scary and things have to change. Our children are being let down. @RettUK @ReverseRett bbc.co.uk/sounds/play/m0…
Our new report "If Only You Knew" shares the views of over 200 young siblings who have a disabled brother or sister, who told us what their life was like at school. Although many had told friends and teachers, 74% still received no support from school. sibs.org.uk/supporting-you…
Our new report, Fight For Our Future: ACT Now for Disabled Children, is live. It paints a painfully bleak picture, where families have to fight day in, day out for their child’s basic needs 🧵
It's National Siblings Day! Join @Sibs_uk in celebrating today. Why is #NationalSiblingsDay important? - Siblings who grow up with a disabled brother or sister often spend a lot of time coming second to the needs of another. Find out more about at sibs.org.uk/nsd
Download our activity pack for young siblings (of all ages) and enjoy drawing, writing, colouring and more! #NationalSiblingsDay2024 #Itsasiblingthing sibs.org.uk/nsd/#nsd-young
My husband Billingsley is fundraising for @ReverseRett Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/matt-bill…
Yesterday @TayshaGTx provided an update to their Rett syndrome program TSHA-102. Here are links to further information including press release, community letter and our key take aways for families. #rettsyndrome #raredisease #genetherapy tinyurl.com/3c5uddn2
Today is the UN International Day of Happiness and this years theme is ‘Happier Together’. Let’s do whatever we can to support each other and especially those who really need our love and help right now 🌍❤️ #InternationalDayOfHappiness dayofhappiness.net
Sign up to our email campaign network today to help us campaign for improved health and social care for disabled children, young people and their families. …t.disabledchildrenspartnership.org.uk
Love this! Great to hear the voices of the local community and they would like to see in their local arts provision
Have your say! This is an open invite to attend a session on 6th March either at 12.30 or 5pm – These are 1 hour sessions to share feedback and discuss upcoming activities and opportunities to improve and shape our future offers for our communities.
What interesting reading on #RareDiseaseDay2024 On this day and every other I want to raise awareness about Rett Syndrome. Something that just 1 year ago I had never heard of and now has turned mine and my family's world upside down. @ReverseRett @RettUK
Our #RareDiseaseDay 2024 report has launched! We know surprisingly little about the 3.5 million people in the UK who are estimated to be affected by rare conditions. Our report explores the statistics behind the rare community. Learn more and read now: ow.ly/Zshm50QJaBc
Thank you @MayaOppenheim for highlighting the issue. Time for a change. Let's recognise nurse and midwifery training as equivalent of working full time and allow students access to the full 30 hrs p/w childcare allowance PLEASE @hmtreasury @RishiSunak
EXCLUSIVE: Thousands of student nurses and midwives ditching training over free childcare scheme exclusion independent.co.uk/news/uk/home-n… @CoalitionEdCare @unisontheunion
Utterly shocking statistics. We can definitely do better #FreeSchoolMealsForAll
No child should go hungry at school — or see a friend go hungry either. In the sixth richest country in the world, we can do better. #FreeSchoolMealsForAll
📊 Our new poll of parents and children paints a stark picture. The Government must do more to support families - #FreeSchoolMealsForAll would be a strong start. Watch now ⬇️
A new survey revealed that more than half of parents are struggling to feed their children and have cut back on food shopping. This follows calls for primary school children in England to receive free school meals.
Check out this brilliant new website. Taking young children to the theatre is an absolute joy and this makes planning and getting there so much easier! 👏👏👏
A new survey revealed that more than half of parents are struggling to feed their children and have cut back on food shopping. This follows calls for primary school children in England to receive free school meals.
Students pay upwards of £27,000 to train, work 37.5 hours a week, unpaid, while having to claim an additional student loan of up to around £36,000 over three years, simply to live. The meagre £5000p/y bursary doesn’t even cover fees, let alone childcare costs to put your children…
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