@Juliet_Tizzard Profile picture

Juliet Tizzard

@Juliet_Tizzard

@parkinsonsuk Director of External Relations. Formerly @hra_latest and @hfea. Views my own.

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Juliet Tizzard Reposted

People living with Parkinson’s face unacceptably long waiting times for specialist care, inadequate access to multidisciplinary support, and unequal access to advanced treatments. Help shape the future of the NHS in England by sharing your experiences via the link below👇

Have your say and share the ideas you have for change. Help us shape the future of the NHS. ➡️ change.nhs.uk

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Great meeting - thanks @ChrisBloore! @ParkinsonsUK

Great meeting with @ChrisBloore - absolutely lovely fella. We're looking forward to working together. Thank you for your suppport Chris.#parkinsons @ParkinsonsUK @Juliet_Tizzard @crassell2

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This is an important step forwards! Well done fab team at @ParkinsonsUK and thank you @NHSEngland for taking this so seriously

NHS England's announcement of a 3 year medicines safety improvement programme is a big step towards improving the delivery of time critical medication for people with Parkinson's staying in hospital, in England💊⏲️ We're proud to have contributed to this alongside @ParkinsonsUK



Juliet Tizzard Reposted

NHS England's announcement of a 3 year medicines safety improvement programme is a big step towards improving the delivery of time critical medication for people with Parkinson's staying in hospital, in England💊⏲️ We're proud to have contributed to this alongside @ParkinsonsUK

🔴 NHS commits to ending deadly delays in Parkinson medication first revealed by The Telegraph telegraph.co.uk/news/2024/09/1…



Cannot wait!

Join us at Par-Con where @DaveClarkTV & @morethanatremor from the 2 Parkies in a pod podcast are interviewing Professor @basbloem to discuss living well with Parkinson’s. Click for more information and to sign up to Par-Con 👉 prksn.uk/47MTGnf

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Juliet Tizzard Reposted

The Government’s move to restrict Winter Fuel Payments will severely impact those with Parkinson’s who don’t get Pension Credit. We, with @IndependentAge, urge the Chancellor to reconsider to ensure older people, especially those with chronic conditions, aren't left in the cold.

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Juliet Tizzard Reposted

We are PROUD to have walked the @PrideInLondon Parade 2024! 🏳️‍🌈 LGBTQIA+ members of the Parkinson’s community were loud and proud at the London Pride Parade, celebrating the true diversity of our community. Parkinson’s doesn’t discriminate, and we don’t either 💙


Juliet Tizzard Reposted

A message from our Chief Executive, Caroline Rassell @crassell2, to the new government 👇 “Unacceptably long waits for care and medication shortages have affected our community leading to avoidable hospital admissions and worsening symptoms.

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Juliet Tizzard Reposted

We’re still building a picture of why people get Parkinson’s. Understanding the pieces of this complex puzzle will help us unlock better treatments and one day a cure. But what do we know so far?

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Juliet Tizzard Reposted

Research suggests that Parkinson’s tends to develop gradually. It may be many months, even years, before the symptoms become obvious enough for someone to visit their GP. This information looks at how Parkinson’s may be diagnosed 👉🏽 bit.ly/3ReEVCl

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Juliet Tizzard Reposted

We continue our work with @EpilepsyAction, @epilepsysociety and @SUDEPAction by asking party leaders to take action to review the medicines supply chain if they win the election. People with #Parkinsons and #Epilepsy shouldn't have to struggle to get their vital medicines! #GE24

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Lots of coverage of this story about a study co-funded by us @ParkinsonsUK with comment from my colleague @profdaviddexter Blood test could predict Parkinson’s seven years before symptoms -... mol.im/a/13543197 via @MailOnline


Juliet Tizzard Reposted

Research News 📣 Parkinson's UK funded research shows promise for a blood test that could identify Parkinson’s before movement symptoms occur. Read the full story and what this means for people with Parkinson's 👉🏽 prksn.uk/45wx7lh

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Juliet Tizzard Reposted

Changes to be the NHS constitution should not be debated in secrecy ift.tt/jCW3lBV


👇🏻 what people with #parkinsons will be asking canvassers on the doorstep!

As the number of people diagnosed with Parkinson's increases we want the new government to make it a priority. Here's what we're calling for 📣 1. Make people feel safe in hospital, including by getting their medication on time. ☑ #GeneralElection24

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Juliet Tizzard Reposted

Today we're attending the Parkinson's and Associated Disorders conference in London, as a conference partner. Director of External Relations at @ParkinsonsUK, Juliet Tizzard also spoke to engaged delegates on 'The power of charities in pushing for better #Parkinsons care'.

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Juliet Tizzard Reposted

Parkinson’s research needs you 📣 But what’s it really like to take part in a study investigating a new drug? Phil, Kate and Helen share their experiences of why they chose to take part in research to test new drugs. 👉🏿 bit.ly/4amapNJ #ParkinsonsResearchNeedsYou


Juliet Tizzard Reposted

If Parkinson’s research is going to benefit everyone, we need everyone to be included. Read how Anita and Toussaint are sharing their experiences and finding community through the Research Support Network. Read more 👉🏼 bit.ly/3V13YuV #ParkinsonsResearchNeedsYou


Juliet Tizzard Reposted

Big news! We’re recruiting 2 healthcare professionals to take on the role of Regional Clinical Lead on a consultancy basis and lead your Excellence Network region in England📢 We have vacancies in the North West & South East regions. Apply by 16 June👉 bit.ly/4alaYaI

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