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@emilybarcar
@SarahSc16211066
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Cool opportunity for Bronco & Bronco Sport customers! You've likely heard of the total solar eclipse happening April 8. The path of totality will pass right over our Bronco Off-Roadeo location in Texas, so we're hosting a camping experience for customers to enjoy this rare event…
“Do good stuff for people. Do good stuff today.” Love this story about Craig and his ‘73 @FordMustang! A simple reminder about the power of helping others. Thanks for the great story, @SteveHartmanCBS!
I just left a review of my trip with GetMyBoat! Had a great day! getmyboat.com/trips/ZK8xvjlK/
I just pledged Alex per Lap for the Almond Grove Elementary Fun Run. myapexevent.com/xn6v46
Read & share this @Newsweek story profiling SRF, our founders (@SYNGAP1mom & @JMGraglia) and Tony's diagnostic journey. newsweek.com/my-son-syngap1… FYI @StanfordChild @IDreamofGenes @Invitae @Labcorp (MNG)
We had a great time in Mt. Potosi, Nevada. The Ford Motor Company & The Bronco Nation, teams did a fantastic job setting up this amazing experience!!! @ford @thebronconation @broncooffroadeo @jfarle98 instagram.com/p/CXG9v1au6GQ/…
Want to give a big shout out to @rubicontrailadventures for helping me choose the best @dometic fridge for my future family adventures. instagram.com/p/COGqRE_pn9t/…
PFIZER EFFECTIVENESS: The study provides "the most comprehensive real-world evidence to date." kron4.com/health/coronav…
Monica Weldon, CEO of Bridge the Gap, is in the #HealthMakers #studio taking about "the journey she was set out to do," sharing information about the #SYNGAP1 gene, an ultra-rare genetic mutation. Watch highdrive.tv for the future #interview.
The Weldon’s are on exhibit duty at the American Epilepsy Society Meeting! Spreading awareness and sharing stories of our families! #syngap1 #research #education #neuroscience #conference #aes2018 @mlweldon5 @ClWeldon
Preprint showing an extended therapeutic window for correcting seizure and memory impairment in adult Syngap1 mice biorxiv.org/content/early/…
Our families deserve kudos for this contribution & should be proud of the time spent taking surveys & uploading reports! It was critical in doing this translational science!
Without the help of the families participating we would have never found one of the biggest discoveries yet in SYNGAP1, putting us in the line of fire for treatments! Our momentum is not stopping! Thank you!
We are very proud to announce our organization’s first contribution to this publication in @NatureNeuro using our @RareDiseases SYNGAP1 (MRD5) Patient Registry & Natural History Study! nature.com/articles/s4159…
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