ERKNet
@EuRefNetworkERKNet is devoted to improving the lives of patients with rare kidney diseases by expert knowledge sharing, outcome monitoring and clinical research.
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@Ped_Neph
@ERN_RARE_LIVER
@ErnEyeEU
@ERAkidney
@_ERNRITA
@EpiCARE_ERN
@ERN_eUROGEN
@ern_reconnet
@ERNEuroBloodNet
@ERNIthaca
@Metab_ERN
@ERDERA_org
@ern_bond
@ErnLung
@ynptweets
What exactly is CPMS? 🌐 Learn how it supports healthcare professionals in managing rare diseases! 🌐 💭 For more information, visit our website and subscribe to our newsletter: erknet.org #StayInformed #CPMS #RareDiseases #FAQ
📚ERKReg Basic Training Session📚 On Wednesay, November 20th, we host our monthly ERKReg Basic Trainig Session. Feel free to send us your questions in advance via the registration form or ask them live. 🔗Register here: erknet.org/databases/erkr… #training #ERKNet #kidneydisease
🔬Don't miss our Webinar on ADTKD🔬 A webinar presented by Jan Halbritter and patient voice Christian Scheidler on Tuesday, 12th of November. 🔗to register, click here:erknet.org/education-trai… #webinar #ERKNet #education #ADTKD #learning #kidney #health
🌟Meet Johannes, one of our Project Managers🌟 Read here and discover the great work he’s doing with the ERKNet team. #MeetTheTeam #ProjectManager #ERKNet #rarekidneydiseases
🌟 Upcoming Webinar 🌟 On Wednesday, November 7th, Bradley Warady and Kristy Peto will talk about ISPD guidelines on peritonitis and exit site infection. If you havent already registered, sign up right here: erknet.org/education-trai… #education #webinar #ERKNet #ISPD #health
📢 New Publication Alert! 📢 Nature Reviews Nephrology – the ERKNet/ESPN consensus statement on diagnosing and managing congenital Nephrogenic Diabetes Insipidus (NDI) 🌟In memory of Stephen Walsh, a valued colleague and friend.🌟 full paper here: erknet.org/guidelines-pat…
Today marks the official launch of @ERDERA_org a flagship partnership set to make Europe a world leader in rare diseases research and innovation: Learn more loom.ly/HBCgxQo
Explore rare kidney diseases with ERKNet Webinars! 🔍 Led by experts, these free sessions dive into diagnosis, treatment & the latest research. Open to all—medical students, health pros, patients & more! Register here: erknet.org/education-trai… #ERKNet #Webinar #KidneyHealth
Network ABCs: G is for... Guidelines 📑 ERKNet’s Clinical Guidance ensures top care for #RareDisease patients across Europe 🌍. In 5 years, 14 new guidelines drive better outcomes through collaboration 🤝 #Nephrology #PatientCare
The ERN RARE-LIVER Webinar "How to communicate with adolescents and young adults" is now available to watch! rare-liver.eu/training-educa… Key topics: ✅ Adolescent brain development ✅ Practical communication tools ✅ Youth panel insights #ERNRareLiver #EASLCampus #Webinar
Bone impairment in atypical hemolytic and uremic syndrome treated by long-term eculizumab pubmed.ncbi.nlm.nih.gov/39422762/ If you have such patients please contact us we are lauching a global survey on the topic! @Ped_Neph @CHUdeLyon @FiliereORKiD @EuRefNetwork @SNephroPed @IPNA_PedNeph
ERKNet Postgrad Curriculum 2025!📚 Join the 5th Class of the ERKNet Postgraduate Curriculum and become a certified "European Kidney Disease Specialist"!🏅 📅 Register here: 🔗 docs.google.com/forms/d/e/1FAI… #HealthUnion #EU4Health
Our colleagues from @eUROGEN have an interesting webinar coming up! 📚 Duplex kidney anomalies: diagnosis and contemporary treatment 🗣 Dr. Stefan Anzelewicz 🕓 18:00-19:00 CEST 📆 Oct 23rd 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐡𝐞𝐫𝐞 𝐨𝐧 𝐨𝐮𝐫 𝐰𝐞𝐛𝐬𝐢𝐭𝐞: erknet.org/education-trai…
🎉 Launch day is here for the 𝐏𝐈𝐂𝐊𝐄𝐃 𝐏𝐫𝐨𝐣𝐞𝐜𝐭! 🚀 Advancing personalized kidney care through innovative research and training. 🌍🔬 #PICKEDProject #KidneyResearch #LaunchDay #PersonalizedMedicine #HorizonEurope
¡Hasta pronto, Valencia! 🙌 Great conversations about the future of kidney care with @ERKNet, #CompCure, and #EscapeKD. "The best way to predict the future is to create it." — Peter Drucker #ESPN2024 #Nephrology
𝐖𝐞𝐛𝐢𝐧𝐚𝐫 𝐑𝐞𝐜𝐚𝐩 💻 Back in June our expert Djalila Mekahli explained her findings on the management of children with and and at-risk for ADPKD. watch our full webinar to deepen your knowledge ADPKD 🔗erknet.org/education-trai… #webinar #kidneydisease #rarekidneydisease
🌍🤝 Had a fantastic time with our ePAG partners from Ashua, Hipofam, and FEDERG at the ESPN conference! Grateful for their dedication as we strive for better outcomes in rare kidney diseases! 💙🙌 #PatientEngagement #RareKidneyDiseases #Collaboration #PatientVoices #ESPN
Reminder! Submit your Abstract for ERICA ERN Research Conference. Deadline already in October: erica-rd.eu/event/erica-ga… @ErnLung @ern_bond @cranio_ern @EuRefNetwork @ernica_ern @ERN_Skin @ERN_EURACAN @ERN_eUROGEN @ErnEyeEU @ERNIthaca @ERN_RARE_LIVER @TransplantChild @ern_reconnet
📢 DGFN Announcement 📢 Catch Christian Scheidler presenting Poster P043 on Friday, Sept 17, 2024, at 14:45 at the DGFN in Berlin! Collaborated with Bernt Popp from BHI@Charité. #DGFN #ePAG #ADTKD #MUC1 #Nephrology #CharitéBerlin #PosterSession
🌍 It's C3 Glomerulopathies Day!🌍 Learn about C3G & MPGN, rare kidney diseases tracked by CompCure in the ERKNet subregistry. Visit us at the ESPN Annual Meeting in Valencia! 👋 #C3GDay #CompCure #ERKNet #ESPN2024 #RareKidneyDiseases
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Who to follow
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Pediatric Nephrology
@Ped_Neph -
ERN RARE LIVER
@ERN_RARE_LIVER -
ERN-EYE
@ErnEyeEU -
ERA - European Renal Association
@ERAkidney -
_ERNRITA
@_ERNRITA -
EpiCARE
@EpiCARE_ERN -
ERN eUROGEN
@ERN_eUROGEN -
ERN ReCONNET 🇪🇺
@ern_reconnet -
ERN EuroBloodNet
@ERNEuroBloodNet -
ERN-ITHACA
@ERNIthaca -
MetabERN
@Metab_ERN -
ERDERA
@ERDERA_org -
European Reference Network on Rare Bone Diseases
@ern_bond -
ERN-LUNG
@ErnLung -
YNP of ERA
@ynptweets
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